TERRIFIED, ABSOLUTELY TERRIFIED

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LitDoc
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Date Joined Jun 2007
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   Posted 6/6/2007 11:36 AM (GMT -7)   
 
Help! I'm having a baseline colonoscopy day after tomorrow, and I'm currently contemplating going into the witness protection program where nobody can track me down and insert long foreign objects into my most intimate regions. I have to drink something calle Nulytely, have had a negative reaction to Demerol (one of the drugs they routinely use), and don't trust the doctor. I don't trust doctors in general (and with good reason), but I trust this one less than most others.
 
The doctor I don't trust told me he'll give me Versed, which -- as I understand it -- is merely something that will merely make me forget that I spent an hour screaming in agony as the doctor I don't trust inserted the above-mentioned long foreign object into my intimate regions. He's not planning on knocking me out, and will most probably not use Demerol since it made my blood pressure plummet the one time I had it post-laparotomy one year ago. I also understand from reading various postings that anyone who's had previous abdominal surgery (like my laparotomy for an ovarian cyst) is at increased risk for performation during a colonoscopy.
 
What can I do other than flee the country or assume another identity and move to a different city?
 
Thanks,
LitDoc in Laredo

dbab
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   Posted 6/6/2007 11:45 AM (GMT -7)   
Hi LitDoc, Welcome to Healing Well :-)

Well you can always refuse the colonoscopy however I would suggest against that. We have all been scared about our first colonoscopies only to look back later and say wow, I worked myself up from that??? It really isn't that bad at all. There are some countries that will do a colonoscopy if you are awake, now that gives me the shudders. The worse part is the prep. Most likely you won't be screaming, the Versed has a calming effect as well as being an "amnesia" type drug. I kept asking my doc after I came out of it if he put me to sleep. He said "No" but you will swear you were because you don't remember anything. Don't be too nervous, I'm sure many will come here and put your fears at ease. I'm glad you found us!!

Take Care
"Des"
Co-Moderator ~ IBS Forum
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Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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7Lil
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   Posted 6/6/2007 11:48 AM (GMT -7)   
Hi LitDoc,
Welcome to HealingWell! :-)
I understand your nervousness and hesitation... it is totally normal. BUT, if your doc is suggesting the scope then it is most likely well needed and justified. Have you never had one before? It's really not that bad. The worst part is the prep (drinking the crud). For the procedure I wasn't completely knocked out, I was in a state of twilight. Some people even watch the screen while the doc pokes around in there. Anyway, my point is that as long as your doc knows your history of complications with meds and past surgeries, you should be fine. You might even be able to tell your doc how nervous you are and maybe you'll get more sedative.
So are you starting the prep tomorrow? Make sure to drink plenty of liquids and stay away from any red food (no red or orange jello either).
I've never tried Nulytely.... GOOD LUCK!
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Sarita
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   Posted 6/6/2007 12:13 PM (GMT -7)   
I'll be the third to say it'll be OKAY!  I've had three of these things and was totally fine throughout each one.  I remember being in la-la land but do distinctly remember watching the screen at some points and even talking to the doctors at other points.  No discomfort whatsoever.  The worst part, as Lil said, is the prep.  You will be fine - millions of people have gone through it!

nanny70
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Date Joined Jun 2007
Total Posts : 6
   Posted 6/6/2007 12:59 PM (GMT -7)   
I will also say that it isn't that bad. I had my first on May 22. The biggest fear was the waiting part. Once you get back there you go loopy and then, next thing you know you are in recovery and everybody's talking to you like it's ok.....haha. Don't get far from the restroom, and it is possible to wake up the day of your scheduled procedure still needing to go, but I promise, it isn't as bad as people make it out to be. I am 36, and after it was done, actually didn't feel like I was violated....hope that helps.

kydiver
Regular Member


Date Joined Jan 2007
Total Posts : 34
   Posted 6/6/2007 1:14 PM (GMT -7)   
there is nothing to them really, have had three in the past 4 months, you go in room, they putt white stuff in IV, blink, and you wake up droggy...

No pain at all!!!
 
I actually asked my wife why was she in the operating room, lol in recovery... It was that fast

SnowyLynne
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   Posted 6/6/2007 1:19 PM (GMT -7)   
You will be asleep during the procedure,then you can go to breakfast somewhere.
SnowyLynne


dbab
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Date Joined Jan 2004
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   Posted 6/6/2007 1:21 PM (GMT -7)   
Be cautious however if you do have breakfast somewhere because at least for me, the laxative effect didn't wear off by then. I was lucky I was home when I ate after my scope because I was shortly headed for the restroom. :-)
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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LitDoc
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Date Joined Jun 2007
Total Posts : 9
   Posted 6/6/2007 2:46 PM (GMT -7)   
 
 
Thanks so much to all for your responses -- I didn't think anyone would bother to answer such a common, ordinary posting. I'm still scared, but reassured by your promise that I'll be pretty much out.
 
I guess what really terrifies me is that the Versed (the following is a bad joke, so my apologies) is the post-torture drug of choice at Guantanamo Bay. They give it to you to make you forget how horribly you suffered so you don't complain to the World Court or the Board of Administrators of the hospital (depending upon your category -- POW or colonoscopy victim).
 
Is it actually true that one doesn't feel a great deal of pain? Some of you do remember parts of the procedure? See, THAT for me is very reassuring because, if you remember parts of the procedure, you'd also remember the pain if there had been any.
 
One last question, please. You mention breakfast, but what about wine that evening? We're going to a party (at least I hope we'll go to the party if I survive the colonoscopy), and I wonder if I'm condemned to an evening of Diet Coke. Maybe I should bring any leftover Nulytely? :-)
 
Thanks again,
Your Sister in invasive procedures hell.

7Lil
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Date Joined Apr 2005
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   Posted 6/6/2007 3:05 PM (GMT -7)   
Hi Lit,

I do remember waking up once or twice from pain. However, it was minor and brief and didn't scar me one bit. The doc has to pump air into you to expand the intestine so s/he can get a better look. That is a bit uncomfortable but not terrible. Sometimes too it can get difficult to round a curve in your intestine... I remember waking up with my doc pressing against my abdomen trying to help guide the scope. Again, no big deal. You will be so out of it that it probably won't phase you.

I was the opposite of Des... After I pooped all I could poop from the prep (before the scope), I did not go again for 5 days. Definitely not after breakfast. I suggest, however, that you do not risk it. I would take breakfast to go and also NOT go out that night. Your doc will give you special instructions on how to take care of yourself for the following couple days. I believe alcohol would be on the "avoid" list. I, personally, think you shouldn't go out at all.

I'm sure others will be along soon with their opinion.
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Keriamon
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Date Joined Jun 2005
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   Posted 6/6/2007 4:02 PM (GMT -7)   
They gave me so much of that stuff (or I was just sensitive to it), that I not only was "asleep" (it seemed to me that I was asleep) for the entire procedure, but they had a hard time getting me awake enough to leave the hospital. My mother had to dress me because I kept falling back asleep. I ate breakfast while mostly asleep, lol. When I got home, I slept for about 8 hours, woke up for a few hours, then went to bed for the night. I'm told that's not a typical reaction, but boy, I sure didn't know anything that was going on. The worst of it was the IV. I don't like needles anyways and the nurse who did it was young and really, really bad. I've never had anyone bad before or since, so that's a small chance. I couldn't have gone out anywhere because of all the sleepiness. But some people are really awake afterwards and could drive themselves home if their doctors would let them. Your bumhole will be sore, though, I will tell you that! Not from the scope; from all the pooping you do beforehand. That alone may make you feel anti-social.

I do agree that wine is a no-no. One, that's usually bad for people with IBS anyways, but on an empty gut, I think it would be particularly havoc-reeking. I'd stay away from cokes too, since caffiene also bothers a lot of people, and, again, this is on an empty gut, which will probably react more harshly to things that you normally can tolerate okay.

LitDoc
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Date Joined Jun 2007
Total Posts : 9
   Posted 6/6/2007 6:16 PM (GMT -7)   
Thanks again for the great advice. I will take it and not go to the party or have any wine or coke to drink that day. I do want to point out, however, that not everyone prescribed the dread colonoscopy has IBS (mine is simply a baseline procedure done because of my age), and that some people might be more accustomed to caffeine than others.

Again, however, I thank everyone for their great and very reassuring input. I am so much more confident now than I was earlier today. In fact, I'm going to refrain from sending the following, tentative, headline to my local newspaper:

COLONOSCOPY GOES HORRIBLY WRONG

Laredo woman dies as probe sucks out her liver (story on p. 4).

Thanks again; I'll post when it's over and done with.
LitDoc

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 6/6/2007 8:05 PM (GMT -7)   

LOL  Hey Lit, nice to see you're keeping your humor through all this.  Sometimes that's all we have to keep from going crazy.  tongue


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Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 6/7/2007 9:03 AM (GMT -7)   
Actually, colas and wine both are so acidic, they're not the best thing for anyone to put on an empty stomach or gut, even if they don't have IBS. Of course, they won't bother normal people as bad as someone with IBS, but who needs to spend the night up with acid reflux or more diarrhea?

LitDoc
New Member


Date Joined Jun 2007
Total Posts : 9
   Posted 6/8/2007 12:18 PM (GMT -7)   
Hi All,
I'm back from the colonoscopy and (pinching own arm) apparently still alive.

The only thing that hurt was when they pumped in the air, or when the nurses had to press their fists into my stomach so the doctor could push the probe around some curve in the intestine.

It wasn't nearly as bad as I had feared, even though I was not only awake throughout the procedure, but also remember ever detail of what happened in the the OR! First of all, the prep didn't work as well as it should have because, as it turns out, I have diverticulosis, and then they did find three polyps that have been sent to path for evaluation.

I know they gave me versed and also benadryl to relax me, but no demerol since I don't tolerate it well. Maybe that slight change in protocol is what makes the difference between being awake and remembering or being asleep and unaware. No matter - it's over and now I don't need another for five years!

Again, thanks to all who generously gave of their time, experience, and advice. It's nice to know people care -- even about strangers.

LitDoc

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/8/2007 12:23 PM (GMT -7)   
Hi LitDoc,

So glad you made it through :-) What did you think about the prep? Not very pleasant huh? Well your scope sounds like how mine usually go. Diverticulosis and polyps. The best prevention for colon cancer is colonoscopies!! I'm glad that even though you were awake and remember everything that you can still say it wasn't that bad. Good for you, now the next one will be a breeze :-)

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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LitDoc
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Date Joined Jun 2007
Total Posts : 9
   Posted 6/8/2007 12:43 PM (GMT -7)   
 
 
Hi Moddie (short for Moderator),
 
Actually, the prep in and of itself was not so bad. The stuff wasn't fine Bordeaux, but it was bearable. I also had no trouble chugging a glass every ten minutes over a three-hour period -- the only problem was having to put the phone down at regular intervals, LOL. The ONE horrible thing was the burning behind, so to speak. After the first hour, I felt like I'd been sitting (not walking) on hot coals! Even today I'm still a bit tender.
 
One thing I didn't mention is that the prep nurse -- the one who took my stats and inserted the catheter -- told me she'd "suffered horribly" having her own colonoscopy a few months ago. When she started going into great detail ("and then I screamed and tried to get off the gurney"), I sternly told her she was supposed to be reassuring -- not scaring -- me. That made her stop.
 
Actually, for everyone out there who may still need to go through his/her own colonoscopy, let me reassure you: Not only was I not asleep and do remember every second of the procedure, nobody, but NOBODY, could have been more frightened than me. Even so, it turned out to be no big deal, nothing that an average, ordinary person can't deal with easily. 
 
Thanks again for all the advice and reassurance -- you people were wonderful.
LitDoc

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 6/8/2007 1:24 PM (GMT -7)   
Hey LitDoc,
Glad everything went OK and you didn't get frightened to death. Nice prep nurse though, geez!! What's up with the catheter? I didn't have one.   confused    Who has enough unrine in them anyway? After practically peeing out the other hole the entire night before there was nothing left (poop OR pee wise).
Anyway, what did the doc say? Everything look good?


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LitDoc
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Date Joined Jun 2007
Total Posts : 9
   Posted 6/8/2007 2:12 PM (GMT -7)   
Hey, Co-Moddie,
By catheter, I meant the one in my vein through which they pumped the Versed and Benadryl (no Demerol -- makes my blood pressure plummet).

Yes, doc found and removed three tiny polyps, and also commented on the fact that I've apparently got diverticulitis. Never knew that, although I should have suspected since both my parents have it.

He asked me if I "use alcohol" to which I truthfully replied "yes." I'm French, so of course I drink wine with my meals daily, and also have an occasional cocktail. He didn't comment, but now I'm worried he pictures me going to class with a bottle in a brown paper bag, LOL.

thanks again,
LitDoc

CathyA
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Date Joined Mar 2005
Total Posts : 1431
   Posted 6/8/2007 5:24 PM (GMT -7)   
I'm glad its over for you.
I find it amazing that you were awake. I was totally out. Is it common to be awake for these??

LitDoc
New Member


Date Joined Jun 2007
Total Posts : 9
   Posted 6/8/2007 6:45 PM (GMT -7)   
I really don't know. The doctor seemed a bit nonplussed, I'll give you that.

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 6/8/2007 8:06 PM (GMT -7)   
Wow, I would be uneasy if a doc seemed a bit nonplussed while doing a procedure on me. Maybe its not normal than for him. Probably because of your allergies, they didn't want to risk it with you.

Cathy, I know that some countries are different, but here in the US it is more common to have you at least tranquilized for this unless of course if they are doing an emergency colonoscopy.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


LitDoc
New Member


Date Joined Jun 2007
Total Posts : 9
   Posted 6/9/2007 5:58 AM (GMT -7)   
 
 
Dear All,
I do think the reason I was awake and aware is because of my allergies. I have no doubt I'd have been knocked out had I been able to tolerate the Demerol. On the other hand, I also think different people react differently to meds -- I need more dental anesthetic than many people in order not to feel pain, for example.
 
However, I don't want to give the impression I wasn't tranquilized -- I was very relaxed and somewhat goofy (I told the doc I was grateful the procedure wasn't the beginning of a long-term relationship between him and me). When I say he seemed nonplussed, I mean he appeared a bit puzzled as to why I was so lucid, and also able to remember the entire colonoscopy afterwards.
 
The bottom line (If I may allow myself a bad joke) is that it was not a bad experience, I think my doctor did a good job, and when I have to have my next colonoscopy, I won't be frightened at all.
 
Thanks to all again!
LitDoc
PS: I'm French, but live and work in the USA. The procedure was done in TX.

urconsciencespeaking
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Date Joined Jun 2007
Total Posts : 3
   Posted 6/10/2007 7:40 PM (GMT -7)   
For some reason when I had my first 'scopy in 1988 they gave me nothing. Yes it was bad, like the worst moment of the worst stomach illness I've ever had. Was a five on the scale of 10 of things I've been thru, yet certainly something to be avoided.

(For some reason, in Austin TX, I've had experiences with doctors no 50 people should have including losing my wife to med mal and then a doctor deliberately doing surgery I did not need [rather than surgery I needed] ... botching it ... and I woke up in it because I realized they were doing the wrong surgery somehow).

SnowyLynne
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Date Joined Apr 2004
Total Posts : 1539
   Posted 6/11/2007 3:11 AM (GMT -7)   
They used a light sedative for me,never felt a thing,farted like a bay mule after though,lol.
SnowyLynne

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