UC&IBS & Chronic pain. Can U relate? Help?

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BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 9/11/2007 3:41 PM (GMT -7)   
Hi all. Spend most of my time in the Ulcerative Colitis Forum b/c, well, have had a bad year w/that illness past year (2 wk hospitalization 11-06, five months out of work (still PT) and trying to get "healthy" again).  Was officially Dx w/UC in 1999 and several years ago was Dx w/IBS--have colonscopy/every year and have had two endoscopes twice (both just two weeks ago, in fact--no infections, still showing UC inflamation left side, no ulcer, no bacteria and the best news no cancer).  You can see the meds I'm on below.  I'm looking for anyone who may experience chronic pain in relation to UC/IBS--trying to understand it and get a handle on it.  I've always had difficulties w/injesting food--doesn't matter what kind of food--I've tried EVERYTHING, elimination, small meals, liquid, no dairy/wheat, etc, doesn't seem to matter to my system; when I put anything into my system I get moderate to severe stomach pain--about 80% of the time.  And about 50% of that 80%, I will have to go to the bathroom, severe Diarreha.  I should also say that I get severe headaches daily, I was taking up to 10 tylenol a day until my MD prescribed pain meds.  I've tried anti-spasm meds, did seem to make a difference.  Trying to think of all the things that people may have questions about?  My life currently revolves about being as healthy as possible, trying to do everything I can to minimize my symptoms--exercise daily if I can (lots of fatigue), don't drink alcohol, no recreational drugs, in a good realtionship, professional job I actually enjoy......just my health sucks!  Any thoughts??????
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 9/11/2007 3:52 PM (GMT -7)   
O.k. I might as well add that I'm slowly losing my ability to think b/c I meant to put my additional info on reply post, but instead made up a whole new post???? Duuuhh.  Anyway, in case I need to state it again, an error in my previous post about anti-spasm meds, I've been on them in the past, and they did NOT work for me (as far as the pain is concerned).  The one I remember is Bentyl.  There, I hope I have it straight now. 
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 9/12/2007 11:48 AM (GMT -7)   
Hi Lucy,

I'm sorry that you are suffering so much. IBS is a tough one and not everyone responds the same way to the same treatment/maintenance. Many have had success in changing their diet by identifying "trigger" foods. Some have IBS as a result of anxiety which antidepressants sometimes can control. Do you think that the inflammation from the UC that you are having might be causing the D? Also I see you are on calcium, I'm assuming for your pred usage. Are you taking the carbonate kind or the citrate kind? Calcium carbonate has helped a lot of people on here with D although the citrate won't help and is usually recommended for C sufferers instead. I wish I had answers for you. It seems like you have tried a lot of things already that I would have recommended. My only other suggestion would be to talk to your doc about a fiber regimen. This may help bulk up your stool.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


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BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 9/12/2007 4:49 PM (GMT -7)   
Thanks for your reply dbab. Yes the high Calium is b/c of oral and anal sterroid use--fun; I'm taking the right one for me, already looked into it, thanks. Inflammation is part of UC not b/c of D, I have many pictures of my colon from throughout the years and you can see it, as well as, the ulcers that line the part of my colon that's diseased. As for fiber, that's big no, no will UC (when ill)--fiber aggravates/irritates the ulcers which cause them to bleed, so if my illness is what we call flaring--or active--I have to go on a very low to no fiber diet, which really does wonders for my constant D and IBS. By the way, don't get C, unless is artifical, a medication side effect--which I actually like b/c I get a break from the many trips to the bathroom. My GI started me on Bentyl yesterday, again, to see if it can help w/ any of the stomach activity. She wants me to take it 1/2 hr before I eat anything--does anyone know the long-term effects of this medication or side effects?
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 9/12/2007 8:27 PM (GMT -7)   
Sorry Lucy. I don't know why I was thinking you were in remission, you definitely did NOT say that in your original post... sorry brain fog. Yeah I agree if your UC is active now you need to be on a low residue diet... I am currently on one right now due to a diverticulitis flare so no fiber for me right now. I would think that UC is your main problem right now and no matter what you do about the IBS symptoms, it will not matter until you get your UC in remission. I really hope you can get there soon, it looks like you are doing all the correct things.
"Des"
Co-Moderator ~ IBS Forum
Co-Moderator ~ Lupus Forum 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Lodine XL 1000mg, Klonopin PRN, Miralax 17g, Supplements


http://www.healingwell.com/donate


gutastrophe
Regular Member


Date Joined Jul 2007
Total Posts : 319
   Posted 9/12/2007 11:21 PM (GMT -7)   
Bentyl did nothing for me except make me tired, constipate me and dry out my mouth.  I took it religiously for nearly 6 months, constantly hoping it would DO something for the spasms but alas, it did not. 
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