Kidney Stones without pain

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Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/17/2009 8:01 AM (GMT -7)   
Have any of you been diagnosised with kidney stones and not realize you have them? During my last two CT scans they said I had kidney stones. I wasn't in intense pain so I find this very odd. I always have right side flank pain but nothing I need meds for. My nephrologist thinks it's a cyst that is being aggravated and nothing to worry about.  Just wondering??
 
Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/17/2009 12:19 PM (GMT -7)   
I have blocages all the time. From stones to tissue some hurt from 1 - 10 then some are a 0. It all depends how big the blockage is and if urine can still pass without effort. If the blockage is large enough you can't pee which causes a back up of urine in turn causes pain. If urine can still somewhat flow the pain is not as intense if any.

I also thousands of cysts, Yes sometimes cysts can look like blockages or stones. They can go away with time if not and they obstruct your urine flow and cause some pain if not alot.

Laurie

PS I have also had to go through 3 urologist to find the right one. I don't like to hear it could be I want to know for sure. Urologist are just like your regular doctor, there are some good ones and some that are full of bull...lol
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/17/2009 3:49 PM (GMT -7)   
Laurie,
 I'm glad to  have someone to chat with. I have both PKD and Crohn's disease so sometimes it is very confusing when I'm not feeling well.  I feel like a tennis ball going back and forth between my GI and nephrologist. I went to my nephrologist for a 6 month check up yesterday and he said I looked like a million bucks. All I could think was.... then why do I feel so fatigued and worn out? And why do I have this constant right side flank pain? He said my creatin wasn't normal but it hadn't changed since my last appointment and that my bp was good after increasing my bp meds. He doesn't take my crohn's disease seriously and thinks that if I have good muscle tone and in my legs don't look like I am wasting away than all is well. At one point he said "at least it keeps you thin".    Sorry about the rant...
 
So how long have you known about your PKD? I was diagnosised in 1995 when we found out my dad had it.
Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/17/2009 4:46 PM (GMT -7)   
Tennis ball is a great comparison.  I have a heart condition also so between cardiologist, pain specialist, nephrologist  and urologist I feel that way also.  My nephrologist is the same way he always says I look good and states where the condition is at that moment.  Usually he asks about my pain level and how the PM doctor is treating me.  He understands PKD can be painful on many different levels so many things can cause us pain.  He was the doctor who gave me the referel to the PM.
 
I always have flank pain.  I hurt when I pee in the AM!!!!!BAD 
 
I take 4 different BP meds for I have Severe Genetic Hypertension (Wonderful genetics..lol).  Its never really under control.  Last night I was in the hospital the the cardiologist wants to check my renal arteries.  Have you had yours checked?  He said with high bp and pkd could be a big re-cursor for dysfunctional renal arteries.
 
No problem on ranting I have done a few of them myself on Chronic Pain forum..lol
 
I have always had cysts on my kidneys but they never said anything about them.  Doctors always said it wouldnt bother me.  Well then why do I hurt all the time?  There was a time frame where a few of my doctors didn't care to treat patients any longer they just wanted to bring them in and push them out for their paydays.  Never really following up on any of them.  2 years ago a urologist finally did a CT scan and found thousands of cysts but didn't think it was a problem even though my mother had PKD.
 
I then went to another urologist for a 10th opinion.  (it seems)  He wanted to go in and look around.  He realized I was in pain and my bp was out of control.  In december he went in and placed a stent in and backed right out of the left kidney without looking at the right one.  His finding were impressive.
 
He entered a cysts when he went in.  The fluid was a milky white showing infection.  The walls of the kidney was slough or shedding. I had black spots every where along with so many cysts he could even begin to count.  Scar tissue was everywhere from so many stones, blockages and stents.
 
So I've been Dx'ed now for 7 months but have had it active they think for years.
 
My path of treatment has been long and stressful.  Been accused of being a drug seeker and a hypercondrace (? spelling).  Now its all on the table we can start a treatment plan.
 
Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/18/2009 11:26 AM (GMT -7)   
That sounds like my path through Crohn's. I was diagnosised when I was 22. I had severe diarhhea and lost 20 lbs.I started taking meds and it seemed to calm down. I had 2 kids and was in somewhat of a remission for the next 12 years. Then came the severe abdominal pain that sent me to the hospital to obtain pain meds. The ER docs said it was a virus and thought maybe I was a pain med seeker. I began to feel guilty for going to the hospital. But the pain was just like being in the end stages of labor and I couldn't control my vomitting. Finally after one visit to the ER they admitted me and called a GI. (after 16 hours of lying there in pain and puking) He was outraged. Here I was having total bowel obstructions and they were blowing me off. To make a long story short..... I tried meds for 5 years but couldn't handle them so I had a bowel resection about 3 years ago. I thought it would cure me, but I have been having issues for the past year. And to top it off now my PKD decides to give me grief. They want me to take Remicade infusions, but I am having a difficult time wrapping my brain around it. I am a teacher and love my job and I know that I won't be able to work much longer if I don't do something. If I was an outsider looking in I would think I was an idiot for dragging my feet.

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/18/2009 4:19 PM (GMT -7)   
Elizabeth I have had the same thoughts about work also. I love my job I am in inventory control in a warehouse. Yes its hot, dirty and alot of physical labor but I love to climb into the racks and see if the numbers match up. With my nerve damage and PKD it hurts like heck most days but when I get home I feel good I made it through another day. I feel if I give up working I will give up some control in my life. I can't control the PKD or my BP but I can control waking up in the morning, drinking my coffee and getting to work before the sun comes up.

Yes it seems like that for me also about dragging feet. I don't think its really dragging our feet we know its going to be there tomorrow that its not going anywhere. We can only handle so much I believe most people would fall apart I think we are the chosen....lol

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/19/2009 2:10 PM (GMT -7)   
My dad was a great role model for me. He had severe PKD and would actually do home dialysis (Continuous ambulatory peritoneal dialysis (CAPD). He would drain the fluid into his body, go to work, and then a few hours later he would drain the urine back into the bag. Most of the time he would actually drain in the car on the way to a job. He never complained. He had a kidney transplant and was back to work part time within 2 weeks. No one could keep him down.He ended up having a fatal heart attack a few years later. I wish he was here now so I could ask him questions and have someone to commiserate with. I miss him greatly!!

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/19/2009 4:46 PM (GMT -7)   
Wow your dad was one strong man. I don't even think I could do half as much as he did. I bet you do miss him! I miss my mother also she dies 7 yrs ago when I was 32. So I understand.

Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all

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