strange symptoms hoping others have suggestions

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elizabethanne
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/2/2007 12:18 PM (GMT -7)   
I'm new to this forum so forgive any mistakes I may make until I get used to this.  While looking for information about gallbladder disease I came upon this forum.  Last friday I was diagnosed with common bile duct blockage and they ordered a  CT scan for Monday.  After that scan my doctor called to tell me that I was going to have to have my gall bladder out.  That it was diseased.  BEFORE this information, his nurse told me on friday they were going to be looking at a blockage in the PANCREAS.  My symptoms are very painful and hard abdomen.  I'm thin so you can feel how hard the muscles "tissues" or whatever is causing this is.  Right at my belly button and then above there is a long (about 4 inches) swelling that is only on the LEFT side.  I know the gallbladder is on the right.  How can I have this symptom on the left if that's not where the gallbladder is?  Also, has anyone experienced fluid retention that just won't go away?  I've been sent to 4 doctors, first a cardiologist who said it wasn't my heart but that I had full body edema, he sent me to a nephrologist because they wanted my kidneys checked.  They were fine...but that doctor said I had lupus......he sent me to a rheumatoid arthritiis doctor who said he didn't KNOW if I had lupus, but that I needed surgery on my left arm do to DeQuervain's syndrome!!!  I feel like I'm in the twilight zone.  What I'm hoping is someone who has had gallbladder problems has also experienced fluid retention.  Because if this is so......then I want to inform my doctor.
Thank you all for reading this,
Elizabethanne mad

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 5/2/2007 2:16 PM (GMT -7)   
You can get all sorts of weird things happening with gall bladder disease.  I don't know if you do or don't retain fluid as a side effect, but I couldn't rule it out.
 
Here's something I tell everyone: nothing says you can only have one thing wrong with you at once.
 
If they found a blockage in your bile duct, then yes, the gall bladder is going to have to come out.  It's producing stones that are getting stuck and there's no way to stop that short of surgery.
 
As far as I know, you can't have a blockage in your pancreas.  Your nurse may have got her organs confused, or she may have gotten your pancreas diagnosis confused with your gall bladder diagnosis. 
 
I don't know about the left-side swelling.  I can't see how that would be related to the gall bladder.  That may be a pocket of gas; some people get them in places and they never seem to go away.  If you are thin, this would make it feel especially noticeable.  The other thing to have someone look for is a hernia.  I do know that a bad gall bladder will give you gas problems.  I used to get gas stuck in my system and cramp and cramp but never be able to expel it. 
 
My mother had similar circles to have to drive around before they finally conclusively diganosed her with fibromyalgia.  I forget how many things they suggested she MIGHT have before they got there.  I'm afraid there's nothing to do but keep driving around in circles until they build up enough information to tell one way or the other what you have.  That is, to tell what you have in addition to gall bladder problems.  Sounds like you do have something extra going on there. 

Sheree
Regular Member


Date Joined Dec 2006
Total Posts : 37
   Posted 5/2/2007 2:17 PM (GMT -7)   
Elizabethanne
I had my gall bladder removed last October due to pancreatitis. I had it three times in two months. They said it was my gallbladder as I had stones. Sometimes the stone will go through the wrong duct and hit the pancreas. However, my GB was not diseased and there were no actual stones in the pancreas duct. However, I am left with D as that is what happens to a % of people who have their GB removed. This form is really helpful to everyone. As to your fluid retention many of the things you mentioned could cause that as well. I was quite destended and in a lot of pain during those attacks. In the ER 7 times in two months and 3 hospitalizations until they removed the GB. When you are in a GB or pancreatitis attack you GET a distended abdomen. It also appears to be hard. I hope you get diagnosed correctly soon!!!! Take care of the PANCREAS first. They know that by doing a liver panel with a amaylase and lypase. That tells them if you have pancreatitis. Keep us informed....

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 5/2/2007 3:12 PM (GMT -7)   
Hi Elizabethanne,

You got some good information from keriamon and sheree. I just wanted to stop in and Welcome you to Healing Well. :-) We have lots of great members with lots of experience and are willing to help.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


elizabethanne
New Member


Date Joined May 2007
Total Posts : 2
   Posted 5/2/2007 4:11 PM (GMT -7)   
Thank you all.....great information. Are we to put our disorders/diseases here? I see it's after the moderators answer. I will be glad to add this info......it's very long though..includes 7 back surgeries, hysterectomy due to peritonitis, surgery on my aorta, lysis of adhesions, total shoulder repairs (both shoulders) RSD, failed back syndrome. I see a pain specialist and I'm on a lot of medication. That being said, last night about 3 am (I was awake anyway) this pain hit me between the shoulders clear thru to the chest.....I was nauseated but didn't throw up. I never have diarrhea due to the heavy amount of pain meds I'm on. Has anyone had this in regards to gall bladder problems? And is this something necessary to have fixed right away?? I'm so tired of the medical profession.......seriously!!!!!
Thank you,
Elizabethanne

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 5/2/2007 4:58 PM (GMT -7)   
If you click on "Control Panel" on the top left, it will take you to a page where you can modify your profile. There is a place for a signature and you can type in your information there. Once you save, your information will be tagged on all of your posts.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate

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