The thing about Crohn's disease is that generally there are very specific microscopic or macroscopic abnormalities that are seen upon inspection of the intestines (usually granulomas). If these abnormalities are not present, it is difficult to diagnose someone with the disease. Once you are diagnosed with Crohn's disease (or any chronic disease, for that matter), many patients have to fight to keep their insurance, etc. which is why doctors are hesitant to label the patient with that disease unless they are absolutely sure that it exists. Also, the treatments for the disease can be occasionally more dangerous than the disease itself for some patients, so docs will use a lot of caution in treatment.
Some diseases are black-and-white; a couple of tests and you know for sure if it's present. But GI disorders are very, very tricky. I personally believe that many disorders can mimic the symptoms of Crohn's and they are not necessarily this vague, benign disorder of IBS. There's a lot more still to be learned about the body.
Have you ever had any upper GI studies, like an upper endoscopy, abdominal ultrasound, barium swallow, hydrogen breath test, CT scan? When someone mentions burning pain in the umbilical area I always wonder about H. pylori infection. 90% of stomach ulcers are caused by this bacterium...
Post Edited (starrnr) : 9/9/2007 2:05:54 PM (GMT-6)