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LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/27/2009 10:12 AM (GMT -7)   
Your having your stent put in on monday..  Please post and tell us how your feeling?
 
Laurie


39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/27/2009 2:58 PM (GMT -7)   

Laurie,

I won't be home until Wed. because they keep me due to the c diff. but I will let you know how things go.

Thanks,

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/27/2009 3:14 PM (GMT -7)   

I will be lurking around until you get out.. turn

Hope all the nurses won't wake you up to many times during the night to take your vitals... smhair    I always hated that.  Plus they will never let you go out for a smoke either... smilewinkgrin

Laurie


39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 6/27/2009 4:08 PM (GMT -7)   
Laurie...I am SHOCKED!!!! nono I can't believe you smoke..hasnt your kidney doctors gotten onto you about that...Sorry, don't really have room to talk. I am currently working on quitting but it isnt happening as quickly as I would like. I have a scrip for Chantix that I will probably get filled soon to help assist me. I have tken it before and it worked great!
 
And Judy...I hope everything goes well on Monday for you and will say several prayers throughout the day!!! Let us know how things go :)


Amy

 

21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 6/27/2009 4:13 PM (GMT -7)   

Yes all my doctors lecture me.  All four of them.  I ended up in hospital last week with my bp through the roof.  The cardiologist came down and told me when it gets that high it feels like a heart attack.  He first statement was "Gonna quit now?"  I said no my husband said yes.  So he wrote the script for chantax.  I took that 2 yrs ago and quit for 1 yr.  Now I have to fill it again.  costs 100.00 and insurance doesnt cover it...

Laurie


39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/27/2009 8:02 PM (GMT -7)   

Laurie & Amy,

You SMOKE!!!!!!!! What are you thinking?????  Ok I won't lecture , I'm sure you hear it from everyone.  Just want to say thank you for the prayers; I'm finally set in my mind that this is the best thing to do - laser - instead of open me up so that I can go into this with a positive attitude.  I too pray that this will work and that I will be able to return to school in the fall.

I will let you know how things are when I get home smilewinkgrin .

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/28/2009 5:26 PM (GMT -7)   
Good luck!! I will be praying for you.
Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/28/2009 6:43 PM (GMT -7)   

Thank you for all of the thoughts and prayers; I will let you know how things are when I return on Wednesday.

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/1/2009 5:40 PM (GMT -7)   

Hi Girls,

I got home today at about 2:00pm.  According to the dr, the surgery is a success so far.  That is, he was able to laser through the scar tissue.  He put a jj stent in and feels it will stay open even after he takes it out in 6 weeks.

I will say that I am extremely uncomfortable, having continuous spasms as well as pain.  Am taking ditropan and levsin for the spasms and vicodin for the pain.  I haven't had the joy of a stent before so if any of you can give me some info as to how long the spasms last and how long the overall discomfort lasts I would appreciate any input.  I have a lot of discomfort while urinating which I expected but also have a huge amount of discomfort when I have a bm which doesn't help seems I have frequent ones due to the colectomy and c diff, is this normal?

Thank you for all of your prayers and well wishes; it's very comforting knowing that we are all here to support each other.

Judy 


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/1/2009 5:52 PM (GMT -7)   

Judy,

I am so glad to hear that everything went well. I wish I could give you some advice but all I can pass  on is my best wishes.  I know you must be so glad to have it over with and to be home. Get well soon!!! yeah


Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/4/2009 6:05 AM (GMT -7)   
I was worried about the spasms....  Sorry I haven't posted I have not been feeling well and was working.  I'm so happy the surgery went well and that your home in your own bed now.
 
I have had so many I that I cringe everytime they bring it up!!!!  I hope your spasms and pain goes away but I had it the WHOLE time I had the stent in this last december and everyone before that even the one I rejected that coiled into my bladder.
 
My doctors all told me that everyone is different but most people's bodies all try to reject a foreign object.  Its a very uncomfortable thing to endure but I did get alot of relief after it was removed.
 
I will also tell you to opt to be put back under to get it removed.  I've had the choice the last decade but before that in the old days they would just pull it out in the office!!!  PAIN!!!!!
 
If the spasms get really bad ask for another stronger med that numbs the bladder also.  One med turns your urine orange another turned it blue I like the blue better.
 
Laurie
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 7/4/2009 12:11 PM (GMT -7)   
Hey Judy! Glad everything went okay...when do you go back to the doc to find out how everything is coming along? I hope you are feeling better and not in as much discomfort. Thanks for letting us know how things went and keep us updated???
Still thinking and praying about you :)

Amy

 

21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/4/2009 1:53 PM (GMT -7)   

Hi Girls,

Thanks for all the prayers.  I don't know when I see the Dr again, I thought he said when I get the stent out in 6 weeks, but my paperwork from the hospital said 1 week.  I have to call on Monday and ask.

I pretty much figured I'd have spasms the whole time because when I had stones removed before I would have spasms for 3-5 days following that procedure.  I just didn't know they would be this strong.  My Dr wasn't in when I called about my discomfort so the PA said I could take the ditropan every 6 hours instead of every 8 and he ordered flomax.

I am still very uncomfortable and will call to ask about the med that numbs the bladder.  I will also discuss the removal of the stent with him; I'm not going to let him do anything barbaric although he is very well trained as he does a lot of robotic surgeries and trains other to do these; he also trained under the person who invented the percutaneous nephroscopy procedure.

I will keep you posted as to how things are going.  Thank you for the continued prayers.

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/12/2009 7:01 AM (GMT -7)   
Ok time for an update.  How are you feeling with that rubber inside of you????
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/12/2009 7:09 AM (GMT -7)   
Finallyfree

I just read your signature. Wow it sounds like you have had your hands full. I also had a hysterectomy at 24. My husband had 2 shoulder surgeries that failed. His arm in frozen again! Monday he sees a new orthopedic doc. Did yours ever unfreeze???

Just curious...

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/12/2009 7:56 AM (GMT -7)   
Laurie,
 
Here's an update on my stent: It s###s!!!!!!!! It spasms even though I'm taking 2 different spasm meds every three hours and vicodin about every 4 hours.  The spasms have slowed down a TINY bit but as soon as I do the littlest thing they start back in full force.  Yesterday I went out to lunch with my husband & daughter then went shopping but had to leave the store and go sit in the car because the spasms got to be too much.
 
I'm trying to space out my meds further to tough it out because I do have a high tolerance to pain but then it takes longer to get the spasms under control.  Oh well, 4 more weeks and counting....
 
Oh, I do have a question and it's kind of personal/graphic but as you will learn on this forum anything goes and people are willing to answer just about anything; anyway when the meds are wearing off and I sit down it feels like the stent is right in the end of my tube like a tampon that hasn't been put in all the way and it hurts.  I don't know if this makes sense but it's kind of hard to explain; I was just wondering if this was a normal feeling?  It doesn't always feel that way, just sometimes.
 
Thanks for any advice or info,
Judy 
 
 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/12/2009 8:07 AM (GMT -7)   

Laurie,

My shoulder didn't unfreeze so I had to have it manipulated under general anesthesia.  It was so frozen that I couldn't even reach over to do the Pledge to the Flag with my class or brush my teeth with my right hand and I'm right handed.

After I had it manipulated I made great progress with it.  It was a long and gruelling process though; from start to finish it was almost one year to the day.  I was in therapy for 3 days a week and I have an extremely tough therapy group, they don't "baby" you at all and there were times when I just wanted to smack them but I didn't because I knew they were helping me smilewinkgrin .

I now have almost full range of motion and strength and contribute its success to my PT group.

I wish your husband the best, its a very painful surgery and takes a long time to heal but it is POSSIBLE yeah .

Take care,

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/12/2009 3:19 PM (GMT -7)   
He also had the munipulation surgery and they ended up cutting him back open.  Scar tissue is his enemy right now.  He felt his PT was to kind so hes getting a different PT clinic.  He wants aggressive therapy.  Tomorrow we will find out.
 
I'm glad you made it through smilewinkgrin
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/12/2009 7:22 PM (GMT -7)   

Laurie,

Scar tissue was my biggest enemy also.  When I had my manipulation, my therapist had me come over that afternoon to begin therapy.  They did extensive therapy on me after the manip; they started slowly at first but quickly increased it.  The worst thing that they did was I was using a pulley and they strapped a thick belt around their backside and my shoulder then they pulled down with their weight as my shoulder went up, this is what gave me the best range of motion.  It was probably the most gruelling thing ever but it worked.

If your husband can find a pt group that will really work on him and not "baby" him then he should do fine; also make sure he does the exercises at home.  Does he have a pulley at home, if not see if he can get one from the pt place; or the elastic bands are also very good to use.

Good luck tomorrow!!!

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/17/2009 6:41 AM (GMT -7)   
Ok you never told me how your feeling with the stent in.. yeah
 
He went to the new doctor and they told him due to the excessive scarring he needs  really tough PT.  He starts that Monday.
 
He had a chair delivered the night of his last surgery even before he got home.  6 hours a day of constant moving.  It looked like a torture device. smhair
 
He also has the pulley system and a few other contraptions.  The new doctor is hoping with aggressive PT that in 6 weeks it should unfreeze.  If it doesn't we might be looking at surgery number 3.
 
Now post on how your feeling...lol
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/17/2009 8:04 AM (GMT -7)   
Laurie,
I hope everything works out for you hubby. It sounds like he has a lot of work ahead of him. My daughter also had a torture devise when she had knee surgery. Immediately after the surgery we went into her room and they had her strapped to a machine that bent her knee and kept it in constant movement. It made me sick to my stomach just watching it. After she was discharged she had to have it on 8 hours a day. That was the biggest struggle of all. When we took back the machine we celebrated. lol

Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril, Have been flaring on and off since August.
 
I love my life and everyday I pray that my body cooporates and allows me to do what I have planned.


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/17/2009 10:51 AM (GMT -7)   

Laurie,

I feel for your husband sad ; I know just how it feels, but if he can get it loose then he can progress very quickly.  I posted on the 12th about my stent; it is somewhat better now.  I don't take as much pain medication but continue to take the spasm meds around the clock.  I will be celebrating on the 11th when this THING is finally removed!!!!!!!!!

Thanks for asking and I will say a prayer for your husband,

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/19/2009 10:09 AM (GMT -7)   
Those dang bladder spasms will get you everytime...lol  I just can't stand stents everytime they bring it up I always say only at last resort....  We all will do the happy dance for you on the 11th..lol
 
yeah   yeah yeah yeah yeah
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 8/14/2009 6:50 PM (GMT -7)   
So is the stent out yet?  Seems like it should be time....
 
Boy you will be happy when it comes out.
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 8/15/2009 8:24 AM (GMT -7)   

Hi Laurie,

I finally got the stent out Tuesday.  Why didn't you tell me it was almost 12 inches long and had a ring on each end the size of a nickel?  When he took it out it only took a few seconds but felt like he was pulling my insides out.  He asked us to stay in the area overnight because we live 3 hours away in case there were any problems and he gave me his cell number.  It was a good thing we stayed because  I started with back pain a couple of hours later.  His office was still open & they said that would be normal for a few hours so to just take some pain meds; I did that but continued with the back pain throughout the night.  He ordered a ct scan for me and the dr that read the scan told him I had a blockage so he ordered surgery for Thursday to go up & put the stent back in. Well, let me tell you, I was ready to do just about ANYTHING to not have that stent put back in; I was going to pay him off, send him on vacation, ANYTHING!!!!! So,  when I gave him the scan on Thursday he didn't see a blockage but wanted to go up & see if the tube was working okay.  Boy was I HAPPY!!!!  He did the cystoscopy and didn't find any blockage, just a small narrowing in the tube in a different area but it was working great; he kept me overnight because it was so late - 8:00 pm when he got done and he wanted to do a renal scan the next day.  Did the renal scan and things are good came home Friday evening, still have back pain but not as bad, I am thinking it's from the stent removal.  But am soooooo glad to finally have this over, it's been a long three months and I really need to get well so I can get back to school in a couple more weeks.

So, hopefully no more stones and I will be seeing the dr in a month after some bloodwork and another ct scan.

Thanks for asking and I hope you are feeling well.

Judy  


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)

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