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CathyA
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Date Joined Mar 2005
Total Posts : 1431
   Posted 7/3/2007 6:53 AM (GMT -7)   
Hi all,
   Do you ever go through spells of having a really dry mouth?  I'm not on meds, so its not a side-effect from some med.  I just go through spells of having incredibly dry sinuses and mouth.  The dryness is causing eustachian tube problems.  The only thing I can think of is my hormone fluctuations, but I haven't had a period in 3 years, so I'm  not positive that's the case.
   I was doing great with having plenty of saliva for about 6 months, and then all of a sudden I dried up like a prune.  Now my one eustachian tube won't open.   My new ENT gave me some pills for dry mouth, but I don't really want to start them (since headache is the biggest side-effect and I have too many of them all ready).
  He also recommended some "ponaris" drops for the nose.  I spent $18 on them and they are AWFUL!!  They are pine and peppermint oil.  YUK!
   I'm thinking that our mouths (and sinuses) are just a continuation of our guts.  My gut is behaving itself, so I'm not sure what's going on here.
   Anyone else??

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 7/3/2007 7:18 AM (GMT -7)   
Hi Cathy,

There can be many causes of dry mouth. Did your ENT suggest getting tested for Sjogren's? Sjogren's is an autoimmune disease that attacks the lacrimal and salivary glands and causes dry eyes and/or dry mouth on top of other symptoms maily joint pain and fatigue. The med that ENT wants you to take, is it Evoxac or Salagen? These can cause side effects however sometimes the benefits outweigh.

For dry mouth, its good to keep sugar-free candies to suck on, lemon drops stimulate the salivary glands to produce more saliva. There are OTC mouth sprays that are good, Oasis makes a good one. Have water on hand at all times but take sips as needed instead of drinking a lot as you will be in the bathroom constantly. For dry sinuses, good ol' Ocean Spray I find works really good and you can keep the inside moist with Vaseline.

Hope this helps a little.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


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CathyA
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Date Joined Mar 2005
Total Posts : 1431
   Posted 7/3/2007 1:08 PM (GMT -7)   
Thanks Des,
I was tested about 10 years ago for Sjogrens and it was negative. All the dryness went away when I quit taking my beta blocker in December, and so I thought it was that. But then it started up again about 2 weeks ago. My skin is also incredibly dry. Usually its only this dry in winter, but now its all year long.
I use a homemade nasal spray all the time (can't stand the taste of the preservatives). Yes, the med is Evoxac.
I asked him about why my salivary glands by my ears get sore and he said that when our mouths are dry, they have to work harder and suggested applying heat, and massaging them, and chewing on lemons. OUCH!! I couldn't possibly do that! I hate tart stuff. Sometimes it makes my salivary glands hurt really bad.......but probably something like the lemondrops would be a better option.
I seem to get a package deal of symptoms......and this dry mouth is part of it. I just have no idea what initiates it.
Thanks for all your info and suggestions! :)

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 7/3/2007 1:22 PM (GMT -7)   
What tests did they do for Sjogren's? The reason I ask is because Sjogren's can take years to finally get a diagnosis kind of like Lupus. There are some antibodies that are specific to Sjogren's however not all patients have them. They say that the hallmark diagnostic criteria for it is a lip biopsy but "no thank you!!" lol I just thought of Sjogren's when you said that your glands hurt along with the dryness which is classic for it. Some people with Sjogren's salivary glands swell as well making them look like they have the mumps and sometimes they get stones which I hear is dreadfully painful OWWWWYYY!!!
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 7/3/2007 4:31 PM (GMT -7)   
Hi Des,
In 1997 or 98 when I had 2 sinus surgeries, I also had a lump behind my lower lip that the doc said was a blockage in my salivary ductwork. When he took that out, he also tested for Sjogrens. I have always regretted having any surgery on that lip area because even to this day it is tingly or numb.
I suppose an important thing to mention is that I had Radium treatments to my sinuses when I was 8. I'm wondering if that dried everything up. (Thanks Mom). She thought I had some sort of ear/sinus problem and heard about these treatments.
The ENT yesterday said that it seems the worse part of people having radium treatments is that it makes alot of scar tissue. (not to mention cancers).
I think my problem is something like inappropriate sympathetic stimulation. But it seems like none of the docs ever want to look very far figuring me out. I must look like a hypochondriac to them or something. :(

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 7/3/2007 5:29 PM (GMT -7)   
Where do you live?  In an arid climate, by any chance?  How many times do you urinate during the day?  Could be some dehydration making things worse for you...

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 7/3/2007 5:39 PM (GMT -7)   
Hi Sarita,
I live in the midwest.........but I pee about 12-15 times a day. Its a combo of having fibro and also from having 2 kids!
What's weird is I can drink all day long, and it doesn't seem to go into my cells. Of course it must, but the fact that my mouth is still so dry gives the illusion that its not getting in.
Its just so darned weird. When I first developed fibro 12 years ago, after having the flu, pneumonia and ear infections, I had all these same symptoms. Something happens to me....maybe in my neuro system, and life turns to poop. I came out of it before, so hopefully I will again. My legs and scalp have started buzzing again. I had a big neuro workup when this happened before, and everything was negative. I'll increase my B vitamins and just wait it out I guess.

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 7/3/2007 6:59 PM (GMT -7)   

Wow, that's an impressive amount of pee!

I'm sorry things are so poopy (literally, figuratively, whatever!).  That's really odd about your dry mouth.  I will have to research it.


Co-moderator - IBS Forum


Canyonbabe711
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Date Joined Mar 2006
Total Posts : 1451
   Posted 7/3/2007 10:15 PM (GMT -7)   
He is right about the heat and massaging salivary glands. Radiation will dry out salivary glands. It is really important to keep that saliva going as it will affect your teeth greatly so the if you can tolerate the sugar free hard candy go for it. Some people can't. I can the Sweet and Low hard candy except the creme savers which cramp me up immediately. The fruit ones don't. I have to disagree about the Vicks in the nose. It is really not recommended as it can damage the membranes and inhaling it that way could cause a type of pneumonia from the petroleum base. You can put it under your nose or on your neck if it helps but no in the nose.

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 7/4/2007 6:50 AM (GMT -7)   
Thanks Sarita and Canyonbabe,
Its not Vicks, but I'm sure it does the same thing. Its supposed to moisturize, since it has oils in it.......but I was wondering about oil and the lungs too. What a drag.........$18 shot. I imagine it might be good for "normal" people who have really stuffy noses.
With all this peeing I wondered about diabetes insipidus, but my electrolytes would be totally out of whack if that was the case.
Thanks for that info about the salivary glands canyonbabe. Cramping glands is no fun! In fact, just reading your post made mine twinge a little, and made some saliva! hahaha Maybe I just have to READ about tart things, and it will help! hahaha
I've always wondered what those radium treatments really did to me........or maybe my sinuses, etc. were always a bit funky and that's why my mom thought I needed the treatments?
I suppose this is part of the classic "fibro flare". Its just amazing though to see it happen (and crappy!). It affects my entire body, and I have no idea what's causing it or what to do about it. Then it leaves just as quickly.
Like I've said before, I have a theory about my sympathetic system being on overdrive, and when I'm done having all these tests, I'm going to try the Toprol again. If my symptoms subside......then my theory will be right. But..........gosh I hate the side-effects of the Toprol.........I become totally stupid, am hungry 24/7. Its going to be a toss-up which symptoms to choose!

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 7/4/2007 2:17 PM (GMT -7)   
Cathy, I have a friend that had radiation on his neck and it affected his salivary glands. He was advised to carry water with a little baking soda in it, just a little to keep his mouth rid of bacteria and moist. Course being a man he carries a Lavoris bottle in the car. At night he was told to use a water pik to irrigate his gums and clean out bacteria because of the lack of saliva and then not eat after that, of course. He feels this has saved his teeth and gums.

Even the Vicks people say not to put in nose because of the mucous membranes being irritated. I don't know about the one you use. I know I would really be in bad shape with the pine oil as Iam very allergic to pine. I have used a sinus rinse by Neilmed but that is usually for postnasal drip. It works really well. Have you just used anything like AYR gel in your nose. Many people on oxygen have to use it as O2 really drys out your nose and sinuses till they bleed. Most stores have it and it does feel really good and has no petroleum or oil in it. Worth a try.

Having to pee so much does sound like something in your system keeps drying you out but I haven't a clue. Have you cut down on salt intake? I have to pee a lot a couple days after I eat salty stuff but mine is usually from 3AM to 6AM sometimes I got up to 8 times. Good luck
 
Oh, by the way I, too, have the same feeling in my lip from almost the middle down the side. Mine is from a novacaine shot that damaged the nerve. It has been 7 years now and I think it is time that it wore off. Most the time I don't notice it anymore but once in a while I do. I never have anything normal happen to me. They said this is very rare but I have heard that before with most everything I have had since I was born.

Post Edited (Canyonbabe711) : 7/4/2007 3:20:43 PM (GMT-6)


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 7/4/2007 3:35 PM (GMT -7)   
Hi Canyonbabe,
Thanks for the idea of using the AYR gel. I know what you mean about never having anything normal happen to you. I'm the same way. It makes me look really weird to doctor's.
I got a virus about 18 years ago and lost most of my smell and taste. Unfortunatley, salt helps me taste the food more.....but I still think I eat alot less salt than most people, but I'm just so sensitive to it.
Thanks for your suggestions.

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/4/2007 4:19 PM (GMT -7)   
I too had raiation treatments as a child because my adinoids kept regrowing.Not having problems I'm aware of though.
SnowyLynne


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 7/4/2007 6:36 PM (GMT -7)   
Hi SnowyLynne,
Did they not want to go back in to remove them? What kind of radiation did you have?

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 7/4/2007 10:45 PM (GMT -7)   
The first thing I tell a new Doctor is "Look outside the box for anything that happens to me cause I have never had anything normal" They just laugh then but down the line they all say "well, you were right" I could write a book. Good luck. Keep that saliva going.
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