Update Results back from Cleveland Clinic

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ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 3/14/2007 10:33 AM (GMT -7)   
Hello All,   Well after 20 years of tests and 6 surgeries later I spoke with my doctor yesterday from Cleveland Clinic..  DRUM ROLL PLEASE.......  I have IBS.. I burst out laughing on the phone.. I said you don't say.. He laughed.. I kept asking him are you sure it is not chrons???  He said no it is not..  But he did say that IBS is a DX now and not to be discourged..  I told him I am because I have had it so long and do not see any hope..  Anyway he told me to try the Mirtazapine and the mirlax also fish oil and see how I do.. I am really depressed now.. I thought maybe I might have a different answer.. Oh well.. I am blessed that I do not have chrons or IBD... Just thought I would let you all know... Take Care....

Ryleigh


TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 3/14/2007 10:50 AM (GMT -7)   
Oh BOY do I know that feeling when you've be tested, inspected, injected, detected and then rejected with the old "it's IBS, take fiber and you'll be cured - NEXT!" diagnosis. <sigh> I can't tell you how many docs over the years insisted I "just had IBS so get over yourself and out of my office" and it was something else usually requiring surgery to correct. It's pretty sad when we actually want to hear a "bad" diagnosis. LOL! But - we want that "bad" diagnosis in the hopes that it will be something treatable.

You have a great outlook though - recognizing the blessing that you don't have chrons or IBD. Hang in there kiddo, and I hope and pray things get better sooner rather than later. :-)
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 3/14/2007 11:05 AM (GMT -7)   
Hey Ryleigh,
Well, like you said, at least it's not IBD. AND at least you have confirmation that it is nothing serious. Hang in there girl. My doc says people grow out of it... Maybe you will soon. I'm hoping I will soon too. Lets keep our fingers and toes crossed.
Be well
Co-Moderator for the IBS Forum
 
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dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 3/14/2007 10:47 PM (GMT -7)   
Congrats ryleigh... I think that is wonderful news. :)

The good news is IBS does not cause a lot of problems that IBD causes which is arthritis, higher risk of cancer, toxicity from the aggressive IBD medications, and much more (the list goes on). I hope that now since you have the final answers, that you can find peace with it and find your way to a treatment plan that works for you. Out of the meds you mentioned, I take Miralax also and it is definitely on my list of wonder drugs. (warning: it may increase gas in the beginning however that seems to dissipate over time)

Take Care
Hugs, Des
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007 (Lupus? Sjogren's? overlap?)
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements
 
 
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ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 3/15/2007 2:06 PM (GMT -7)   
Thanks everyone!!  It is good news..  But it does not change the fact that I cannot leave the house..   I guess I need therapy and to try this new medication for depression..  I just want to be normal.. Thanks again...

Ryleigh


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 3/15/2007 4:50 PM (GMT -7)   
Indersonu, Every one of my doctors suggest fish oil for me. Omega 3 is so important for MY health and I cannot tell anyone else whether to take it or not. I never got either one of the symptoms that you mentioned and I have been taking them for 2 years. If you want to avoid the possibility of heartburn or fish burps, there is a enteric coated fish oil available that breaks down in your intestines instead of your stomach.
Hugs, Des
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007 (Lupus? Sjogren's? overlap?)
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements
 
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 3/15/2007 5:25 PM (GMT -7)   
Ryleigh, this is great news.  I remember when I was at the Mayo Clinic and they told me they didn't know what was wrong with my guts, I felt pretty hopeless too, because I was still going 20 times a day!  But also I was happy to know there was no irreparable damage to my digestive system; this knowledge allowed me to focus my energies elsewhere.  I'll tell you, two years later I STILL have my garden-hose days, and it never gets any less annoying, but you'll learn your own triggers and remedies (slowly but surely).
 
I also take Fish Oil and haven't experienced any ill-effects from it.  The enteric-coated capsules, as dbab mentioned, are the best.  Great for your heart, too!

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 3/16/2007 10:24 AM (GMT -7)   
Indersonu,  Thanks so much for the reply..  I wish I could eat eggs.. They kill me.. I might try the pills.. I am always affraid to try anything new because I feel it will make me worse.. Also I have a problem if researching to much on the internet of side effects of medication..  I have anxiety about anxiety!!! I need help.. haha  Thanks again..

Ryleigh

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