Went to doc!! And I was RIGHT!!!!

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Tracy Mt
New Member

Date Joined Jun 2007
Total Posts : 16
   Posted 7/29/2007 1:59 AM (GMT -6)   
To all who have helped me with my previous post: Newbie with IBS, Fibro, Feeding Tube and looking at getting a Illeostomy!!  And to whomever else who is out there!!!
As some of you have read, I just knew my doc wasnt dxing me right!!!  My last appt in April my doc told me he wanted me to get an Illeostomy Bag.. and I just knew that you didnt do that, or put feeding tubes into people with IBS!!  And I tried to get a reason out of him.. and the best I could get was that my tummy was slow, and that he thought my large intestine was pulling too much fluid out making me C!! 
Well I just saw him again, and it was an awful trip!!!  I was SSSOOO sick!!  So I was relying on my hubby to write down the name of the dx!!!  And of course he didnt!!  He was too worried about me!! So now I have to call back and ask what they were again!!  But the jist of what happened was he said that he thinks my stumac is paralized!!!  So nothing is moving!!!  And it is making it impossible to absorb anything!!  So I am assuming he thinks that the fluid of the feeding tube takes less to move, and it is broken down for me...
But I am still upset, cuz he never gave me his reasoning for why he came up with this dx!!  What tests told him this.. why he never gave me the dx without me asking for it!!  And he tends to agree I need to go to Mayo... but not until I asked to go!!  And he hasnt given me any reasoning on why he thinks I should!!  What tests he thinks I need!! 
But when I asked him.. "so the Illeostomy is out then", he seemed to get excited!!!  And then he asked me if I wanted it done!!! And seemed to look disappointed when I said "NO!!".  But he is acting like its an inevitable thing!!  Yet wont tell me anything, like why!!  I would have fought harder for those answers, but I had the worst trip ever!!!  I was sooo sick!!!  And when I get to fevering like that, and only having 2 hrs sleep, I cant think straight!! And I just wanted to go home!!!  I even had to rescedule my first appt of the day for after this one, cuz I was too sick to leave the hotel room!! (I always have to go up the day before, cuz its a 2 hr drive, and I tend not to have enough energy to travel and make the appts!!!  And I worry cuz its 45 mins or so between rest areas!!!) 
So I sit here wondering what to do next...  wait to see him again and ask!!!  Which I absolutely hate waiting for appts... cuz that is just more time Im just waisting in pain!!!  Or call... but that is alot of questions for a nurse to leave a note for... or write him...  or give up on him and start looking for a second oppinion, while I wait for my turn at Mayo (about 5 more months)!!!
Any thoughts???
Tracy Mt

Veteran Member

Date Joined Mar 2006
Total Posts : 1451
   Posted 7/29/2007 5:05 PM (GMT -6)   
Tracy, check out this site on Gastroparesis. this sounds like what he was talking about. Perhaps it will help define it more and give you a direction to pursue
There that should work better. It is a really great informational site that may be good for many of us to read.

Post Edited (Canyonbabe711) : 7/29/2007 7:12:34 PM (GMT-6)

Regular Member

Date Joined Dec 2005
Total Posts : 251
   Posted 7/30/2007 8:45 AM (GMT -6)   
Tracy,  I am so sorry for all your troubles..  You said you are two states away from Mayo..  Which Mayo are you talking about??  I am 43 years old have have two kids..  I have been sick with IBS/adheions/anxiety for about 10 years..  I moved from Florida to Ohio last year because I needed better health care..  I went to Cleveland Clinic.   I highly recomend them..  They have a number 1 gastro department in the world..  They will find out what is wrong with you..  Also you can stay on site..  There is a hotel attached to the gastro area..  If you want more info please feel free to email me at ..   Take Care

Ryleigh, for your protection from spammers, I have taken out your email address in your post...

Tracy,  You can find Ryleigh's email address if you click on the envelope under her name.

Hope I didn't cause any problems, just don't want you to get attacked by spammers Ryleigh... Take Care ~ dbab

Post Edited By Moderator (dbab) : 7/30/2007 8:22:48 AM (GMT-6)

Veteran Member

Date Joined Jun 2005
Total Posts : 2976
   Posted 7/31/2007 9:42 AM (GMT -6)   
I found out from my grandmother that my mother's cousin had to have her whole stomach removed and some of her intestines; most everything stopped working. But rather than a feeding tube or colostomy, I think they put her back together like they do for people who have gastric bypass done. By taking out some of her GI tract, they shortened it and so made things pass through faster. And, like people who have had gastric bypass, she has to be careful of what she eats, chew well, no alcohol, tiny meals--that sort of thing. Maybe when you go to see someone else, you should ask about that as a possibility. It's not fun, and it's still a dangerous operation, but it's more liveable than a colostomy and feeding tube.
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