A couple of questions for Keriamon

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starrnr
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   Posted 4/1/2007 5:23 PM (GMT -7)   
Hi Keriamon -- your extensive knowledge with gallbladder stuff is why I'm writing. I've printed out your "definitive guide", have read just about every post you've replied to and still have a couple of questions.

I need to convince my doctor (PCP or GI, don't care which at this point), that my gb needs attention. Problem is, every test comes back normal or ok...my hida scan last year came back at 65% ejection rate and the injection barely bothered me. My doc said that was ok, probably more from age than anything else.

I have the same symptoms that sent me to the doctor over a year ago (and ended up with a Crohn's diagnosis), but now I have new things as well.

Do you have any suggestions that I can use to light a fire under them to get them to pay attention to this? If it's not my gb, it's certainly related to the area around it. My Crohn's is in my small bowel and the pain and stuff I'm going through now certainly doesn't fit that.

Finally, is there anything I can do in the interim for burning D? I'm not talking hemmie burning, I'm talking fire burning, leave me gasping for breath it hurts so bad, while having the D...sort of yellowy stuff. I normally have severe chronic C, but in the past month or so, that has changed to D and this past week it turned to burning D.

Any help or advice you can provide is appreciated. I'd rather not end up in the ER for emergency surgery if I can in any way help it. Thanks so much.

~S.
"My "Trifecta" - CD, AS & RA... What a long, strange trip its been!

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily


Canyonbabe711
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Date Joined Mar 2006
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   Posted 4/1/2007 7:49 PM (GMT -7)   
Could it be the Folic Acid or perhaps one of the other meds you are on? Just a thought! I jsut googled Folic Acid and saw where they say it may be contraindicated with methotrexate(sp)

Post Edited (Canyonbabe711) : 4/1/2007 8:52:31 PM (GMT-6)


starrnr
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Date Joined Dec 2005
Total Posts : 1782
   Posted 4/1/2007 8:28 PM (GMT -7)   
Hi Canyon -- No, it's not the Folic Acid or the MTX (or the Remicade). Folic Acid is absolutely necessary for those taking mtx since it is a chemo drug. While we certainly don't take MTX in high chemo doses, we do on occasion suffer the same side effects: hair loss, nausea, fatigue, etc. The Folic Acid in small doses counterbalances the side effects of the MTX without lowering the effectiveness of the MTX.

I was taking the MTX (and FA) for a very long time (for my RA & AS) before I started having problems with what I think is my gallbladder.

I appreciate your thoughts on this, but I don't think this is it... Thanks though.
"My "Trifecta" - CD, AS & RA... What a long, strange trip its been!

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily

Post Edited (starrnr) : 4/1/2007 9:45:59 PM (GMT-6)


Canyonbabe711
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Date Joined Mar 2006
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   Posted 4/1/2007 11:04 PM (GMT -7)   
I wonder why it mentioned it under contraindications then if it is necessary to take together. That is sort of strange as it was mentioned along with a number of other drugs. Oh, well, like I said, just a thought.

bhkhhh
Regular Member


Date Joined Jul 2006
Total Posts : 245
   Posted 4/2/2007 8:41 AM (GMT -7)   
Starrnr, I also have the same problem. Even the removal of gb didn't help. The surgeon that removed it was very reluctant to do it but he did & still very little improvement. At times It may even be a little worse. So my advice to you is find a good doc & have him look. 65% is not a bad reading, some people are in the teens, I was a 14 I believe & surgeon said that could have been normal for my body. He also stated that the hida scan #'s really has no meaning. By no means am I trying to tell you what to do but be carefull. I allways thought you get gb removed & you were normal again. Not allways the case. A yr after gb was removed they discovered that I have a form of lupus (scle & possible sle) I really believe that is what my pain was & if they would have figured it out & put me on meds maybe It would have saved my gb. I also worry about chrones because my gastro was a real jerk!! His whole attitude changed with me when gb removal didn't help. I kept asking him about inflamation & he said my gb would make me inflamed.

Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 4/2/2007 10:31 AM (GMT -7)   
The only thing I know of to prevent bile diarrhea on your own is an exremely low fat diet. That got rid of my D after I got my GB out--although it also caused me to have severe C, so it was a no-win situation.

I had three hidascans and an ultrasound over the course of 5 years before I got a reading that would allow me to have it taken out. It was clearly my problem as I have never hurt and been sick again like I used to be when I had my gall bladder in. I still have bile D, but I take Welchol and that helps a lot.

Even if you still have your GB, you can take the Welchol, provided it doens't mess up your other meds (it can keep you from absorbing certain ones). Some people with IBS have GBs that seem to be fine, but they still have the bile problem; probably because their intestines are emptying so quickly they don't have time to absorb the bile properly. And these people take Welchol to some relief. So see if you can get your GI to give you some of that and see if it helps.

Also, probiotics and calcium. Both of these have helped me in the past when my guts were tore up for some reason other than bile. Also, bile, being an acid, can irritate your intestines, and calcium can help soothe irritations, so it's good to take the calcium when you're having bile anyways. If it also helps dry you up, so much the better.

Unfortunately, it may take them a while to discover it's you GB. Doctors, for some reason, tend to think you can only have one thing wrong with you at a time, so once they diagnose you with a problem (Crohn's) they think you'll never have any other GI problem (bad GB, Celiac's). I do usually tell people if they are certainly they have a bad GB, then the night or two before they get a hidascan, to eat everything they know will make them sick to try and induce a gall bladder attack and inflame/aggrevate it enough that it will show up. I think that's why mine didn't show up the first two times; it was in a period of remission and was functioning decently.

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 4/3/2007 6:01 AM (GMT -7)   
I totally agree with Kerimon..  My hyda scan reading was 20.. I just had my gallbladder/appendix out in November of last year.. It has made a difference to me.. I still have IBS but I do not have the attacks in the middle of the night where I am on the floor for hours in pain..  It has made an improvement in the quality of my life.. I hope you get someone to listen to you...

Ryleigh


starrnr
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Date Joined Dec 2005
Total Posts : 1782
   Posted 4/3/2007 9:36 AM (GMT -7)   
Keriamon -- thanks for the reply and the info. I think I'm in for a long fight about this, but I'll be patient. It's the D that really got my attention, but it seems to have stopped (for now). I see my GI on the 20th, I did try and bring this up with my PCP yesterday, but he just didn't "get it." Hopefully, I'll be able to get my GI's attention with all that's happened over the past months.

Thanks all for your replies...We'll see how things progress over the next few weeks.

~S.
"My "Trifecta" - CD, AS & RA... What a long, strange trip its been!

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily


7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 4/3/2007 10:16 AM (GMT -7)   
Starrnr,
Keep us posted on how your visit with the GI goes.
Good luck!
Co-Moderator for the IBS Forum
 
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Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 4/3/2007 10:50 AM (GMT -7)   
If your doctor tries to dismiss your symptoms as being more of something you already have, make it a point to ask him, quite bluntly, "So, are you saying that I can't have more than one intestinal problem at a time? Are you saying that because I now have Crohn's, I will never get a bad gall bladder or even a bad appendix?" I think that might shame him into giving you some tests. At least he ought to tell you why he's absolutely sure this is not your gall bladder. (And don't buy the "It's not your gall bladder because it doesn't hurt just on your right side" story, because I was fed that for 5 years because my gall bladder hurt all the way across my middle. Make him come up with a better explanation than that.)

starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 4/3/2007 11:00 AM (GMT -7)   
Good points there... I think I'll just bring him in all of your "writings" and let him know I'll "sic" you on him...LOL

Seriously though - you do have very valid points. I don't have an appendix anymore, but this particular set of issues DOES NOT fit my Crohn's scenario either.

We'll see how it goes...I will definitely let you know what happens (if you don't hear me scream beforehand!).
"My "Trifecta" - CD, AS & RA... What a long, strange trip its been!

Co-Moderator Crohn's Forum

Remicade every 6 weeks, Methotrexate weekly, Folic Acid daily

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