I too have chronic stones. My previous dr said that I pass them all the time but I have had to have them surgically removed at least once a year for the past 5 years. This last bout of stones has been going on since February. As a matter of fact, I'm having surgery again today, this has been the 3rd time since March. I had lithotripsy done then and 2 came out, then on May 7th I had a nephroscopy done, they found numerous and placed a tube in my back; following that procedure I got c difficile due to getting too many antibiotics; I had a subtotal colectomy last July so I have to be very careful with antibiotics.
Was rushed to my colectomy surgeons hospital where a new uroligist placed a new nephroscopy tube, said I had a blockage and got an infection also have stone in ureter, was placed on antibiotics, probiotics, and super yogurt 3 xs a day. So now am finally going to have tube removed after all this time, stone removed, stent put in and blockage found.
Have been told in past my stones were uric acid ones and given daily meds to take, also told to aviod spinach and tea; other than that not much else. My new dr says will do complete workup once c diff is gone to figure out what to do; supposedly he specializes in stones and he trained under the dr who invented the nephroscopy procedure sooooooo I'm hoping that this time he will figure something out bc it gets a little tiring doing this over and over again not to mention PAINFUL .
I am looking forward to hearing what others have to say also.
My new dr may have finally found the reason why I keep getting stones! When he went in to take out my nephroscopy tube, he couldn't because my ureter had closed up with scar tissue. He says I was born with a narrowing of the tube and over the years because the urine has built up in my kidney causing stone formation which in turn has caused scarring in the tube it has finally closed so now there is no connection between the kidney and the ureter.
He is going to try to laser through it next week and put in a larger syent for 6 weeks to keep it open. He's about 75-80% confident it will work and 90% sure I won't get any more stones. I'm not quite sure about the 75-80% part but I like the 90% no stone part. We are going to discuss it more.
This is my 5th dr including a nephrologists and my last 2 besides putting me on HCTZ and Lotensin because my kidneys weren't functioning properly told me I needed to drink more because after my 24 hour urine test I didn't have enough output. Well I always drink between 1 -1 1/2 gallons of fluids a day so this dr said they were way off the mark and should have looked into it further.
I will keep you posted as to how things go, but if this guy is as good as he seems then I will tell you all to do what I did when I couldn't find a dr to help me with my GI problems; be your own advocate and keep looking because there is a dr out there that can help you and things can get better!
I wish you all the best and am looking forward to chatting with you,
I'm alittle concernes that you doctor is giving you so much hope that this will more then likely fix the problem.....
I have also had many stents getting bigger as we go. Yes they will decrease the pain of the obstruction for making it bigger the stones can drop out easier. I just don't want your bubble to be popped..lol I will admit it does help I'm just not sure its going to stop you from creating more stones.
Please keep us updated I would really like to follow this and see how you respond to the treatment.
PS If it does stop the creation of stones if I were you I'd kiss your doctors big toe....
Thanks for the best wishes and I am surely not thinking that this is the end. But I do always have hope that after gone through so many drs someday I may have found the right one .
I know there is not a 100% guarantee with anything but he is the first in 5 that has even given any remote possible reason for anything that I've had wrong with the kidneys.
I will keep you posted and hopefully it will be a positive outcome.
After I looked at it more closely it looks like he has given you a chance with his treatment, permanently dililating the uretur will ease the pains. I know that I feel so much better. I just have to tell the ER docs if I do pass a stone that when they do the CT scan that they will find the uretur larger so not to scare them....LOL
I'm so happy you found a doctor who is willing to at least find solutions to a painful condition..... Can you send him to Tennessee
Post Edited (momto3) : 6/27/2009 8:03:53 PM (GMT-6)
Kidney stones can block off the flow of urine; this could be the cause of your daughter's lack of urinating and pain. I wouldn't wait until tomorrow morning, if the urine gets blocked completely, it's can cause severe pain. I have an extremely high tolerance for pain but when mine was block I wouldn't wish that pain on my worse enemy. I would call her dr and mostly he/she would advise to go to the er.
I hope she will get some relief soon; I'll say a prayer for her.
As for the migraine/kidney stone connection; I've never put the two together but I used to suffer from frequent migraines. It took my neurologist a long time to find the right meds and dosage to get them under control. I now take 3 meds daily & 1 med when I have a migraine.
Let us know how your daughter is,
All I can say is WOW.
Vickabee I was just a few years older (18) when I started with bladder and kidney stone issues. I will tell you from personal expierence to stay on the doctors about all this.
Irishmom4 is so right with what happened to her SIL and these things can get out of control really fast.
I hope you SIL is doing better now?!?!?!