Hida Scan This Morning...Any Advice or Ideas for Me??

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VanillaBeanGonzo
New Member


Date Joined Sep 2007
Total Posts : 4
   Posted 9/20/2007 4:06 PM (GMT -6)   
Well I just returned home from my HIDA scan. I have been dealing with
terrible pain under my right rib and it radiates into my back and shoulder. I
also feel like I have a huge softball stuck under my ribs when I leave back..
as if I am leaning against it. I have had 2 ultrasounds that were negative,
bloodwork, and a upper endoscopy that showed a little gastritis but no ulcers.
The pain is only brought on if I eat fatty foods or anything with spices.
Everything has to be pretty bland and I drink a lot of water. This has been
going on over 5 weeks now and my gastroenterologist decided to move on to
HIDA scan which was done this morning.

 The first part went well then the tech went to talk to the doctor because
it looked like my gallbladder had disappeared. Should I be concerned about
this?? He said all of the films for the first half were then done and we
would move on to the second part.

Then we did the part with the CCK injection into my IV and that sent me into
terrible pain and nausea. It made my stomach cramp all up and I hurt up into
my shoulder and back  The tech told me something is definitely not right and
that "we may be on to something" because of the way I reacted.

It felt like someone was stabbing me in the back and I nearly got sick to my
stomach. Afterwards the tech gave me some juice and a blanket and let me
relax until I was feeling good enough to leave.

The doctor should be calling me in a few days..but I am just terrified, that
like with every other test done, this will not give me an answer to my pain
and the doctor will blow it off. I have lost so much weight from being unable
to eat much and I feel awful. I just cannot function while living on
painkillers.

Has anyone experienced this same problem and have any advice for me?? Thanks
so much for any help!

Heather

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 9/20/2007 5:50 PM (GMT -6)   
I'm no doctor, but I'm positive your GB is bad. While the HIDA scan injection materials often make everyone who takes them feel ill and uncomfortable, that it made yours hurt so bad makes it sound like your GB is quite bad.

And yes, I have had a bad gall bladder too. For 5 years, off and on. So I know exactly what you are talking about with EVERYTHING!

VanillaBeanGonzo
New Member


Date Joined Sep 2007
Total Posts : 4
   Posted 9/20/2007 5:52 PM (GMT -6)   
Keriamon said...
I'm no doctor, but I'm positive your GB is bad. While the HIDA scan injection materials often make everyone who takes them feel ill and uncomfortable, that it made yours hurt so bad makes it sound like your GB is quite bad.

And yes, I have had a bad gall bladder too. For 5 years, off and on. So I know exactly what you are talking about with EVERYTHING!
I am just concerned that if the doctor says I am fine..I will not know what else to do :( I am hoping this does give that answer as you said..so that I can get some RELIEF!

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 9/20/2007 6:39 PM (GMT -6)   
Hello,   I also had gallbladder problems for 10 years before finally with a hydascan it was dx..  I really think you will get your answer with this test..  It depends what your refraction rate was..  If it is below a certain number that means your gallbladder is not working and you will probably need to get it out..  Beleive me getting it out is your best option..  You will feel so much better..  I used to suffer at least 3 times a week laying on the bathroom floor in pain all night..  I did that for at least 5 years..  I got it out along with my appendix last novemember..  Since then I went from 105lbs to 120..  Which is great I was way to thin..  Hope you find your answer.   Feel free to emai me if you have any questions.. 

Ryleigh


VanillaBeanGonzo
New Member


Date Joined Sep 2007
Total Posts : 4
   Posted 9/20/2007 6:51 PM (GMT -6)   
ryleigh said...
Hello,   I also had gallbladder problems for 10 years before finally with a hydascan it was dx..  I really think you will get your answer with this test..  It depends what your refraction rate was..  If it is below a certain number that means your gallbladder is not working and you will probably need to get it out..  Beleive me getting it out is your best option..  You will feel so much better..  I used to suffer at least 3 times a week laying on the bathroom floor in pain all night..  I did that for at least 5 years..  I got it out along with my appendix last novemember..  Since then I went from 105lbs to 120..  Which is great I was way to thin..  Hope you find your answer.   Feel free to emai me if you have any questions.. 


Thank you for the advice and I am glad your problem was problem was fixed. Those moments on the bathroom floor are VERY familiar. I just will not know what to do if this doctor says my refraction rate is good but yet I am still in pain. I have heard stories of people who have had good HIDA scan scores but yet later on had the gallbladder removed to find it covered in adhesions.

I will keep yall updated and definitely email you if I come up with more questions.


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 9/21/2007 11:23 AM (GMT -6)   
I had three HIDA scans done over the course of 5 years. Of course that was my problem all along because once it came out, the pain went away. So if this doesn't work, go to another doctor and do it again. Your symptoms are just too perfectly gall bladder in nature for it not to be that. I mean, your's are more perfectly gall bladder than mine were.

I think the tech gave you your clue. My stepfather was a tech, and he did two of my tests. Finally, on the last one, he said, "It's not working!" But technically techs aren't allowed to tell you that; it has to come from the radiologist who reads the numbers (although all the techs know what the numbers mean). That yours said something wasn't right indicates that he saw your numbers and knows that they weren't good.

I got my results from my test later that same day (might be because of my stepfather and the radiologist being best friends), so if you don't hear from your doctor real soon, call to harrass.

VanillaBeanGonzo
New Member


Date Joined Sep 2007
Total Posts : 4
   Posted 9/21/2007 1:26 PM (GMT -6)   
Keriamon said...
I had three HIDA scans done over the course of 5 years. Of course that was my problem all along because once it came out, the pain went away. So if this doesn't work, go to another doctor and do it again. Your symptoms are just too perfectly gall bladder in nature for it not to be that. I mean, your's are more perfectly gall bladder than mine were.

I think the tech gave you your clue. My stepfather was a tech, and he did two of my tests. Finally, on the last one, he said, "It's not working!" But technically techs aren't allowed to tell you that; it has to come from the radiologist who reads the numbers (although all the techs know what the numbers mean). That yours said something wasn't right indicates that he saw your numbers and knows that they weren't good.

I got my results from my test later that same day (might be because of my stepfather and the radiologist being best friends), so if you don't hear from your doctor real soon, call to harrass.
Thank you for the advice and I will definitely harass that office if I do not hear back soon!! When the tech injected the CCK and asked me to rate my pain and I told him a 5 on a scale of 1-10..while you could probably see the agony on my face...he began writing down things on my chart. When I told him I was in pain he quickly replied "We may be on to something!" and he kept patting my shoulder and telling me to hang in there. He asked to rate my pain about 3-4 times through the whole test and if I was having any nausea. I am hoping this means that this test gave an answer. I am tired of being in pain and getting sick when I eat. The thought of my numbers coming out okay yet I am still in agony and the doctor wont do anything really concerns me...but as you said..if they do nothing..move on to another one who will!!

donfab
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/20/2009 10:28 AM (GMT -6)   
I was so glad to read about someone else having similar problems to what I'm having. I had an endoscopy yesterday and am scheduled for a HIDA Scan next Wednesday. They have found inflammation in my duodenum and took a biopsy from my stomach. For several years I would get nauseous after eating and usually have to run for the bathroom about 15 minutes after a meal. Diahrea would hit immediately. Then I might have problems with constipation between these bouts. I have finally found, by elimination, the foods I can't have which are oils and butters and strong spices. I have to be careful of caffeine and not overload on it too. I've had other tests on my gallbladder which all came back ok and a colonoscopy two years ago that was fine. So they labeled me with IBS. I don't agree with it but I'm like you, they just brush it off and meanwhile it's so hard to eat out and I have no answers. You are all talking about being on the floor in the bathroom constantly. I had a bout one time hit me while I was eating out and started to feel funny. I felt like I had to go to the bathroom real bad and was blacking out. I was sweating so bad my clothes stuck to me. I never did throw up but felt like I didn't know which end it was going to come out of first but I was so sick I couldn't stand up. Is this similar to what you're experiencing? I'm so anxious to get my results from the test next week and get this HIDA Scan done. How uncomfortable is it?    confused
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