Hi Elizabeth and Welcome!
I am always on the Ostomies forum and have formed a wonderful family their. I'm so glad that this forum has been started. I have chronic kidney stones and have a slight decrease in kidney function. I totally understand your pain . I'm having surgery yet again tomorrow to remove a nephroscopy tube that I've had in since May 7th. I got c difficile following that surgery because my urologist over medicated me with antibiotics so I now have a new urologist 3 hours away. He's removing the tube, a stone and finding a blockage that I have in the kidney and putting in a stent. I usually get stones each year but they seem to be getting progressively worse; I'm hoping this new dr can find the cause and help prevent them.
I'm looking forward to talking with others that have similair experiences so that we may learn and support each other.
I wish you the very best!