sub total colectomy for IBS with constipation

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Marie3
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/8/2007 3:16 PM (GMT -7)   
I recently had a subtotal colectomy for IBS with constipation.  I do not know what to eat and recently was told that I would always have to take extra fiber to fight constipation.  I am frustrated and angry!  Currently, I am in pain in my left lower abdomen after a bout with constipation.  No one seems to be too worried about that but it isn't getting any better.  I am frightened and don't have anyone to talk to.  Can someone give me some feedback?  I don't know where to get support!

spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 11/8/2007 3:43 PM (GMT -7)   
Oh did you have all the colon removed?

You can go on the Ostomie forum Marie.They also have knowlege about colectomy.

Have you been tested for pelvic floor dysfunction?You know,if the rectum still there,he migth be in "spasm" causing C...
-IBS-A,C with meteorism(trapped gas) and pubic burning-


Marie3
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/8/2007 5:11 PM (GMT -7)   
no, I had the re-attachment. I have the sigmoid colon left. Does anyone else still have to take extra fiber? Does it give you gas? I have not been tested for pelvic floor dysfunction. What is that?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/8/2007 5:21 PM (GMT -7)   
This link will explain pelvic floor dysfunction...
 
 
After reading it I wonder if I myself may have this to some degree, just another thing ontop of my crohns and IBS.
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Marie3
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/8/2007 5:29 PM (GMT -7)   
Thanks for the link. It doesn't sound like that's an issue for me. Right now I'm just under two months since surgery and I'm in pain and finding that I don't know what to eat and taking extra fiber or I get constipated. I'm wondering why I had the surgery at this point!

spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 11/8/2007 9:54 PM (GMT -7)   
Marie3 said...
no, I had the re-attachment. I have the sigmoid colon left. Does anyone else still have to take extra fiber? Does it give you gas? I have not been tested for pelvic floor dysfunction. What is that?
Oh yeah fibers is a problem for IBSers in general...
 
Explain your surgery please!
 
 
-IBS-A,C with meteorism(trapped gas) and pubic burning-


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 11/8/2007 11:28 PM (GMT -7)   
Fibre is very necessary for IBS (IBD too), it takes time for the system to adjust to fibre typically causing extra gas and bloating, but once your system adjusts these symptoms will disappear...fibre helps with C and D and it's important for the intestinal tract.

Plenty of water must be taken with fibre supplements, one should drink plenty of water regardless as it has it purpose as well with digestion.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


foreverfull
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/14/2007 12:13 PM (GMT -7)   
Hey, Fiber never ever worked for me. My doctor said sometimes too much fiber will backfire, who knows. Try Activia, Caltrate D and tons of water- works for me! Good luck

Marie3
New Member


Date Joined Nov 2007
Total Posts : 4
   Posted 11/14/2007 7:03 PM (GMT -7)   
Thanks for that info. I am still getting constipated taking 2 Fibercon tablets twice a day! At first, dairy ran through me. Now it seems to give me a stomachache. I am drinking a lot of water and I think that is helping the most. I am so frustrated!!! They just keep telling me that it will take 3-6 months for recovery. I'm just 2 months post surgery. Does time really help?

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 11/14/2007 10:35 PM (GMT -7)   
I don't know much about it but it sounds like pretty extensive surgery that will take a lot of time for all the nerve endings to heal and regenerate.

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 11/15/2007 5:42 PM (GMT -7)   

MARIA - First let me invite you over to the TOTAL COLECTOMY thread under "OSTOMIES" where you will find a wealth of information.  Please come and join in there!!!

I had my colectomy one year ago on November 9th.  Everything was going well up until April/Mary of this year when I began to slow down considerably on my bm's.  Of course my first thought was "oh great - not this again", however, after seeing my surgeon and running a host of tests to rule out anything serious, he recommended taking MiraLAX "again" daily.  It can be bought OTC now and it has improved my situation.

If I were you I would stay clear of ANY fiber supplements.  It can and does cause the opposite affect in a lot of people, especially since our small intestine is our way of transit now.

I will tell you that you're still very much in the beginning stage of the healing process, even two months post-op.  For me personally I didn't begin feeling "normal" for the first four months post-op. 

I hope you find your way over to the "OSTOMIES" thread and find the "TOTAL COLECTOMY" link. 

 


Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 

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