Post-Infectious IBS

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gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 5/11/2007 6:40 AM (GMT -7)   
Dx in Oct 2003 after illness.  Had gallbladder removed and liver resection due to severe abdominal pain, diarrhea, wgt loss >10lbs in < week as well as vomiting.  Hospitalized several times after that in just a couple of weeks.  still sick didn't know what was wrong.  numerous tests all negative.  finally dx w/severe post-infectious irritable bowel.  i have tried multiple meds - nothing much helps just have to tx the symptoms.  i have chronic abd pain everyday!! have diarrhea that is often watery / mucous in it / and sometimes just pure bile.  if i take anything for it i get severly constipated and get extremely distended.  drs don't know what to do - say i am complicated!!! i have lost numerous jobs from being out-of-work so much and that just adds to stress - which we know doesn't help matters.  i often am incontinent - they say this is due to rectal tear from childbirth and my anal manometry test did reveal i was extremely sensitive as well.  i get so tierd of trying to explain this to other people who do not understand.  this has been going on for 4 years now and i often feel isolated, depressed and alone.  everytime i try to go somewhere especially with friends, i end up sick in the bathroom and in a lot of pain - it is so embarrasing! Does anyone elese have this and feel this way?

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 5/11/2007 7:47 AM (GMT -7)   
Have you tried Welchol (Questran is another option, although it doesn't come as recommended)? Welchol absorbs bile. I take one everyday; that's the only way I can keep from having D all the time from having my gall bladder out. Some people on here have had to take as many as 6 a day; it all depends on how much bile you have. It can constipate you if you take too much, but I am sensitive to imodium (sounds like you are as well), and it can't constipate me nearly as much as an imodium can. If you haven't started doing it already, cut your imodium pill in half and only take one half. Wait 30 minutes. If you are still having D, take the other half, and so on until your D goes away. That's the only way I can keep from imoodium constipating me really bad. Also, I found that Pepto Bismol pills are not as strong and won't constipate me. You might try them as well, although nothing works like the Welchol does, in my experience.

You can also try calcium. Bile is an acid which can irritate the lining of your intestines, causing pain. Calcium not only helps soothe the intestines (they think that may be why people who consume a lot of calcium have a lower chance of developing colon cancer), but it also absorbs water, which aids in making your stools less watery. Welchol is a prescription medication, which your GI should be able to prescribe you, but you can get calcium, of course, over the counter. The brand of choice on here is Caltrate 600 w/ vitamin D; it has the most constipating power (Walgreens sells a generic verions; I'm sure other drug stores do as well).

I have heard that there is physical therapy that you can do to help strengthen the muscles in your lower abdomen that will help with both forms of incontinence; you might ask your gyno for a reference (as s/he is more likely to know about it, since it's part-and-parcel of having a baby). A rectal tear should have healed up in the past 4 years; sounds like you may need some help toning some muscles down there for control. They can get stretched out in childbirth and not want to tighten back up again.

gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 5/11/2007 7:56 AM (GMT -7)   
I got the rectal tear 21 years ago; no problems until this ibs stuff; started colestid which is like welchol and that is when i got so bad and i only took 1 pill - i was severly distended (looked like i was 9 mos pregnant - in ER x 3 and GI and Primary MD numerous x's; took Miralax x 4 doses at one time; Zelnorm 2xday and Amitiza 2 x daily - used enemas nothing worked!!!!! Dr's stumped all of them!!! ? Ileus??? finally fleets phosphorus sodium OTC worked; i am soooooo sensative to everything the slightest change throws me from one extreme to the other; no happy medium has been found in 4 yrs; i get so frustrated and i feel like the doctors think i am crazy!!!!

gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 5/17/2007 4:22 PM (GMT -7)   
keriaman,
I am sorry if i didn't sound grateful for your advice. It was good advice! I have tried colestid, which is similar to welchol according to the docs; however, i was unable to tol it. It caused a big problem for me for months - see above- I'm a little reluctant to try the calcium, because of the constipation effects and distention it could give me with as little as 1 tab. Also I have GERD and the calcium seems to bother it pretty bad.
Lately, I have been very down because of all the pain!!!!! I have lost so many jobs from this, and it has effected my family life so bad, not to mention my friends; (What friends since I got this? You know they get tierd of asking you to go somewhere and hearing I can't, I'm sick time and time again). I mainly go places by myself or with immediate family - because of the pain and embarrassment that I endure most everytime.
I have even been to a pain clinic where the doc basically told me that ibs and fibromyalgia is like saying I have nothing at all, because there is no underlying cause; there is nothing to treat he said. The pain med that I take doesn't work well at all anymore, because I have built up a tolerance to it, and my primary doc doesn't know what he should put me on, because I am so complicated. I have taken numerous anti-depressants and other psych drugs that didn't help - given to me by my gi doc at the time. I take Cymbalta now it and it does help a lot, but I still have the pain and diarrhea alternating w/ constipation.
I have very few food triggers that I have been able to identify. They are red sauces for spaghetti, lasagna, pizza. Onions and broccolli - not a whole lot, but occassionally I can eat these and I am fine, but rarely.
Currently, I do not have health insurance and am not eligible for any gov help. So, I really can't afford to try another pain doc, although I'm not sure I am ready for that anyway given my last experience. I guess I just needed to vent to someone who understands. Please accept my apology if I didn't respond appropriately to your good advice.
I have read many of the forums that you have responded to and you give very good advice; as well as a lot of other people. Thanks again!
p.s. I am very sensitive to immodium. i also can't do fiber. if u have anymore advice i would love to hear from u or others; or even just how u deal w/ day to day life with this awful condition.
severe post-infectious ibs d x 4 yrs alternating now w/ibs c;  gerd; hx of c-diff; some type of myalgia; migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: darvocett, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza & restoril.


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 5/17/2007 4:49 PM (GMT -7)   
Floss, have you tried taking, say, half of an Immodium or half a calcium tablet?  If your body is that sensitive to medication, maybe you simply need to dose it lower and lower until you find that happy medium between diarrhea and constipation. 

gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 5/17/2007 5:50 PM (GMT -7)   
no i haven't tried that, but that is a good idea, thanks sarita
severe post-infectious ibs d x 4 yrs alternating now w/ibs c;  gerd; hx of c-diff; some type of myalgia; migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: darvocett, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza & restoril.


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 5/18/2007 11:09 AM (GMT -7)   
Yes, I can only handle immodium in 1/2 tablets. Pepto Bismol pills, though, aren't as strong and don't constipate me like imodium if I take them for D.

The Welchol can indeed constipate. But I'm bad enough that I need a full pill of it just to be fairly normal, and I also need the calcium. The calcium alone isn't strong enough for me, so maybe it would be just enough for you. It's really hard on people with IBS-A; you're not the only one that has problems taking meds and bouncing back and forth from one to the other.

I can't do fiber either. Naturally occuring in foods, yes, but not in supplements. It makes both my D and my C worse. Figure that one out!
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