Increased Abdominal Pain and Diarrhea w/mucous x 4 wks

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gmaA
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Date Joined May 2007
Total Posts : 117
   Posted 5/29/2007 12:09 PM (GMT -7)   
   mad  I have had this IBS x 4 yrs now.  Back and forth between diarrhea and constipation with bloating for awhile now.  My pain has gotten unreal in my upper abdomen all the time, but when the diarrhea and spasms come on the abd pain is all over.  Then the nausea increases, then I feel like I am just going to die..... I break out into a sweat (all this while in bathroom), and go and go and go...... Then afterwards, I have cold chills and just feel awful.  I haven't been able to eat hardly anything in weeks and I have lost weight about 10 lbs.  I get sick when I eat.  I have only vomitted once or twice, but diarrhea can be up to 13 times a day.
   So today I had my GI visit with my new GI doc.  I did see him once last year and should have stayed there, but lost my insurance, so I didn't.  At that time, I was so constipated and distended that nothing was working to get me going.  Finally, Fleets Phosphorus Sodium by mouth worked. He wanted to do a colonoscopy, but when it came time to do it, I had lost my job due to this IBS flare-up and didn't have any insurance.  So, I didn't go.  (Oh well, now I did).
  So today he gives me an antibiotic - Xifaxan (rifaximin) tabs to take 3 x / day x 10 days.  Then after that I am to start a Probiotic, which he gave me.  He thinks this antibiotic might just help and if this is what it is, then my abd pain and everything should be soooooooo much better he said.
 
  Has anyone elese here been sick for a long time and not had much luck with meds helping? 
some of my meds help, don't get me wrong, but I always, always have this pain.
 
  Has anyone elese tried this antibiotic?
 
  I know a lot of people on here talk about the probiotics and I hope they will help me.
 
Thanks in advance for any information you could share with me.
 
    sad I am so tierd of being sick.
severe post-infectious ibs d x 4 yrs alternating now w/ibs c;  gerd; hx of c-diff; some type of myalgia; migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: darvocett, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza & restoril.


dbab
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   Posted 5/29/2007 12:20 PM (GMT -7)   
Sounds like he's treating you for possible bacteria overgrowth? Hopefully this is the answer that will help you. I haven't taken this antibiotic but I hear its good and it doesn't cause the GI problems that other antibiotics do as its targeted to help the gut, not harm it. It sounds like you are miserable, and I hope this will get you better so you can get a better quality of life back. Please let us know how it works for you.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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Keriamon
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   Posted 5/29/2007 3:57 PM (GMT -7)   
Yes, it does sound like he's trying to treat bacterial overgrowth. If you feel better after being on the antibiotics a few days, that's a pretty good sign that that's what your problem is. If your problems come back afterwards, though, go straight back to the doctor and get him to put you on another round. I've heard that it can be very hard to get rid of that stuff; someone on here said that she had heard that certain bad bacterias can take up to 6 months on antibiotics to get rid of. The thing is, I don't know of any other bowel problems can be helped by the antibiotics, so if they help, that's the clue; just keep plugging away at them and the probiotics.

A lady I used to work with said that, on occasion, she got what she called phantom gall bladder attacks, just as if she still had one. But hers were only once a year or so; your "phantom gall bladder" shouldn't act up so frequently. If you had stones, they might check to make sure that there wasn't a stone left lodged in the bile duct. Rare for them to miss that when taking it out, but it can happen. But, given that you have had infectious diarrhea before, this is most likely a bacteria problem; as Sarita can tell you, those infectious bowel diseases can mess you up long term (or even forever). Antibitoics have helped her a lot in the past, although she's never gotten everything all cleared up and has to have a round of them every now and again.

gmaA
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Date Joined May 2007
Total Posts : 117
   Posted 5/29/2007 6:49 PM (GMT -7)   
Thank you dbab and Kerimon for this information. I am miserable dbab, and I have been for some time and yes, my quality of life is not good right now. I have not been able to work or do many social things due to this pain all the time and the diarrhea associated with it. Thank you for your support, I needed it today.

This is the best plan of care I have had in a long, long time and I really am hoping it works. I also got
C-diff after the original illness, ( well actually that was part of the problem in the beginning & I was on IV flagyl, for it prophalactily , and they did a stool specimen, but it was negative, and I guess the first round of Flagyl just didn't get it. Later I tested positive for it and was treated again. As you both probably know it is often missed - they usually do 4 samples on different days for it).

Kerimon I didn't have stones, but I have never heard of phantom gall bladder attacks before, I know of phantom limb pain after amputation and they last for a long time, maybe even forever, I'm not quite sure of that, but that sounds very logical, because the pain has always been in the same place - upper abdomen and epigastric area. Mainly on my right side though and the other night when I was in the ER, it was radiating all the way through to my back and I thought gosh, my GB is already out - how weird.

I looked up the antibiotic on the internet and it said they use it to treat bacterial infections mainly caused by e-coli and travelers diarrhea. I will call the doctor if I don't improve with it.

Thanks again dbad and kerimon I really needed to talk today - thanks again for the much needed support.
severe post-infectious ibs d x 4 yrs alternating now w/ibs c;  gerd; hx of c-diff; some type of myalgia; migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: darvocett, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza & restoril.


kim123
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   Posted 5/29/2007 7:14 PM (GMT -7)   

Just from reading your signature, sounds like you could have a fungal problem. Fungus has been known to be a cause for GERD, migraines, depression, IBS, IBD,arthritis, FM...Have you ever thought of trying an antifungal program to see if your symptoms get better. A doctor won't usually recommend this as they just don't study that much about fungus (mycology) in medical school. You sound like I did when  I was diagnosed with UC about 11 years ago. Lots of symptoms with no diagnoses for 2 years until it finally showed up as UC on a scope. Took an antifungal program to get me well again, with symptoms just like yours. I highly recommend an antifungal diet, and if you see relief in as little as a few days, you know the cause...Email me if you like. By the way, antibiotics are mycotoxins(fungal poisons). They will probably aggravate your problem, if it is not a bacterial issue. Keep taking the probiotics! If not well in a reasonable amount of time, I would look into the fungal link. Take care.

Kim :)


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 5/29/2007 7:35 PM (GMT -7)   
Thanks for the information, WOW - I did have to take something, can't remember for thrush as it was sooooo bad from all the antibiotics. What is an antifungal diet - ? yogurt?. Also, I am not supose to start the probiotics until I finish the antibiotic, and like I stated earlier that is for 10 days.
Also, I haven't been scoped since 10/2003, but I feel like he is going to do that if this doesn't work, because he was questioning this and the scrambled egg test - which I also had in 2003. Last visit he questioned if when the doc did the colonoscopy if he biopsied areas and I am not sure, so it is probably around the corner.
I have never had rectal bleeding though and last time I was scoped all they saw was gastritis and GERD, but I was really sick and had been vomiting a lot. I thought with UC and Chron's you have rectal bleeding.

Please let me know what an antifungal program is if you will - I am curious about it.
severe post-infectious ibs d x 4 yrs alternating now w/ibs c;  gerd; hx of c-diff; some type of myalgia; migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: darvocett, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza & restoril.


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 5/29/2007 7:44 PM (GMT -7)   
In bacteria overgrowth, it is common for the doc to prescribe antibiotics and then after have you start taking probiotics for prolonged and continuous treatment. Unfortunately, small bacteria overgrowth is very difficult to get rid of completely and lots of people can continue to get it over and over again so the probiotics are believed to keep it at bay since the good bacteria beat out the bad ones.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 5/29/2007 7:50 PM (GMT -7)   
Did he do any tests to determine what was wrong to prescribe you antibiotics or is he just testing it to see if it gets better with the treatment?
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 5/29/2007 9:16 PM (GMT -7)   
He is just testing it to see if it gets better; He talked about some tests, but he thought we would try this first; he said if it is this, my abd pain should get much better quickly. I really hope this works, but I can't get my hopes up because I have had them up soooo many times, only to be disappointed, but I am trying to have a positive outlook.
I know IBS can be bad, but most people I talk to don't seem to have it like I do, but they do say it is severe; however, I have often wondered if something was missed and it is something elese. I just don't know what to think anymore.
I have had so many test in the past, and always negative, but then again, everything I have ever had has never, ever shown up on any test. They found my endometriosis, and all of the following only by doing surgery......lysis of adhesions, polyps in uterus, ovarian cysts, torqued ovary, liver tumor (adenoma), bad gallbladder, everything by basically exploratory surgery. all the female stuff didn't show on ct scans, ultrasounds, including vaginal ones, gallbladder looked ok until they got in; the only thing was the hidascan caused pain during part of the test, but the numbers weren't bad. Go figure like I said , I am complicated so they say. Guess I am.
I really think I may have scar tissue (adhesions on my intestines for one) and I don't know, maybe even a partial blockage AEB: have all this diarrhea and am still full of stool; could be going around it, but the x-rays don't show one, but then they might not would with me. And I weigh 148 lbs and 5'6 1/2 " tall; when all this started, I was only 126 lbs. I just don't understand.
This doctor seems to care though and I really hope he helps me get to the bottom of it once and for all.
I could live with it if it were better under control, I think, but I change so often, I can't even keep up with it.
I have tried to keep journals and it is just a mess - also, they don't seem to want to look at them when I take them in. I know it is time consuming for them.
I must say he did stool samples last year for the one time I saw him for pancreatitis and lab work; he told me pancreatitis was easy to miss sometimes.. But it was ok and my lipase and amalyse were ok Monday last week.
I have taken the ABT 2 times today and so far no side effects and no changes - of course it is too early to see changes I know, but no side effects is great!
I don't go back until August, but I can always call if not better, or if I get worse.
Anymore thoughts I would love to hear from u
Thanks!
severe post-infectious ibs d x 4 yrs alternating now w/ibs c;  gerd; hx of c-diff; some type of myalgia; migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: darvocett, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza & restoril.


kim123
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Date Joined Jul 2006
Total Posts : 1201
   Posted 5/30/2007 6:59 AM (GMT -7)   

Hey floss, I just emailed you with the antifungal info. Let me know if you get it.

Kim :)


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 6/14/2007 10:36 PM (GMT -7)   
Just an update to above; the antibiotics did not seem to help at all; and at this point I still haven't started the probiotics. the reason is because my primary physician gave me new pain med fentanyl patches and oxycodone for breakthru pain. In addition, I have gotten bronchitis with fever and chills. And the antibiotics gave me thrush (yeast infection). My body is so sensitive to medication changes, that I wanted to wait awhile longer before i started anything elese new.
severe post-infectious ibs d x 4 yrs alternating now w/ibs c; gerd; hx of c-diff; arthromyalgia; (probably fibromyalgia - ruling out RA), migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: fentanly patches, oxycodone, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza, restoril & atarax


Canyonbabe711
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Date Joined Mar 2006
Total Posts : 1451
   Posted 6/14/2007 10:52 PM (GMT -7)   
I would take the probiotics. They are not medicine and may very well do the trick in getting your stomach in balance. You are taking so many meds that it is no wonder your stomach is a mess. I don't know how you function with so many meds that make most people goofy.. I really can understand why your stomach is in a tizzy. I hope they find an answer soon. Perhaps a endo and a colonscopy are both in order.

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 6/15/2007 8:59 AM (GMT -7)   
Floss, Canyon is right. Taking the probiotics can only help you at this point. Along with getting your stomach back in balance it takes care of the yeast overgrowth too. Your thrush will go away quicker. If I were you I would take at least twice the recommended daily dose of probiotics... it can't hurt you, the worse it will do is give you gas.
Good luck! Hope you start feeling better soon.


Co-Moderator for the IBS Forum
 
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gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 6/15/2007 11:01 AM (GMT -7)   
Thanks for the advice. I will start the probiotics.
severe post-infectious ibs d x 4 yrs alternating now w/ibs c; gerd; hx of c-diff; arthromyalgia; (probably fibromyalgia - ruling out RA), migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: fentanly patches, oxycodone, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza, restoril & atarax


7Lil
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Date Joined Apr 2005
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   Posted 6/15/2007 1:35 PM (GMT -7)   
Let is know how it works. You could start feeling better in as little as a few days.
Co-Moderator for the IBS Forum
 
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gmaA
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Date Joined May 2007
Total Posts : 117
   Posted 6/15/2007 10:58 PM (GMT -7)   
Just wanted to say a little something here; I do take a lot of meds; most of them are " as needed " I have pain everyday and have had x 4 yrs from this IBS; I have tried lots of different kinds with no help from them. Before I started taking these meds my IBS pain and other stuff was 10 times worse and was hospitalized so many times it ain't even funny. I have seen numerous docs in the past and they all say the same thing. My pain is better than 4 yrs ago with the meds I take now, but it is still debilitating to say the least. I would love to not take meds, but I have to and they help, so I take them. Also, from being in the hospital so much and numerous ER visits I now have a very high tolerance to meds and that is how I function, well try to function, on what I am taking. I also have horrible veins as well due to the illness, and I use to have great veins. I hope the probiotics will help me and thanks for the advice; just wanted you to know why I have to take so many meds.
severe post-infectious ibs d x 4 yrs alternating now w/ibs c; gerd; hx of c-diff; arthromyalgia; (probably fibromyalgia - ruling out RA), migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: fentanly patches, oxycodone, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza, restoril & atarax


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/15/2007 11:20 PM (GMT -7)   
floss, I can truly understand. I take a lot of meds also but I don't know if I could function on a day to day basis without them, most of them are "as needed" as well but when the pain gets unbearable and I need to make a living by going to work, I really have no choice. Just know that some of us can understand your meds situation.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 6/16/2007 6:33 PM (GMT -7)   
Thank you soooo much dbab, you don't know what that means to me. I really appreciate your response and I am sorry you have to deal with chronic pain too. Thanks again.

Anne
severe post-infectious ibs d x 4 yrs alternating now w/ibs c; gerd; hx of c-diff; arthromyalgia; (probably fibromyalgia - ruling out RA), migraines, anxiety, depression, ptsd; endometriosis; gallbladder removed; liver adenoma removed; multiple hospitilizations for abd pain; hysterectomy + adhesion removal;  meds: fentanly patches, oxycodone, cymbalta, mobic, vivelle patch, as needed= xanax, clonopin, maxalt, phenergan, levosin, amitiza, restoril & atarax


Canyonbabe711
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Date Joined Mar 2006
Total Posts : 1451
   Posted 6/16/2007 10:08 PM (GMT -7)   
I didn't mean you shouldn't take them, it was just that so many can make you woozy. If I take one Phenergan I have to go to bed as it knocks me out. I know our bodies get used to meds so have to constantly change them to find the best combo.
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