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Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 10/24/2007 5:40 PM (GMT -7)   
My new GI (who is super-smart and very kind, BTW) is forging ahead with a Prometheus IBD and celiac disease serology, some microbiological assays, and another small-bowel capsule study (PillCam).  He thinks my small intestine is the culprit due to the volume of diarrhea that I'm having, and he mentioned Crohn's disease and chronic amoebiasis as potential issues.  He said it is possible that my previous scopes never revealed them, but that the Prometheus test is >90% accurate.
 
Too bad I don't even have time to go get my blood drawn.  Jeez louise.  Anyway, I have my fall break coming up and so will likely spend it with a digital recorder strapped to my abdomen.  Fun times.  Hope there will be answers.
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Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 10/25/2007 7:14 AM (GMT -7)   
What, they haven't had you guys practicing drawing your own blood yet???

Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 10/25/2007 8:21 PM (GMT -7)   
I hope it isn't CD Sarita. But frankly, I would not be surprised AT ALL. I have thought so since the day you showed up at HW inspite of what Mayo said.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 10/26/2007 12:05 AM (GMT -7)   
It's definitely a bit ridiculous.  I mean, it's pretty hard to get through medical school without any other problems going on, but with 10-15 bathroom breaks, chronically low potassium and dehydration, it's hard to muster up the emotional strength to keep myself on track.  I'm just hoping to pass my final exams so I can pass my classes.  I don't know what to do, I feel like I'm spinning my wheels here!

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softy
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Date Joined Jun 2004
Total Posts : 798
   Posted 11/2/2007 10:36 AM (GMT -7)   
Hey girl,
 
Sorry to here your garden hose is back and you're not doing well.  I truly hope somebody gets to the bottom of this and you get some answers.  If I remember correctly, don't you live in Canada?  The reason I ask is that I thought the Prometheus test wasn't available here. 
 
Just read your post on the CD board, DON'T give up no matter what.  You will make the most incredible compassionate doctor.  Take care of yourself as best you can during this time.
 
 
Take care, Softy
 


Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 11/2/2007 10:41 AM (GMT -7)   

Thanks Softy!  I am at home today, nestled amid a pile of anatomy books.  I went to the school clinic this morning to see the doctor.  Very nice guy.  He said a couple liters IV might be good but I'd have to go to the hospital for them because there are very few clinics in town who will do that anymore...but I'm going to try to stave that off by drowning myself in Gatorade.  I had D 5 times this morning but the Immodium seems to be kicking in, thank goodness, for now.

I might have to reschedule a final exam or two.  I'm trying not to stress about that.  I feel pretty good about the material at this point so hopefully I'll just squeak by.

Thanks again for everyone's support.  You guys are amazing.


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softy
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Date Joined Jun 2004
Total Posts : 798
   Posted 11/22/2007 2:33 PM (GMT -7)   
Update Sarita ... did you get any results?
Take care, Softy
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 11/22/2007 11:44 PM (GMT -7)   

Hey softy and everyone...when I went back to the GI last week he brought in a couple of other docs who poked and prodded and did all the things I am being trained to do myself.  They went ahead and booked me for a small bowel enteroscopy (a glorified EGD) and colonoscopy, which I did on Friday.  Still waiting for biopsy and blood test results. 

The GI seems to think these symptoms are a result of disease of the small intestine.  Usually such an immense volume of diarrhea points to small bowel pathology.  However, it's hard to get a good "picture" of the small bowel...thus a more difficult diagnosis.  The fact that I have Grave's disease complicates it more.  The autoimmune diseases can really mess you up.  The malnutrition/electrolyte abnormalities/dehydration seem to be affecting me more by the day, with ridiculous bruising, chalky skin,

My personal opinion is that it's likely a case of lymphocytic colitis or something similar, but it may be difficult to pin down due to its location.  We might try a trial of an ASA drug or other IBD med if the tests don't yield anything helpful.

To try to slow down the diarrhea I am taking calcium polycarbophil (FiberCon) and supplementing the ol' diet with Culturelle (a blended probiotic), Omega 3-6-9, and a multivitamin.  The doc referred me to a hematologist who might have a clue about the bruising, although that is the least of my worries at the moment.

School starts again in a few days.  I passed all of my classes except one, which was literally by 4/10ths of a point.  Will have to re-take it over the summer.  I thought about arguing that but don't want it to make it seem like I'm trying to milk this illness.  Definitely makes life more challenging but in the long run, nothing you want so badly should come easily anyway, right?

Thank you all for listening and for your support.  I'm sorry I haven't been around so much, I've been posting a lot on the Crohn's board lately.  Not that you guys aren't amazing :) Just need a bunch of perspectives on the same old problem, you know?

 


Co-moderator - IBS Forum

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