i hate having this why me?

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oneday
Regular Member


Date Joined Nov 2006
Total Posts : 175
   Posted 2/16/2007 10:18 AM (GMT -7)   
hi
god i am in so much pain again. i have gone a whole week nearly with out pain and now this again. i am now so fed up with this. everything that i look at says that the prognoses is good for people with ibs but i never feel that it is every going to go away. i don't mind when the pain is mild but when it gets sereve and i am in bed or have to stay in bed it becomes angoing. it really sucks having this. i hate being like this and just want it to go away. i was making a programe about another chonic condition that i have and it was so embassing having to run to the loo all the time although it was good fun.

i am getting to the point now where i am fed up and just don't want to do much. my liver is not working properly probably due to having prediabetes, nothing seems to work like it should my health costs me so much. i have no money to do anything that i want to. i just hate having this. it is ruining my life.

why did i have to have so many health problems? to top it off i found out last year that i am dyslexic. i have been trying to get a new job but when they look at my application form see my sick record and then i am dyslexic i have no chance. i feel like i am doomed for life.

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 2/16/2007 11:32 AM (GMT -7)   

((((((((((((oneday)))))))))))))

Big hugs to you.  We all understand how you may be feeling.  The emotional rollercoaster of dealing with symptoms, testing, diagnosis, medication, trial and error… Life is difficult enough as it is.  But you know, there is a light at the end of the tunnel.  Just hang in there and do what you can to feel better 1 day at a time.  Take your meds, do your yoga (or whatever), stick to a healthy diet, and try to keep a positive attitude.  If you have to, your doc is probably able to offer you a finance plan.  Don’t avoid treatment and/or testing because you don’t have the money.  Your health is the most important thing you have.

During the times you are at work, shooting or out in the field, have you tried taking Immodium?  Even before you head out it could be a good idea to pop a pill or 2 for preventative measures.  It really does work.  AND, because IBS is linked to anxiety, knowing you have taken Immodium might calm you down which helps with your symptoms.

I’m sorry you are going through such a tough time. 

WE ARE ALL HERE FOR YOU


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bluemeanies
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Date Joined Jun 2004
Total Posts : 1372
   Posted 2/16/2007 11:52 AM (GMT -7)   
Sorry you are having a hard time coping right now. I too am not happy about my health. I have anxiety/panic disorder, crohn's disease, depression, high blood pressure, IBS, very low vitamin D, I grow precancerous polyps and nodules on my thyroid. To top it off I may now have a painful rheumatic disease. I can't support that many specialist, hee hee hee. I know it's hard to imajine but it can always still get worse so I try to not let it get me down, but it does sometimes. I try watching a funny movie or reading a funny book to get my mind off it. I hope things are looking better for you soon.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/16/2007 12:42 PM (GMT -7)   
I know you are in the UK and they have different laws about hiring apps, but no one in the US would ever disclose they were dyslexic during hiring; no one's even allowed to ask that during an interview or on an application; we have very strict laws about discriminating against the disabled. We don't have nearly the sort of social welfare program that the rest of the developed world has, so we're really gunning for disabled people to work and take care of themselves. Is there a law stating that you have to list your disabilities? Unless absolutely required by law, I would definitely not mention the dyslexia.

What kind of dyslxia do you have? Your spelling doesn't carry the typical hallmarks of a dyslexic person; bad with numbers? There are always ways of working around a problem like that so that no one ever has to know. Bad spelling is fixed with word processors, and if you know every number you write down is always backwards, then write it down, then write the reverse of that and press on. If you get confused as to what's right or not, you can always have a co-worker "go over" your numbers with you. I work in the legal field, and before that I worked in a college's reistrar's office, and sometimes with our college statistican (the person that comes up with how many minorities are in our school, how many girls got financial aid, etc.). In all of those positions, employing a second person to check over numbers, grades, and legal transcriptions was always done. So there's no reason why you couldn't do the same and make sure your dyslexia doesn't cause any serious errors.

Also, unless required by your laws, I wouldn't disclose my sick record in a hiring app. I would admit in an interview that I have a medical disability that sometimes requires me to miss work, but that I would be willing to work alternative hours and from home to balance it out. Even if you do have to disclose your missed-work record, I would make sure to emphasize, in my covering letter, that I am willing to make up missed time by working alternative hours, work from home, work weekends, etc. A job that's going to have very strict deadlines is usually not a good job to apply for with that kind of record hanging over your head. However, a job in, say, the computer industry, might be mroe flexible with the work-at-home and alternate times situation. Transcription and telemarketing are things that are increasingly done at home. Heck, my husband works for a large computer company, and they are sending a lot of their technicians home and they take calls from there. It's cheaper because the company doens't have to maintain the space for the worker, plus they're expanding, so they can send out as many as they bring in and not have to build or buy a new building. I know these jobs aren't in your preferred field, but they may what you have to take in order to maintain support of yourself until such time as you get well enough to go back to working at what you like to do.

Also, we have a charity called Goodwill over here, and it helps disabled people find jobs and even get training in order to get a job. Do you have some similar charity over there? That might be a good place to go; let them help you find a job that's used to working with sick and disabled people.

oneday
Regular Member


Date Joined Nov 2006
Total Posts : 175
   Posted 2/17/2007 9:21 AM (GMT -7)   
thanks for raeding this. i nkow you are all going though this as well. i just want my life to go back to how i was before all of this hapened.

i have been for to jobs in the last few months and as soon as i mention i an dyslexic it like i dont want to know. my spelling has improved so much over the last year as i have being working raelly hard to improve it at college. i have to disclose it if you don't then you could be sacked. i ahve prolbems with writing and raeding. when i use my coloured glasess for it then the problem is not to bad but when i get tierd i start to mix up my letters. i use spell checkers as well wihh help. iam raelly tierd today so i know thta my writing wont be as good and i cant be botherd to use a spell checker. it normaly takes me ages to write some thing on here as i end up useing my dyslexic dictioanry. i have treible troulbe raeding. bit of a pain when i have to raed to the kids at work. i aways look at book first then make sure i can raed it. but most of the time i just don't raed to them. i am able to floolw most of what is wirtten on here just mising out words i don't know. sometime s i have to ask my mate to raed it for me. a lot of the time i get someone to write the stuf for me as it take to long for me to write but today i decsieded i would start to write it. they jmust wrote what i ask them to write alotugh they wernt great spellers them slefes.

i went to see another doctor yestrday she has taken me of the anitpdressants. so see how i go. i am also sufering from hay fevr at the monet. it makeing me feel very grumpy and under the weather. on tabletsb for that. i am doing a guten fhree deit at mo. not sen much improvment thugoh. i taken imodium but not wiht much suces. now i ben told i have to go to the mental health unit for the day servisecs bit for lesons there. don't want to go but fel like i have to becuase if i dont then my doctor won t want tom help me.

wiht me it not a case of being woried about geting d. or haveing laods of bms i seem to get it when i not in stress fall situations. not i belve the anixity thing. sure they jsut say things like that as they dont no what it is so they give it name to give you a diagnoses. i jsut want that cure to cme so i can get on my life.

sory just more fed up today. just feel rough. i will write on here form now. i was woried that if i worte mesages then you would nt under stand them.

thanks oneday

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 2/17/2007 2:42 PM (GMT -7)   
Oneday, you mentioned the being dyslexic but your first post is letter perfect which I would not expect. Your recent post is so different that I wonder if it is true dyslexia. It is like it is written by a totally different person. The people I know that are dyslexic could never write a post like the other ones your wrote. Do you really need to put this down on application? I guess it would depend on the job whether it was important but if it wouldn't be a problem I would not put it down.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/19/2007 1:02 PM (GMT -7)   
I think if you can hide it, you should. It seems like you have already done a lot of work covering up your poor spelling, and I don't think anyone would notice after you got hired, since you will invariably continue to neaten up your initial writing with spell check and the like. And, to be honest, in this day and age, spelling and punctuation have gone by the wayside quite a bit. People are so used to instant communication and getting it done as fast as possible that spelling errors are fairly par for the course, and wouldn't likely notice yours anymore than a person who just wrote too fast.

Also, once you get hired, getting fired is more difficult. I don't think you can expect that someone will fire you if they find out that you are dyslexic. If you work hard to spell things neatly, then they will likely never know. And even if they do find out, you will probably be contributing so much in other ways, that it will matter little to them. My mother's dyslexic and she works as a nurse. Luckily she's not bad with numbers--hers is mostly spelling too--but she always double checks her numbers on her charts and meds and the like and has never had an error. So there's no reason why you can't conquer and prevail too!

Unless you are helping a single child to read, being able to read books (especially to a group) is not really necessary. Children just need quality time with an adult in most cases. They usually can't see the words from where they are sitting anyways. So there's no reason why you can't bluff your way through this. If the kids are old enough to read, pass the book around and have each child read a page or a paragraph. Kids usually like reading out loud like this. If they're not old enough to read, or that's not the point, then tell them that you like the pictures in this book, but the story is a bit too dull; let's help it out a bit. Then just make up a story based on the pictures. You probably already know what the plot is anyways, but you can always just flesh out the filler bits by looking at the picture, not the words. Also have the kids help you describe the picture and figure out what's going on. Kids don't get to use their imaginations and creativity enough anymore, anyways. And if you have kids that are reluctant to read, you can admit to them that you don't like to read much either, that it's hard for you. But then emphasize that reading is so worthwhile, and makes you so much smarter, that you try everyday to read. And point out to them that if they work hard now, reading will come easier to them as they get older and they won't have to work so hard when they're your age.

I once had a math teacher admit that she didn't like math. She became a math teacher, though, after getting introduced to a very good math teacher in college, who made her like it a whole lot better. That, and she saw it as a challenge, to conquer math. She always said, if I can learn it, so can you. It made her a better teacher, I think, because she knew better how to explain things than a teacher to whom math came naturally. She even counted on her fingers! I didn't feel so slow or stupid in her class because I couldn't remember the whole multiplication table and spit it out really fast. I guess she was the best math teacher I had in school. So, your "disability" can actually be a wonderful opportunity for helping others overcome theirs, because who else understands it better? I bet you'd be good working with people who are physically handicapped or sick too; again, sympathy goes a long ways.

JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/20/2007 8:49 AM (GMT -7)   
I can totally relate to the person her started this post.  I tend to get very emotional at times (thinking that I am dieing) and I will have a breakdown.  I often sit and wonder "why me", it plain sucks!  No one understands, but us going through it.  There are days, when I am in a funk that I am not able to get out of.  I just want to lay around and do nothing.  It is like, I never feel good and I hate it!
JHP
 
DX:Glanzmanns Thrombasthenia(bleeding disorder)"GT" Type 1 as an infant, IBS 2004 with no testing done.


oneday
Regular Member


Date Joined Nov 2006
Total Posts : 175
   Posted 2/21/2007 12:11 PM (GMT -7)   
hi thanks guys.
i raelly need to get a new job i am finding it so hrad at mo and very stressfull. i spoke to my counclior on monday abuot my moads. she agreed that i need some help to come to terms wiht everything. i lost my grandad in june when i was on hiloday. i had night mares abuot the way he died and was treated in hos. i aslo lost my nan who was in intensive care for weeks. at least i have amtitted that i need help.

i have just found out that my imumne system is low well something is wrong with it. aslo that my iron levels are low. i thnik it is because of the bleeding from the back passage. i just need something to be done abuot it.

on monday it is my birthday so i hvae descided that i am going to go out and get bladdered if i can. i dont drink thta much but i just fel like giong out would do me good to get out. just hope my stomach is ok.

what a year.
thanks
oneday

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/21/2007 2:15 PM (GMT -7)   
If your immune system is testing as being low, then you should definitely have someone check you for Crohns (again, if you've been done once already--it can be tricky to find). Crohn's is an auto-immune disease which can cause all sorts of things, not the least of which is intestinal bleeding and severe pain. Also, get tested for fibromyalgia (if it's a no-go with the Crohn's) because it too is an auto-immune disease which causes severe muscle pain and fatigue, and which can also cause bowel problems (although not bleeding--which is why you sound more like Crohns). There are medicines out there that can help manage the Crohns, but I've heard that it's better to catch it early and get it under control. Apparently if it goes on for a long time without treatment, it's much harder to control, more permanent damage is caused, etc.

I'm sure you've probably brought all this up with at least one of your sucky doctors before, but I'm afraid you're just going to have to stay on top of them, or get new doctors and ride them until you get some help. I don't know if the funds allow, but maybe you could see a doctor in another country? America's too expensive for anybody (including Americans), but I've heard some good things about doctors in the Czech Republic (you can get them that speak fluent English--even some that specialize in "medical tourists"). They'd be someone you could probably afford to see, and with you paying out of pocket, maybe they'd be happier to perform tests on you than doctors constrained by an NHS budget. Once you have a diagnosis in hand, it would be harder for doctors back in the UK to ignore your problems and refuse to give you meds and treatments. And even if they do, hop on Ryan Air (hopefully they serve Czech) and just go back there for medicines and treatments. Americans are increasingly turning to Canada and Mexico for both prescription medicines and, especially in Mexico, medical and dental procedures, because an uninsured person just can't afford to have medical procedures done in the US. With a proper amount of research, they can get a good doctor in Mexico and get a bill that they can pay, instead of an astronomical bill forcing them into bankruptcy. So you just have to go where you can afford good health care. You don't seem to be getting good free health care, so maybe it's time to pony up a few bucks and see if you can't get some good health care that way. Like I said, do your homework to find a legitimate doctor, not some unlicensed quack. But, gosh, you're so bad off at this point, I don't think it's a big risk to go to another country to see a doctor. Could he possibly cause you more pain or make your bowels worse? You should know enough from being on this board and going to other doctors to know if something seems fishy.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/21/2007 2:19 PM (GMT -7)   
Make sure you don't drink while on your pain meds. Combined they make you even more drunk than normal (saw this happen to my stepfather after two drinks with dinner while he was taking pain meds for his abcessed tooth) and it doesn't take much alcohol to give you a bad--even deadly--reaction. And some pain meds are worse than others about reacting badly with alcohol. So I'm afraid you have to chose one over the other, and I daresay neither will probably make you feel any less pain than normal. The alcohol will probably tear your guts up real good, though. Although, a few people have found that hard liquor actually makes their guts better, so who knows?

oneday
Regular Member


Date Joined Nov 2006
Total Posts : 175
   Posted 2/22/2007 10:37 AM (GMT -7)   
cheers
i am so loking forwould to going out if i ok. i have not been out for months bout sevon months. i will be very care ful thoough i know it could be leful. i am seeing a nother gi so se whta he says. trhnka you for that info. i do agre. i thnik thye are thinking thta i have ibs because my mum has it. i gonna push now for diagnoses and treatment so i can get on with my life. hopefuly.

thnaks oneday
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