waht can i do abuot the pian

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oneday
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Date Joined Nov 2006
Total Posts : 175
   Posted 7/22/2007 10:21 AM (GMT -7)   
i just want some advcie.

i hvae given up now wiht geting a diagnoses i jsut preseme it is ibs not sure abuot bleeding thuogh. any way waht can i do to control the pian any ideas? i hvae been in pian since i had the colonscopy done four days ago. i hvae taken srtong piankillers tried abuot four types. i hvae aslo tried anitdepressants and anitspasmotics. my consultant will discharge me as thye didnet find anythnig not even wehre the bleeding was coming from. so i canet even discusse thsi wiht gi.

at the mo i am takeing loads of piankillers probberly to many. i know thta thye are not very good for yuo if yuo keep takeing thme. just not sure waht to do.

ps tired the hot water botle heat pads and all thta.

i got a leter from my gp to see her tomorow so see waht she has to say. i hvae no idea why she wants to see me. not loking forward to thsi.

Sarita
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   Posted 7/22/2007 9:28 PM (GMT -7)   

I hope your GP has some suggestions for you.  It sounds like you're really suffering.

My suggestions for pain relief would be most of the techniques you've already tried (from least to most drastic): hot water bottles, peppermint tea, hot baths (none of these seem to do anything for severe pain, I realize); anti-spasmodics and/or anti-diarrheal drugs; selective serotonin reuptake inhibitors (SSRIs); codeine; narcotics.  The narcotics are the worst idea, since they tend to give people pretty heavy gut reactions like nausea, vomiting, constipation, etc.  What are you taking right now for pain?  Do you know the active ingredient?

Do you have someone helping you out in person?  A family member or friend?  I think you need some personal contact to help you deal with this...someone to go to doctor's appointments with you, be there to support you.  That's a lot to ask for in someone, but if you do have that support, you're definitely ahead of the game. 

Have you researched biofeedback or hypnosis, by any chance? 

Let us know how your GP appointment goes.  Best of luck.


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oneday
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Total Posts : 175
   Posted 7/23/2007 12:23 PM (GMT -7)   
i am takeing codrymol and sometimes somethnig else to top it up. sometimes i take pian meds every two huors. i am woried abuot takeing thme all the time as i hvae had prolbems wiht my liver funtion tests in the past. my mum comes to as many of the appointmensts as she can. she is finding it very hard becuase it isnet just ibs i hvae got.

i saw gp today. she looked at the reuslts of my colonscopy and didnet say much. she baxsiclay said there was nothnig she could do abuot the pian. or any of the systpoms of ibs i get. i thnik my gi is giong to discharge me. the stsem thye use is differnt thye send yuo the results of any tests and thne decide if thye need to see yuo. as thye were normal thne i guess i wonet see her agian. i aslo rang up the gi's sectorary and she siad no apointment has been made to see her. aslo i hvae gotta some tests for another diease i hvae know idea waht it is called it went in one ear and out the other. so just so fed up wiht all these tests.

i hvae thuohgt abuot biofeedback. not sure if i can hvae it nhs. i hvae heard it is very good. i am giong to try to ask gp next time i see her. i cuolndet today as i had so many thniogs she needed to sort out. she had a leter from my mental haelht unit. so i had to go over how i was feeling and all thta. not sure if yuo know i am under my local mental haelth unit for the anxioty and depression. i am hvaeing truolbe accetping thta i hvae thnigs wrong.

Keriamon
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   Posted 7/23/2007 1:59 PM (GMT -7)   
I'm amazed that everyone seems to think your unexplained bleeding is okay. It's definitely NOT a symptom of IBS and it's definitely NOT normal for anyone. Have you been checked for anemia? If you have it, due to the blood loss, treating it could make you feel some better--as in, more energy. If you can, press for one of those camera pills so they can find where the bleeding is coming from; there has to be an ulcer in there somewhere.

If you can't get one, then see if your GP will make a leap of faith and try you on some of the Crohn's medicines. I know the steriods and stuff they prescribe for that can be very heavy on the side effects, but, gosh, I just don't see how you can get any worse. You sure aren't getting any better on your own. Bleeding and severe pain are both hallmarks of Crohn's. And more than once in other people the symptoms have been missed, the ulcers too high up in the colon to be spotted. Also, has anyone tried you on strong antibiotics? They help Sarita, who also has a lot of pain and D and no answer. If I'm not mistaken, there are some intestinal parasites that can also cause bleeding, but if you haven't been out of the country, I don't know where you would have picked them up. I guess the only thing left to do at this point is to venture into the experimental and hope you find something that works.

oneday
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Date Joined Nov 2006
Total Posts : 175
   Posted 7/26/2007 6:56 AM (GMT -7)   
yeah everyone thniks it is fine to bled. i hvae now given up fidning out waht is wrong. i am still in a lot of pian and am on srtong pian meds. thye donet help much thuogh. my gp wonet let me try any meds for crohns or anythnig like thta. she wonet even precrbe me metformin whcih i was told i shuold be on by my dermatologist to prevent me from geting diabetes. i hvae given up figthing now as i donet seem to be able to get anywhere. i a,m not sure where to go now.

all i ever get is it is all in my head. keep giong to the mental healht unit thye can help yuo. i swaer thye thnik i am making it up. thta the pian is not real and thta i donet bleed. i hvae to say it is the pian thta is causeing me the most prolbems at mo. i can put up wiht the bleeding wehn it happens but the pian is horrible as i canet move until it calms down. if it doesnet calm down soon i may lose my job as i hvae alraedy had monhts of from wrok becuase of it last year.

dbab
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   Posted 7/26/2007 7:11 PM (GMT -7)   
I'm sorry you are getting the run around Sara. I hope things get better for you but I worry about you. I still can't believe that your doctors aren't taking your bleeding seriously. I wish I had some words of wisdom for you in this case. Just take care of yourself. I'll be thinking of you.

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Canyonbabe711
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   Posted 7/26/2007 9:33 PM (GMT -7)   
Bleeding is not all in your head. Don't they see any bleeding. Usually you don't take Metforin unless you have diabetes. Can't you go on disability in the UK? It sounds like that is the only thing that you can do.

Keriamon
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   Posted 7/27/2007 8:11 AM (GMT -7)   
Actually, they are giving metformin to people now who show increased blood sugar levels--even if those levels aren't quite high enough to label them a diabetic. The lastest study out showed that if they put people on the Metformin, their risk of developing actual diabetes went down. Of course, excercise and going light on the carbs and sugars could probably do just as well, but Oneday is so sick, exercise and a diabetic diet may not be within her reach.

oneday
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Date Joined Nov 2006
Total Posts : 175
   Posted 7/27/2007 9:50 AM (GMT -7)   
the raeson i shuold be on metformin is as i hvae another condition whcih can lead to diabetes and as i alraedy hvae a high blood sugar level called insulin resistance thne i shuold be on thme to prevent it.

i spoke wiht my key wroker at the mental healht unit today abuot how i am feeling as i hvae been very low. she thniks i shuold go on anitdepressants as it wuold help me feel beter. i stil donet want to go thme but will see how thnigs are giong.

i donet thnik i wuold quallifey for disability. it is so hard to get any benifits. if i resign from my job thne i get nothnig. it seems thta i hvae no choice at mo but to keep wroking on my redused huors and see waht happens.

i trie to exercise if i can but as i am in pian it is very hard. i am a sporty person so not beeing abel to is raelly hard on me. as for the diet i am giong to see a deition on monday. i got reffered thre from my gyne as thsi all he offered me. i no waht deit she will put me on but it is hard to stick to it wehn yuo feel so low.

i do hvae one goal thuogh and thta is if i ever start to feel well i am giong to go to our local outdror pursuits centre and do some rock climbing. somethnig whcih i hvae wanted to do for so long. at mo thta seems so far away. but at least i hvae a draem.

Keriamon
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Date Joined Jun 2005
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   Posted 7/27/2007 10:37 AM (GMT -7)   
You may luck out and find the anti-depressants help your bowels--not because you're crazy, but because some of them actually do make your guts quit spazzing out and settle down. With all of this illness, you probably are depressed (I would be), but more importantly, your guts may be the equivalent of depressed or bi-polar (no, really!); there's a nervous system response that operates the guts almost wholly independently of your brain, leading people to say that the guts have a second brain. If a regular brain can have mental issues, why can't the second one?

Canyonbabe711
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Date Joined Mar 2006
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   Posted 7/27/2007 3:08 PM (GMT -7)   
Oneday, there are many people that have been helped with antidepressants and stomach problem. My friend takes Prosac and has not had a problem in over a year with intestinal problems. with all you are going thru I don't know why you won't try it. There is more seratonin in your gut then in your brain so it addresses that also. Give it a try. It doesn't mean this is all in your head or you are crazy or anything like that but the longer we try unsuccessfully to deal with problems the more subject we are to needing an antidepressant as we are on a downward trend. Doesn't even mean you have to take it forever. It seems like the one postitive thing that someone is asking you to do to try and help.

Sarita
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   Posted 7/27/2007 8:53 PM (GMT -7)   
I'd give it a try.  What do you have to lose, right?  I think anti-depressants might help you quite a lot; if not for the pain (and maybe they would help with that), at least your mood, which seems pretty bleak, given the circumstances you are in.  They are certainly safer than narcotic painkillers!
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oneday
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Date Joined Nov 2006
Total Posts : 175
   Posted 7/28/2007 2:42 AM (GMT -7)   
its not thta i am agianst thme. i tryed thme before two brands and one made me feel raelly sick and the other made my moods even wosre. thye didnet hel pwiht my stmoach. i do hvae other raesons for not giong on thme. thye didnet help my grandad who was very depressed. he sadly passed away last yaer after cahcting mrsa in hopstail. wehn i last took thme i felt like i was jsut takeing smaties as it never did any thnig for my moods or pian. i hvae been on so many difernet talets over the last few yaers i guess my body just needs a braek. i undertasnd waht poeple are saying. i hvae thuoght abuot takeing all the time. i am sure i will hvae to see gp soon for somethnig to do wiht the other tests i hvae to hvae so will speack to her thne. i hate myslef for feeling like thsi and if i thuoht thta anitdepressants were the anrsew thne i wuold take thme. it is so hard to explian my raesons and i no poeple are thniking thta is it crasy not giong on thme. it is probably giong to take me a while to acpet maybe thye are the anrsew. it took me ages to admit i am suffering from depression and anixoty. i am beging to woneder if the pian is comeing from somethnig else. i no i hvae probelms wiht my gut and like today canet stop giong to the toilet. i guess i just wanna nkow waht is giong on wiht my body. i am aslo scared abuot the tests i hvae to hvae and waht thye migth show. i was told abuot the condtion whcih i canet remember and thne told thta it can be caused by tumors. althuogh i am scared i am suprisingly calm abuot it. i hvae started to use a relaxation cd whcih my key wtroker gvae me to try. so i am hopeing thta thta can help me relax more.

Post Edited (oneday) : 7/28/2007 4:04:39 AM (GMT-6)


Canyonbabe711
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Date Joined Mar 2006
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   Posted 7/28/2007 1:27 PM (GMT -7)   
ARe you taking any anxiety meds? Maybe that would be a place to start. They have virtually no side effects. they may not help with gut like anti-depressants might but it may help just to relax you and that may help relax the gut. It takes time to find the right antidepressants. There are a ton out there. Also, you need to find the right dosage for you.

stkitt
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Date Joined Apr 2007
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   Posted 7/29/2007 10:26 AM (GMT -7)   

Hello Oneday,

You wrote:" i hvae been in pian since i had the colonscopy done four days ago." Is that when the pain started?  If you have been in severe pain have you talked to the GI physician that did your scope and told him that your in severe pain post colonoscopy? Perhaps that is the problem.

Everyone else has offered you great advice.  I am sorry your going through this and the best I can add is some gentle hugs.

Keep posting.

 


Respectfully
Kitt
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oneday
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Date Joined Nov 2006
Total Posts : 175
   Posted 7/30/2007 11:24 AM (GMT -7)   
i had the pian abuot four monhts ago. i missed a few monhts off from wrok. i nearly got sacked. i am still running the risk of it now if i hvae any time off. i had a scope done abuot a week ago now had raelly bad pian on my lef side. my gp jsut said to take pian killers and thta there wasn't anything else she could do for me. i still don't raelly know where the pian is comeing from thuogh. thye are all cufused as to where it is comeing from. i am not giong back to see my gi. i hvae been discharged. i hvaent even seen her since hvaeing the colonscopy done so not raelly sure waht the hhole prolbem is. i dnot' know the out come of it altuogh thye did say thta waht thye saw looked normal but took some biopies.

i went to see my gp agian today and she has given me some anitdepressants. i am stil not sure but may give thme a go. i had to go to see her agian as i hvae come up in yet another rash all over my neck thsi time. i am not ssure waht is giong on but i seem to get rashes all the time. i am geting more help from the mental healht unit thna gi gyne or gps.

Canyonbabe711
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Date Joined Mar 2006
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   Posted 7/30/2007 11:52 AM (GMT -7)   
It seems to me that the rashes may be a clue that you have some autoimmune disease. Have you been check for autoimmune problems. There are some blood tests that can give a clue.

oneday
Regular Member


Date Joined Nov 2006
Total Posts : 175
   Posted 7/31/2007 4:48 AM (GMT -7)   
its not as easy to get a new doctor. i live in the uk and hvae an nhs service. you hvae to go wehre yuo are sent. i hvae asked to see a diffenert gyne in regards to another health problem i hvae but thye my doctors wonet let me. waht do yuo mean about the whole story? my gp has only precribed me pian meds nothnig esle at mo. i canet even get precribed the pill. i donet thnik theres any chance of geting anythnig esle.

i had some bloods taken for autoimnue diease, thye came back as poistive but i was told by my gp now thta thye are ok and a lot of people hvae poistive results. my gp gvae me some steriod craem for rash. see waht happens there. she said she doesnet want to precribe me any strong steriods as thye can make my other healht problems wosre.

Keriamon
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Date Joined Jun 2005
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   Posted 7/31/2007 8:20 AM (GMT -7)   
As Canyon said, there are a lot of anti-depressants and a lot of different doses, and it can take a while to work out what you need. My stepfather had to try different meds for nearly a year, I think it was, until they found what would take care of his depression. Now he's like a totally different person. Smiles and laughs like he never used to do before.

I think there's a cronic pain forum on here, isn't there? Have you tried asking them about meds, tests and non-medicine things you can do to get over the pain? Unfortuntely, there are some people who just hurt for no reason--something to do with overly sentitive pain receptors. Although, in light of your positive test results for auto immune, and your rash, that seems to be more likely your problem than nothing at all.

Do they have anything over there like a patient advocate? You can get them over here and they go to the doctor with you and make sure you're not brushed aside. They also help keep track of your doctors, diganoses and medicines. And has anyone referred you to a pain mangement doctor? The husband of a lady I worked with ended up seeing one; she was kind of like his advocate as well as his pain doctor. She got him off excessive meds and put him on pain meds that worked better, organized his doctors visits, kept track of the medicines he was on, even taught him a better way to walk with his cane. She really helped him out.

Canyonbabe711
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Date Joined Mar 2006
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   Posted 7/31/2007 10:07 PM (GMT -7)   
Well, we may have problems with our health care but I don't want to change to not having a choice. Oneday, if a tests comes back positive and they say it doesn't matter what the heck is the point in doing the test. They use Elavil a lot for pain these days and it is a an antidepressant also though an old one. You might as about that. I really don't know where you can turn if you can only go where they send you and they don't pay any attention to the tests. A week or two of steroids is not going to hurt you and may help.

oneday
Regular Member


Date Joined Nov 2006
Total Posts : 175
   Posted 8/2/2007 11:38 AM (GMT -7)   
i thnik exacly thta. donet nkow why thye did the blood tests if thye atre not giong to do anythnig abuot the results. i hate giong to see my gp and asking to get reffered is so hard thye donet like sending yuo to see a consultant. my pian has eased of at mo. so not takeing pian killers. it seems to flare up every so often. just left wiht the horrible rashes at mo. i am giong back to see gp in two weeks got to hvae blood pressure checked and i will ask her thne agian abuot all thsi. see waht she says thsi time.

Keriamon
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Date Joined Jun 2005
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   Posted 8/2/2007 12:06 PM (GMT -7)   
Have they ruled out fibormyalgia? That causes a lot of pain, is an auto-immune disorder (I don't know if rashes are ever associated with it or not, though), and can mess your guts up. It's very hard to get it diagnosed; I forget how many other diagnoses my mother went through before she ended up with that one. A lady at work seems to be going through the same thing. I think it's a bit like IBS--a process of elimination.

oneday
Regular Member


Date Joined Nov 2006
Total Posts : 175
   Posted 8/4/2007 10:29 AM (GMT -7)   
no thye hvaenet even looked at thta althugoh i di d ask if it could be somethnig like thta. thye are now putting my stomach prolbems down to my depression. i am waiting to see if i am gonna see the contsultant at hosptial agian. i donet thnik i will as thye thnik thta everythnig is ok. i jsut hvae to wait and see waht happens now. i am not allowd to see anohter gi. i am hvaeing troulbe trying to see a gyne for other iusses. my gp wonet reffer me. i guess i am being to jsut accpet thta i will never get any wehre. i do feel thta the nhs has let me down. well apart from the mental health unit. thye hvae been raelly good to me. thye do at leaset undertsand thta i do hvae haelth iuseess and not jsut put everythnig down to depression.

my rashes seem to be clearing up at mo. been putting craem on thme. not sure how long i will be before i get anohter one thuogh.
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