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Mandolen
Regular Member


Date Joined Aug 2006
Total Posts : 186
   Posted 7/19/2007 12:12 PM (GMT -7)   
Just started Lotronex for 'Malignant IBS'....anyone have any experiance with this med?
 
Best,
M.
Diagnosed with Crohn's 5.2006 by: Capsule Endoscopy, Prometheus Labs IBD-First Step
7.2006-Dx'd with Severe CD by Colonoscopy (I had 2 in three months, the first one looked fine)
Gastroparesis, IBS, and suspected Celiac's
Remicade, Prevacid, Colazol,(Been in a flare since March 2006)
 
 


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 7/19/2007 1:12 PM (GMT -7)   
What is malignant IBS?  confused
 
I can't help you with Lotronex, but here are a couple posts about it:
 
Co-Moderator for the IBS Forum
 
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Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 7/19/2007 11:32 PM (GMT -7)   

I think "malignant" IBS is what they call retractable or particulary severe IBS.  I remember one of my docs using that term at one point.  My first GI was ready to put me on Lotronex when I had 20-30 BMs a day, but it never actually happened because he didn't know exactly what was wrong and wasn't comfortable with an "iffy" med.

Mandolen, do you have a definitive diagnosis yet?  I hear this drug is extremely effective, but it does have to be used carefully.


Co-moderator - IBS Forum


Mandolen
Regular Member


Date Joined Aug 2006
Total Posts : 186
   Posted 7/20/2007 1:48 PM (GMT -7)   
I think you're right on that Sarita about the Malignant IBS. He considers my 20 bm's a day to severe IBS...or Crohn's....but the Crohn's is in remission apparently at this time.
 
Until Tuesday, my definate dx was CD. He says the CD is in remission and that IBS is what is causing my current numerous bm's.
 
Lotronex can't be taken if a patient has active Colitis...but I'm ready to start feeling better!
 
7Lil, thank you for the links!
 
Thank you so much for your help!
Best,
M.
Diagnosed with Crohn's 5.2006 by: Capsule Endoscopy, Prometheus Labs IBD-First Step
7.2006-Dx'd with Severe CD by Colonoscopy (I had 2 in three months, the first one looked fine)
Gastroparesis, IBS, and suspected Celiac's
Remicade, Prevacid, Colazol,(Been in a flare since March 2006)
 
 

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