Saw the endocrinologist yesterday...

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Sarita
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   Posted 3/7/2007 5:50 PM (GMT -7)   
He confirmed I have a "diffuse toxic goiter." Doesn't that sound sexy?  HA!  It's another term for Graves' disease.  He could feel the goiter with his bare hands!  I almost puked my guts out when he said that.  GROSS.  I should probably get used to it, though, since I'll probably feel hundreds of goiters in the next few years.  Just the word "goiter" is weird.  Goiter goiter goiter.
 
He's agreed to treat me with anti-thyroid drugs first (before trying radioactive iodine).  The drug is called methimazole.  He said that it could suppress my white count, and that on rare occasions people require bone marrow transplants because of that (I was like, holy crap dude!) - but evidently that is a better risk to take than remaining hyperthyroid.  Fantastic.  Anyway, he said I should start feeling better within a few weeks on this drug. 

7Lil
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   Posted 3/7/2007 6:14 PM (GMT -7)   
Where are these goiters??? Is the name specific to a certain region and I should already know the answer to this? How come no one felt these goiters before?
LOL You're right... Goiter is funny. Glad you have a good sense of humor about this.
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dbab
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   Posted 3/7/2007 6:54 PM (GMT -7)   
I'm sorry you got dx'd with Grave's disease Sarita but happy for you that you got an answer. Thyroid problems really can mess you up and can cause really bad problems if going for a long time without diagnosis and treatment. I'm hoping that you can get better with the meds... just remember, thyroid meds are kind of like insulin that it takes a while to find the right dosage but I hear that they make a lot of difference on your quality of life.
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Ides
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   Posted 3/7/2007 10:21 PM (GMT -7)   
My daughter's blood test showed her to be hypothyroid when she was 8. She was on synthyroid for a year and a new peds doc retested her. He said it was all a mistake and took her off the meds. Fast forward another 8 years. It was Christmas time and I was rough housing with her and kiddingly grabbed her by her throat. I felt this huge mass in her neck and freaked! She had a very large goiter! It was not visible when looking at her. Of course her blood work came back showing her severly hypothyroid.

Lil - a goiter is enlargement of the thyroid gland. The thyroid is in the front of the neck, right below the Adam's apple.
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Canyonbabe711
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   Posted 3/7/2007 10:51 PM (GMT -7)   
OK, now I am confused. I thought if you had a goiter you were hyperthyroid, not hypothyroid as it is overactive which is why they give you meds to supress.

Sarita
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   Posted 3/8/2007 12:09 AM (GMT -7)   
There's different kinds of goiters - "goiter" just means enlargement of the thyroid gland.  It could be caused by iodine deficiency (rare in the U.S. especially), nodules, thyroid cancer, or autoimmune diseases such as Graves' (resulting in hyperthyroidism) or Hashimoto's thyroiditis (resulting in hypothyroidism). 

Keriamon
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   Posted 3/8/2007 8:41 AM (GMT -7)   
Am I'm the only one checking my neck now? Lol.

Keriamon
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   Posted 3/8/2007 10:42 AM (GMT -7)   
Goiter is a more old-fashioned word. Most people talk about thyroids today, but old people used to talk about their goiters all the time. Add that to other interesting old-people words like hemmroid, bunion, corns, stye, risen, lumbego, and sciatica.

TexasJen
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   Posted 3/8/2007 6:10 PM (GMT -7)   
I had a great aunt who had a huge goiter. Poor thing. This was back in the late 30's when there wasn't a whole lot to treat it with. She finally had it removed and died a few years later. You can see the progression of the disease by looking at her old photos. She blew up like a balloon, then after the goiter was removed surgically, she was thin as a rail. You're right though - that is one Weird word huh?! You got me chuckling with Goiter Goiter Goiter! :-D

And Keri - you were spot on: While reading this thread I've been unconsciously rubbing my neck. LOL!

How nice to have an answer though - and to have the problem be treatable at that! :-)
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Sarita
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   Posted 3/9/2007 12:55 PM (GMT -7)   
It'd be nice to be thin as a rail...I'm getting thinner and thinner, which I certainly don't mind, and I'm trying to enjoy it while it lasts, HA!  I'm feeling better since I'm taking my beta-blockers consistently, and so far the methimazole hasn't given me any weird side effects, although it is only day 3 so I won't probably feel normal again for a few more weeks. 

Keriamon
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   Posted 3/9/2007 3:20 PM (GMT -7)   
Would you know what normal feels like?

Sarita
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   Posted 3/9/2007 5:44 PM (GMT -7)   
Crapping 20 times a day...duh  :-)

bluemeanies
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   Posted 3/14/2007 11:12 AM (GMT -7)   
I grow nodules on my thyroid but they are too small to be felt. I am on synthroid and get it checked every six months. I am hypothyroid. Hope you are feeling better soon.

Canyonbabe711
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   Posted 3/14/2007 12:59 PM (GMT -7)   
How did they find those nodules if they can't be felt? I am wondering if I have something like that as it seems really hard to get my thyroid to the figure they want. They know say the TSH should be less than 3 and I have trouble getting it to 5 but my T3 and T4 are within the range. I feel OK and we have increased my meds to .088 so will wait for next test but it seems to be all over the place.

Sarita
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   Posted 3/14/2007 2:58 PM (GMT -7)   
Nodules can be seen during a thyroid ultrasound, or alternatively during a radioactive iodine uptake test.  Canyon, have you had your thyroid antibodies checked? 
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