I am totally lost for a year now

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corby7
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/21/2007 7:44 PM (GMT -7)   
Here is my case
 
I have had a scope down and up , ultrasound,cat scan and bloodwork and dry and live blood analaysis. My gastroenterologist cannot find anything wrong with me and I am losing weight (maybe from worry)10 lbs. I did not know where to post my symptoms but here goes.
First the stuff I have taken for this.
All kinds of supplements , colostrum vege greens,ibs meds,Bio-K,light colon cleanse and the list goes on. Candida cleanse also
 
I get a hot itching face,sick to my stomach, burning in my kidneys,spasms in my belly,swollen spleen,naucious dizzy, DIARHEA, THIN STOOLS, And alot of constipation, constant jock itch alot of gas that I cannot release from my anus most of the time. The live cell DR. Paddon said my colon is very very inflamed also. He said possible intestinal cancer but cannot confirm this? That guy cost me about $2000 to take his supplements and could not afford to see him any longer.
 
I feel completely lost some days I am so tired I pass out like a light. I have pain in the small intestine area and also my left side mostly just under my ribs. Cna anyone point me in a direction and help me. I am so lost and have lost faith in doctors. What can it be?? Thank you
 
I do have stress in my life but stress I cannot see can make a person feel like they are going to throw up when I feel happy. I get sick to my stomach feeling after meals but not right away. Defication often happens later on in the evening. If I go at all. I used to go everyday now I can go 3 days with out pooping. HELP ME PLEASE

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 2/21/2007 8:36 PM (GMT -7)   
I don't know who Dr. Padden is so this is a guess based on the info you gave. First off it is possible you have a couple things going on. My first guess and it is only that is that your system is totally out of balance and has been made worse by some "meds" and treatments that may do more harm than good. Have you tried just plain Acidophalous on a daily basis? Have you eliminated all dairy for a week or two to see if there is a problem.This is something that can happen even when it was n't that way before.What is your diet like on a daily basis and have you been checked for food allergies. For someone to say you may have cancer but they can't confirm is nutso in my opinion. They can take biopsies, they can do a PET scan. You could very well be allergic to some of the things that you are taking. These are all just ideas for you to think about. If they can't find anything they do usually diagnose with IBS. I assume you have had a CT scan with contrast to see the pancreas and spleen and all the gall bladder tests. Hope someone can give you some answers.

corby7
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/21/2007 8:53 PM (GMT -7)   
No I did not have a gallbladder test or pancreas, spleen, is this something they would need to perform specifically. I tried off sugar and do noteat sugar at all now. I think i will try no dairy products next. As I have not been taking milk anymore other then cereal. I really appreciate your help. Thank you

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 2/21/2007 10:44 PM (GMT -7)   
A ct scan should show an abnormality in the spleen and pancreas plus blood tests would show a problem that was a red flag. AS for gall bladder there are a number of tests they can do to see if it is functioning properly. The diet that I must go on when I am having a problem is chicken, fish, white rice, mashed potatoes, noodles, no red meat, no fresh fruit, no veggies with strings, etc. and not much roughage to speak of and no dairy of any kind, cheese, milk, cream sauces, etc. and usually in a few weeks with Acidophalous I am back to pretty much normal but we all have to find what works for us. I am really concerned about all this colon cleansing stuff you have done. You have may have made things worse getting rid of all the good bacteria along with the bad. Stay on Acidophalous or one of the probiotics for a few weeks and see if they help. They may give you more gas to begin with. Stay away from those supplements. If you need fiber take soluable fiber.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/22/2007 10:14 AM (GMT -7)   
Canyon is right that a lot of "treatments" can actually make IBS worse. Colon cleanses, whether holistic or as preps for colonoscopies, can flush too much of your bacteria out of your intestines and make your symptoms even worse, because now there's nothing in there helping you digest and process your food. Her suggestion of probiotics is a good one, and you should get on them immediately. They may give you a bit of gas at first, but that's the only known side affect, so it's a worthy tradeoff at a chance to balance your guts back out. With any luck, they'll fix you completely, but if not, they may very well make your symptoms less manageable.

So a holistic-type doctor said you had inflamamtion in your colon, yet this didn't show up on your colonscopy? That makes him sound like a snake-oil fraud. Of course, colon cleansing can irritate your intestines, so it is always possible that after a couple of those, you could have very well developed non-specific inflammation. However, that will go away on its own when you stop flushing your colon out. Deep inflammation is a sign of something more serious than IBS--usually an IBD. However, if a proper GI doctor didn't see inflammation on your colonscopy, then you can be fairly confident that you don't have an IBD.

As Canyon mentioned, food allergies or intolerences can cause a lot of GI difficulties. I would append her recommendation to suspend milk products to make sure that you avoid all foods which contain Caesin, which is a milk protein that people who are allergic to milk cannot tolerate. This is the difference between being just lactose intolerant and being allergic to milk. You will find that caesin is in a lot of processed foods, so you have to look at the ingredients carefully.

Another elimination diet you might try (don't do two at once, or you'll never know what you're actually allergic to) is gluten. This is found mainly in wheat and corn products. Again, it pops up in processed food products where you least expect it, so keep an eye out on those labels.

Finally, you can always try an organic diet; some people are allergic to preservatives and/or food dyes. You should especially consider this if someone else in your family is allergic to these things.

Try the probiotics first, since they are easy to do and give them three weeks to see if you improve. If you don't, or you don't get completely better, then move on to the elimination diets and see if that might not be your problem.

Based on the symptoms you list, you don't sound like you have a gall bladder problem, so you might want to save yourself the testing on that one, unless your symptoms change. But, the burning and rashes you are getting would seem to either point to an allergy (and since your bowels are upset, most likely a food allergy), or to a severe bacteria imbalance, such as yeast overgrowth. You can take a breathalyzer test to test for bacteria imbalances. If you can get your GI to give you one of these, it may tell you right off the bat if that's your problem, and then it can be treated with a combination of antibiotics and probiotics.

If everything else you try fails, then see if you can strong arm your GI into putting you on a course of strong antibiotics anyways, just to see if that helps. More and more IBSers are being treated this way and are getting better, even though doctors can't figure out what it is in our guts that's causing us to have problems, and why antitibiotics kill it and we get better.

TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 2/22/2007 12:00 PM (GMT -7)   
From what I've read, corn does not contain gluten and is OK for people with celiac disease to consume. One easy way to remember what NOT to eat on a gluten-free diet is to think: WBRO is the way to go - meaning Wheat, Barley, Rye and Oats. Sounds silly, I know, but whatever helps a person to remember, right? :-)

Rice and corn are two grains that are acceptable, but if these products are milled in the same facilities as other gluten-containing grains, a very sensitive person might react to the trace amounts of gluten left on the milling equipment.

Corby, you might want to consider asking your doc for a test for celiac disease since you have so many varied symptoms. Briefly, people with celiac disease have an autoimmune response similar to an allergy when they consume gluten-containing foods. Over time, this reaction causes damage to the villi in the small intestine and prevents the proper absorbtion of nutrients. That, in turn, can cause all kinds of crazy things in the body from bowel changes to neurological problems like seizures. If there is enough damage to the small intestines, it could take weeks for the gluten-free diet (the only known cure at this time) to take effect.

If you want to have this blood test done, do NOT start the diet first. The test looks for antibodies in your blood, and if you stop your gluten intake before the blood is drawn, those anti-bodies will not be there.
Living in the Republic of Texas minus a gallbladder, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/23/2007 12:22 PM (GMT -7)   
I knew someone had posted an anacronym to help remember what you could not eat when you're off gluten, but I coudn't remember what it was! :-)

One thing about the tests for Celiac's: they're not 100% accurate. The blood test is so unreliable that a lot of doctors don't bother doing it. The other test that's more reliable, but still not definitive, is a biopsy of the stomach lining (done with an endoscopy). The odd thing is, you may wind up not having Celiac's Disease, but are still unable to tolerate gluten. A Celiac's test looks for a very certain biological reaction that occurs when you consume gluten (like Jen said, it's like an autoimmune response), but it doesn't look at the other sorts of reactions you might have. So some people go through the Celiac's testing, only to be told that they don't have it, but find they still can't tolerate gluten. That's why I usually just tell people to cut it out and see what happens. For most people, it doesn't matter if they are actually, officially diagnosed with something; all that matters is that they get better. But some people feel better with a firm diagnosis, and some people may feel that they would like to have a firm diagnosis on their charts (not a bad idea if you have problems finding a doctor who treats your complaints and symptoms seriously). Personally, I cannot tolerate caffeine (except in incidental amounts), but I'm not allergic to it. That's kind of the difference between being intolerant to gluten, but not allergic to it (having Celiac's Disease). A lot of us on here can't tolerate certain things (alcohol, raw veggies, apple juice), but we're not allergic to any of it. Some people just can't digest gluten, even though they don't have an allergy to it.
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