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Mgoblue201
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/26/2007 2:37 AM (GMT -7)   
I have heard the name Irritable Bowel Syndrome brought up during doctor visits, although nothing official was ever diagnosed. Recently I have decided to try to reconstruct things from scratch and see if I can come up with something a little more definitive. I know this won't replace a doctor's visit, but I don't have the money to run through the gamut of tests.
 
The most prolific symptom is the pain and bloating. These are usually relieved with either burping or gas, although it's only momentary. I can have gas even if I haven't eaten for a day. I don't know if it's in the stomach or intestinal area, but I usually have pain all over, so it's hard to pinpoint. When I was in high school, I remember sometimes suffering for hours during the day because I had such a backlog of gas (I waited until I got home to relieve it). I haven't had much of this problem since then because I am usually alone, although even when I went to college (I take classes online now), I only had classes in 50 minute intervals, so I had time in between. Even now I notice that when I go to social conventions and am unable to relieve myself for hours, I have a buildup of gas.
 
Despite all of the gas, I usually only have a bowel movement two or three times a week. They usually seem to be pretty fine, but it always seems like there's more in there (I could be mistaken though).
 
I used to have really bad nausea in high school, so much so that I had trouble eating my lunch. The clouds have lifted since, but during stressful situations I still find the nausea on the brink of coming back. Over the last year or two I have developed an acute cause of indigestion. It usually starts hours after I've eaten, and it can continue for hours. I burp incessently, and stomach acid starts coming back up. Again, it's worse with stress. I have also always had horrible stomach cramps when I exercise too much (and it doesn't take a whole lot).
 
Throughout most of my life I have had horrible stomach pains when I have digested all of my food. It's hard to describe because it's like no other pain I've felt. I don't even know if pain is the appropriate word. I'd call it emptiness. I only call it pain because it's a horrible feeling.
 
I also have other issues not releated to my digestive area. I have fatigue. Chest pains (as well as pains nearly everywhere else, including acute pain that could strike at any time). Coldness in extremeties. Tingling sensations. Extreme dryness in scalp and face, but oiliness on hands. Skin seems to be sensitive (not so much in touch but...if I try to screw off a pickle jar let's say, it hurts more than it should). Headaches. Brain fog. Difficulty thinking. I also have been gaining weight, but I'm not sure if that's because I'm not active enough or what (but I have not been able to take that weight off, despite my best intentions). I'm still only about 150 pounds, nothing baggy clothes can't hide, but I have a lot of fat around my stomach and sides, and I also have fat around my thighs, a place I didn't think men usually gained fat in. And yet my arms are as skinny as rails. It's like I'm disproportionate. Everything around my midsection has been gaining weight while the outer limits seem to be untouched. And there has been a whole slew of psychological issues.
 
I have lived with this since I was a sophomore in high school. I think I was 15, and I'm 22 now. I have had a colonoscopy. I have also had that area X-rayed. It seems to rule out any ulcers or things of a seedier nature, but I don't know what to think anymore. I wish I could just go to a doctor and have this stuff figured out.

Post Edited (Mgoblue201) : 4/26/2007 3:43:00 AM (GMT-6)


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 4/26/2007 9:16 AM (GMT -7)   
Hi Mgoblue201,
Welcome to HealingWell! :-)
A thyroid condition can cause a lot of your symptoms. Have you seen an Endocrinologist or has any doc tested your TSH levels?
Gas is a big part of IBS, however, it can be a lot of other things too. Have you been tested for GERD? H.Pylori? Bacterial overgrowth? And, Celiac's? Those all cause many of your symptoms. Also, Have you tried any anti-gas medication?
You've come to a great place... I hope you find some tips here.
Co-Moderator for the IBS Forum
 
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Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 4/26/2007 11:02 AM (GMT -7)   
You need an endoscopy to look for acid reflux damage and to biopsy for h.pylori, which causes ulcers (although you can have it without visible ulcers present). Both can cause gas, bloating, nausea, vomiting, and vague pains in the upper parts of your body.

Since ulcers are in soft-tissue, I can't see that a regular X-ray could have detected ulcers. Maybe it can see big, obvious ones, but I wouldn't rely on that being a definitive negative on the ulcer question.

I'd start there, and if you're negative, there are diet changes and things you can do that might help (won't help you, though, if you have the reflux damage or ulcers).

Mgoblue201
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/26/2007 11:53 AM (GMT -7)   
Well, I looked up Hypothyroidism. The thing that caught my attention was change in voice, which I have. Most of the time my voice is abnormally deep and bland. A lot of times this is tied proportionately to how bad I feel, although this also can happen especially when I am forced into the spotlight, for instance when giving a speech in front of people, when talking to a doctor, when talking to an RA in a dorm, etc. Other times I find talking difficult. In other words, things become strained to such a degree that some of my words become garbled and people can't understand me completely. It's almost like my mouth is dry, but it isn't. This is very embarrassing, and I try to avoid saying as few words as possible for this very reason. I don't exactly have the voice of Elvis, but it fluctuates with such rapidity in my own mind that I'm shocked no one else has ever told me about it. Ironically, my throat has a slight pain at this very moment with some pressure, and I do find it harder than normal (albeit not very difficult at all) to swallow.

The only adversity to this is that my heart actually has an increased pulse, for example it tends to accelerate too quickly over the slightest bit of pressure (I believe that might be a symptom of Hyperthyroidism, but I share a lot less in commone with that). As far as I know I have never had increased cholesterol levels or low blood pressure (at least not enough for any cause of concern). My fingernails also have never been brittle. Other than that, most everything fits. But the digestive problems and fatigue/brain fog are easily the two worst parts of this, so I don't know if that fits into this puzzle or not.

I don't even know if I'll be able to go to a doctor and have this checked. I could gamble some of my college funds away (if it's not that expensive), but I've had enough with spending money and having nothing but a dead end to show for it with no job or method to recoup said funds.

I have thought ulcers a lot more lately (although frankly my mind is landing from worst case scenario to worst case scenario since it feels like my body is falling apart). Lately I've been getting this weird...feeling in my stomach, and if I had to guess what an ulcer felt like, that would be it (don't tell me how I know, it's just what my mind clung to when I thought of it). They tried to check for ulcers when I had the colonoscopy. I don't know if that possibility would still be on the table in spite of that test.

Keep in mind that I have had these issues for seven years running with symptoms at times fluctuating. I don't know what diseases or conditions could last that length of time with basically little change except for random symptoms swapping out for another in a tag team. My original symptoms were fatigue (unable to wake up in the morning) and stomach cramps. I'll continue to look into this.

Post Edited (Mgoblue201) : 4/26/2007 1:01:28 PM (GMT-6)


senaid
Regular Member


Date Joined Apr 2007
Total Posts : 67
   Posted 4/26/2007 12:09 PM (GMT -7)   
I cannot stress this enough!  You need to get food allergy testing done!!
 
I had cramping, bloating, gas, horrible pains in my stomache. Diarrhea, etc., etc.  I never thought it might be a food allergy because I feel great eating all foods.  I was tested for 100 different items (among environmental as well).  Food allergies came back that I have an allergy to casein (which is cow milk protein). I was drinking milk everyday.   Now looking back though I remember my worst case came that night I had a sundae with the kids... too much dairy for me.
 
You may have a wheat allergy, or dairy, or .....?  You can do yourself a world of good to get checked!  Just open the phone book under "Allergists" and find one. You'll be glad you did!
 
 
Diagnosed with severe ulcerative proctitis - 2003.
 
Remission until late 2006,  just starting to see improvement due to the following:
 
 
Doing acupuncture.
 
I take Immunplex (multivitamin), Vit E, Fish Oil, Probiotic Eleven, Slippery Elm. Hydrocortisone
 
Just went in for allergy testing... allergic to cow's milk and shellfish (no outward symptoms of this at all).  I'm going to stop cow's milk for 1 month and see if my proctitis goes away. (I usually don't eat shellfish)


Mgoblue201
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/26/2007 12:19 PM (GMT -7)   
Again, I can't really do any tests in my present condition. I'm too sick to really work, which in turn means that I can't get the necessary aid that I need as far as I know. It's a vicious cycle. But a doctor did have me stop eating certain foods once. Even though I didn't stick to this perfectly, I basically stopped eating most food for two weeks, and there were no discernable changes. You can't eat anything when you're on that kind of diet. Anything that was worth eating didn't fill me at all.

senaid
Regular Member


Date Joined Apr 2007
Total Posts : 67
   Posted 4/26/2007 12:37 PM (GMT -7)   
An elimination diet is not fun. And definitely takes the joy of eating away, but if you want an answer you need to start investigating all avenues.  It's easier to throw meds at a problem then giving up the foods we love, but it might be worth it if you start feeling better.
 
If you are going to try an elimination diet you have to be willing to stick with it. Diary one week, wheat the next, etc. See if there is any difference.
Diagnosed with severe ulcerative proctitis - 2003.
 
Remission until late 2006,  just starting to see improvement due to the following:
 
 
Doing acupuncture.
 
I take Immunplex (multivitamin), Vit E, Fish Oil, Probiotic Eleven, Slippery Elm. Hydrocortisone
 
Just went in for allergy testing... allergic to cow's milk and shellfish (no outward symptoms of this at all).  I'm going to stop cow's milk for 1 month and see if my proctitis goes away. (I usually don't eat shellfish)


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 4/26/2007 12:53 PM (GMT -7)   
It is quite possible for a thyroid or hormone problem to go on for 7 years. You really should see an Endocrinologist. Or at least go back to your doc and ask him to do thyroid bloodwork.
Co-Moderator for the IBS Forum
 
Please donate to help HealingWell continue to help us..... www.healingwell.com/donate

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