How much pain do you get??

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lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 3/9/2007 12:39 PM (GMT -7)   
Hi everyone, just wanted to ask a question regarding pain and ibs. On a scale of 1-10 how much pain would you say you get from the ibs, mainly those with constipation. At times my pain is literally unbearable, unable to move etc. I just wondered if this was normal with this disease or not.  Thanks
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


Tired_of_This
New Member


Date Joined Mar 2007
Total Posts : 5
   Posted 3/9/2007 1:54 PM (GMT -7)   

I have had IBS since 1988 and when I have attacks the pain can be unbearable.  There have been many times where I have actually passed out from the pain I get.  I find (as weired as this sounds) that if someone comes into the bathroom with me and rubs my lower back it does help ease it a little bit.  The pain is so bad that my breathing becomes very heavy and my whole body feels very heavy as well, like I can't even hold myself up.  I can get very clammy and cold with it as well.  Sometimes when I think it may be all over it starts up again just as quickly.  Unfortuneatly there is not much I can do until the whole episode supsides and it is all over with.  So to answer your question, YES, the pain is very normal with IBS and everyone has differnt levels of main they get with their attacks.  The way I describe it is this,  when I am having a really bad attack the pain is probably best describe with the same level as Labour Pains when having a baby, no joke.

Hope we can all find relief for this side affect of IBS. 


DX'd with IBS: 1988
Med's: was taking Modulon but doing better since I stopped taking it
Deperately looking for a solution to fix it.


Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 3/10/2007 9:51 AM (GMT -7)   
Sometimes when I am constipated,I become faint cold and clammy from bearing down to try and go. A Colo-rectal surgeon told me it is a vascular problem. I just had 3 days of testing at U of Mich. I am even more confused now. New GI Dr says I don't have UC,I have IBD.Not one Dr I have gone to has agreed with the other. 4 Drs and still they can't agree. I am so sick of this and sick of Drs.
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lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 3/10/2007 6:07 PM (GMT -7)   
Hi, thanks for your replies. I'm trying to figure out whats going on. The clammy cold feeling I know really well, I sweat so bad I need to dry myself all over. This happens regularly, but the thing that bother me is the pain happens quite often after I've had a bm, which is normally every 10-14 days. I've been fobbed off for 2 years and quite honestly sick and tired now. I also have lupus which is enough to deal with on it's own. Scrappygit, I know exactly how you feel. The doctors make me mad sometimes. My testing showed slow colon transit, possible obstruction, and proctogram showed muscle problems in the inner and outer anal sphincter, yet still no help to put any of this right. I can get this pain which I agree is like Childbirth, only worse! It can leave me unable to move for hours and I can't believe this is acceptable to anyone. I truly don't know how you've managed to put up with this for years and years. Does anyone also get extreme pain after a bm, when your "bottom" relaxes again, sharp and shooting up inside? Thanks x
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


carell
Regular Member


Date Joined May 2006
Total Posts : 105
   Posted 3/10/2007 7:56 PM (GMT -7)   
Good evening to all.  yes, I get pain on all levels.  Some days, it's just an ache but if I am severely constipated, I get pain that renders me almost unable to move.  My Dr. used to have me come in for that even though I insisted it was related to the IBS, NOT my appendix, etc.  It's funny- it sometimes happens even when I'm not constipated.  When it reaches it's peak, sometimes I'm vomiting from the intensity. It's become very ramdom even outside of the constipation.  It's tough though to be up most of the night with it and then try to function the next day.  I am healthy in many other ways though so I am grateful for that. Good luck with your pain- perhaps an anti-spasmodic?  I stopped asking my Md for one as each time I called, they panicked and then made me come in only to not give it to me in the end.  They always insist that it could be my appendix.  I really like me PCP's office, they treat me very well but how many times are we going to go through this?  Oh well, :)   good night and sweet dreams to everyone.  DON'T forget to set your clocks ahead.

Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 3/11/2007 9:40 AM (GMT -7)   
Yes,I get those pains also. I have prolapsed rectum. It is very painful and I get pukey from it too.Sometimes I will lay on the bed,put pillows under my knees,and push the heating pad up against my bottom. That helps. Also there is a foam called Procto-Foam to help take down the inflammation. That may work for you. Other than that,I just quit eating to give my bowels a rest.
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colin_oskopy
New Member


Date Joined Mar 2007
Total Posts : 10
   Posted 3/15/2007 6:55 PM (GMT -7)   
Thats a good question ... BUT. I Bet that nearly everyone with IBS will give you a different answer. This is not a black and white question. (yes or no). For myself pain comes and goes and varies continually from the scale of 1 - 10. Sometimes it dull, sometimes it's sharp, sometimes its in my stomach and sometimes in my butt. I actually monitor my abdominal pain everyday with on a scale of 1-10. (10 being agony). Over the years i have graphed these symtpoms and I see absolutely no pattern. The graph looks like random squiggle.

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Post Edited By Moderator (dbab) : 3/15/2007 9:15:42 PM (GMT-6)


emhaskey
New Member


Date Joined Mar 2007
Total Posts : 2
   Posted 3/16/2007 1:27 PM (GMT -7)   
I'm new to this site.. just found it today and am relieved (but not literally) already to know that there are others out there with my same problems.. In fact, I am a college student and actually had to MISS a class today (ruining my perfect attendance record for the semester) because my pain was so intense- debilitating. It had me hunched over and hardly able to walk home. These pains (which were a 9 or 10 out of 10) are for me from gas and constipation.
I try to "go" every day, but when I miss even one day, the pain can get really bad. Also, I my intestines produce an unusually excessive amount of gas- anyone else have this problem??? I've tried PhaZyme, Beano, Rolaids... I'm on prescription Zelnorm, yet I still can't go as regularly as I wish and the gas is intractable!
Any suggestions?

lion00
Regular Member


Date Joined Aug 2006
Total Posts : 334
   Posted 3/16/2007 10:10 PM (GMT -7)   
Hi Emhaskey, I'm sorry you missed your class. I don't really have any answers though. I'm not very clued up on IBS, still waiting for a complete diagnosis. I don't believe I have IBS, just some of the symptoms. The gas is bad (lucky my husban is used to it now!!) , and the constipation is dreadful (I'm lucky if I go every 10 days). But the pain is far worse. I've tried everything for both and so far no relief. I hope someone from the forum has some answers for you to get relief from your pain. Good luck and I hope you don't have to miss any more classes this term. x x
Chillblain Pattern LE, tachycardia, unknown bowel problems, migraines.
One gorgeous daughter age 5 after many many IVF attempts


Machina
New Member


Date Joined Mar 2007
Total Posts : 3
   Posted 3/18/2007 1:11 AM (GMT -7)   
(waves) I sometimes get really bad pains (7-8) in my rectum after a bm, but for me its mostly as Im having one. It feels like Im trying to pass razorblades or something. But the worst pains I get seem to come at random and at lower left abdomen. It gets so bad I cant breathe, I feel like Im going to vomit, I go from cold to sweating in seconds, I can hear gas literally squeaking its way through my intestines, and I lay there in pain for hours if I dont take a pain pill. My wonderful new GI doctor found a really good pain med for me (old GI tried darvocet-made me dizzy as Hell, Naproxen-did absolutely nothing, tylenol 3-made me shake, vicodin-almost got hooked), a non-narcotic called Ultram. I never thought I could love a pill so much, but they do their job quick and dont make me sick (although they do make me more constipated than usual, so I take a Senekot or some Miralax with em). I used to be absolutely terrified to leave my house because I didnt know when the pain would hit. Unfortunately I still cant drive- 2 zelnorm a day plus a pain pill will make me kinda dizzy- but Im thankful for what Ive got.


Although Ultram has one possibly undesirable side affect: It makes you ramble on and on and on and on and on and....... sad and it kinda makes me feel like a crackhead, having to take pain medication with me everywhere I go.




I hope you guys can find a way to manage your pain, and good luck! (people with IBS need all the luck they can get!:)
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