severely redundant colon

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yogaprof
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Date Joined Apr 2006
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   Posted 10/22/2007 4:44 PM (GMT -6)   
I posted this on the crohns board, where I have hung out for a long time, but I realized I might get better feedback here. I was diagnosed with crohns, but meds haven't helped and now the doc things it isn't crohns. I have had the same, consistant URQ pain for 19 months (but who's counting) and nothing has helped. I go to the GI in a few days and have no idea what he will come up with next. one thing I have been thinking about, after my last c-scope a year ago, he talked about my severely redundant colon and how it is all twisted and knotted and figured eighted. do you think that could be causing all this pain and bloat and C? If so, is there a darn thing I can do about it?
thanks so much, YP

48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 10/22/2007 5:57 PM (GMT -6)   
if you have a twisted colon it certainly could be causing the pain and C my colon has done a variety of twisty, weird things--i would keep en eye on it--if it twists so tightly that the blood supply is cut off, that is very serious. what does your GI say? have you had a cat scan recently?
katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine


Canyonbabe711
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Date Joined Mar 2006
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   Posted 10/22/2007 8:54 PM (GMT -6)   
I would think only surgery could fix this. Have you tried Remicade? I have a friend that said it was a miracle for her and she was really bad. Hospitalized for over a month with Crohn's.

yogaprof
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Date Joined Apr 2006
Total Posts : 1651
   Posted 10/22/2007 9:39 PM (GMT -6)   
yes, I have tried remicade and humira, and neither did anything. this is nuts! thanks for your input, and I hope others have ideas about this.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


pollyanna
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Date Joined Apr 2005
Total Posts : 7
   Posted 10/24/2007 6:45 AM (GMT -6)   
Hi

havn't been on this site for 12 months as i was diagnosed in 2006 with ibs., and the last 12 months have been free of it. Forthe past six weeks i have had bloating daily naseau and pain lower and upper stomach, getting nowhere with doctor as she thinks it is IBS symptoms but it hasn;t been like this before. My bowels seem normal except that i feel sometimes that they havn't completely emptied, So depressed.

spasman
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Date Joined Jul 2006
Total Posts : 361
   Posted 10/24/2007 11:47 AM (GMT -6)   
I don't know but i think they wait to resect till you get obstruction,volvulus or cecal bascule.
-IBS-A,C with meteorism(trapped gas) and pubic burning-


yogaprof
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Date Joined Apr 2006
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   Posted 10/24/2007 12:02 PM (GMT -6)   
that is the impression I have, Spasman. I hate the idea of another surgery, of course, but living with pain is really taking its toll on me.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 10/24/2007 1:02 PM (GMT -6)   
Effect of 5 days linaclotide on transit and bowel function in females with constipation-predominant irritable bowel syndrome.

http://www.medscape.com/medline/abstract/1...&src=nlbest

clinical trials:

http://www.clinicaltrials.gov/ct/show/NCT00460811?order=2 <!--IBF.ATTACHMENT_696569-->
 


-IBS-A,C with meteorism(trapped gas) and pubic burning-

Post Edited (spasman) : 10/24/2007 12:17:15 PM (GMT-6)


yogaprof
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Date Joined Apr 2006
Total Posts : 1651
   Posted 10/24/2007 4:39 PM (GMT -6)   
interesting links. I am beginning to look at this as IBS, even though that has never been my diagnosis, as there is nothing else to get my head around, so to speak :)
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 10/25/2007 12:46 AM (GMT -6)   

Hmm...interesting.  I am currently dissecting the abdomen in gross anatomy.  The colon anatomy is generally fairly easy: it starts just after the terminal ileum, ascends up the right, crosses over to the left, descends down the left, then forms the s-shaped sigmoid colon into the rectum.  I'd be very curious to see what a severely redundant colon looks like! 

I would imagine that a CT scan would be useful in this instance.  Or even an abdominal ultrasound.  You have a LOT of pain, right?  Am I remembering that correctly?  Is it in any particular spot?  When you say "upper and lower stomach," where is that in relation to your belly button?  Right, left, below the ribs, below the belly button, in the middle, etc.? 

Abdominal pain is a very weird thing.  There are nerves from your actual stomach organs that actually land on the same place that your skin/skeletal system nerves land.  This is the basis of "referred pain," because your body gets confused about which nerve (either from the organ or from the skin/skeletal area) is sending the signal.  So if you have pain in the belly-button area, for instance, this tends to reflect a problem in the small intestine.  Pain above the belly button and to the right can indicate problems in your liver, or further up to the right, your gallbladder.

This is not absolute, of course.  It just tends to be the case.  There are always exceptions.  Also, sometimes pain will be felt even if there's nothing "grossly" abnormal.  And that, of course, is one of the limits of medicine.


Co-moderator - IBS Forum


yogaprof
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Date Joined Apr 2006
Total Posts : 1651
   Posted 10/25/2007 9:48 AM (GMT -6)   
thanks so much for the info. here is a link with a drawing of a redundant colon. my pain is upper right, from the belly button up and over. all organs have checked out fine. only the large intestine seems to be a problem. I will let you know what my GI says today. yp
 

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 10/25/2007 8:01 PM (GMT -6)   

Very appropriate timing, Yogaprof - I just had my big lecture on the colon anatomy today.  My professor showed photographs of several variations in the positioning of the colon and told us that normally these variations won't cause clinical problems.  Like birdie said, volvulus could be an issue if the colon twisted so much that the blood supply was cut off.  Have you had a gastric emptying scan, by any chance, to check for delayed transit?  I would imagine with a redundant colon that there would be slowed motility.  Which could definitely lead to constipation and bloating.


Co-moderator - IBS Forum


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 10/25/2007 8:59 PM (GMT -6)   

Since you comment on "positionning",there is something that may improve our condition.

www.cecopexia.com

I may go for it simply because i think i may improve.

I also have cecum motility problem.


-IBS-A,C with meteorism(trapped gas) and pubic burning-


yogaprof
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Date Joined Apr 2006
Total Posts : 1651
   Posted 10/26/2007 9:49 AM (GMT -6)   
well, I went to my GI yesterday and he is SURE that I have adhesions, still, after two laporoscopies last year to look for them. he thinks the surgeons didn't look far enough and that has to be what is wrong. this is after a zillion tests and meds. he said the redundant thing could be a little problem, but not cause this kind of pain.
I am so bummed at the idea of another surgery, but I can't go on like this much longer. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 10/26/2007 6:23 PM (GMT -6)   
If you even get a bowel fixation,ask them to fix your cecum in his natural place at the same time.

It's just one of those thing that will ease your mind.

We want bowels at the rigth place :)
-IBS-A,C with meteorism(trapped gas) and pubic burning-


TexasJen
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Date Joined Dec 2006
Total Posts : 649
   Posted 11/4/2007 2:09 PM (GMT -6)   
Be glad your doc even considered that your adhesions have grown back. Many docs just don't believe they can cause pain, and since they don't show up on tests... well, that must mean they don't exist. HA! I have had multiple adhesion surgeries, and almost 2 feel of colon removed because they cut off the blood circulation in 2 places. Like you, I had a redundant colon - VERY redundant. Sarita - an Air Contrast Barium Enema is the best picture to get of a redundant colon. My pictures looked like the back of Shirley Temple's head - just loop after loop after loop all over my abdomen. The docs couldn't believe it. The surgeon who did the resection told my husband, "It was just one big sloppy mess in there." LOL!
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1651
   Posted 11/4/2007 11:12 PM (GMT -6)   
I didn't know docs didn't think they caused pain; I was told they are about the most COMMON cause of pain! I am sorry you are suffering with them, too. I don't know if I will have surgery again. actually, I am sure I will at some point, just not ready to do it again yet. as for your doc's comment--25 years ago I had surgery for adhesions and the doc said it looked like somebody poured super glue in there! yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. In December had adhesions cut through a laparoscopy. Now just taking Glycolax, metamucil, and began Humira 9/07.


luvmycat
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/26/2012 11:46 AM (GMT -6)   
shakehead    I have been diagnosed with a redundant colon, I have cronic constapation had  it for years , but it is now to the point i dont want to eat because i never know if i will gdont know anyone with this problem o to the bathroom , I take all kinds of otc pills , fiber , enimas ect just to have a little releife , i found a doctor that is treating me know doing all kinds of test ,colon, test  1 gastric empting study test 2 small bowel follow through test 3 sitz marker study test 4 defecography .test 5 baloon expulsion test , before a possible surgery , I want to be  normal and go to bathroom at least everother day ,if i have the surgery they might take out as much as 16'in  of my colon , it is very long with curves and lots of twist , I want this done , but at the same time getting a little anxiety about it , Does anyone have this condition or had the surgery , if so is it worth it and do you feel better ? kinda need some positive feedback
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