Went to Nephrologists...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/22/2009 8:10 PM (GMT -7)   
Hey y'all!  I went to the nephrologist today.  I was so disappointed!  I am spilling protein majorly again.  It was 4,000mg in a random sample!  My creatinine had crept up a little, it still isn't bad as all considering I was end stage just as recently as March!  Anyway...she wants me to double my cellcept and she added vasotec.  We are hoping and praying it arrest the protein spillage!  Hope you are all well!  God Bless You, Judy

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/23/2009 3:27 PM (GMT -7)   
I'm so sorry you didn't get better news at your appointment as you have in the past. I hope with her altering your meds that it can get it back under control.

You will be in my prayers
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/23/2009 5:21 PM (GMT -7)   
Thanx Laurie! It could definitely be much worse! Judy

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/23/2009 6:59 PM (GMT -7)   
I hope the med change does the trick.
Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril,
 


KidneyKid
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 7/23/2009 7:39 PM (GMT -7)   
Sorry to hear your appoitment did go as well as you wold have liked. Since I'm new to this group, have you had a kidney transplant? This is kind of a personal question but when you urinate, is your urine foamy? My urine is very foamy and my doc has told me that it’s from protein.

If your urine is foamy from protein, is that why you are taking those meds? My doctor has never suggested anything to help with the protein leakage.
52 year old female
Diagnosed with PKD 1995 (Wow!  Time flies!)
Inherited PKD from my dad
Not currently on dialysis


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 7/24/2009 4:26 AM (GMT -7)   
Hey Judy, I am so sorry you have to go up to 2 grams of cellcept. That is what I am currently on and for me it is a living nightmare. The whole hair loss, tons of nausesness, shaky, and a few more personal things. ugg I really hope you will tolerate it better this time and that this does the job so you can avoid dialysis again.! I will be praying hard for ya and sending you hugs!
 
Hey KidneyKid, for me, the way know I am usually spilling protein is it gets really foams/bubbly and my urine also starts to turn cokish color. Not a normal looking p at all! How are they gonna treat the protein for you? Is your function staying up? I really hope it is!!!

Amy

 

21 years old...Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


KidneyKid
New Member


Date Joined Jul 2009
Total Posts : 12
   Posted 7/24/2009 7:53 PM (GMT -7)   
My doctor never really said anything about doing anything for the protein. Its funny because when I was told that protein can cause foamy urine, I was surprised. I've had foamy urine for so long that I just thought everyone did!

My creatinine is at 7.0.
52 year old female
Diagnosed with PKD 1995 (Wow!  Time flies!)
Inherited PKD from my dad
Not currently on dialysis


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 7/25/2009 9:06 AM (GMT -7)   
((((((Amy))))))) The cellcept is rough for me too. I've talked to other people who tolerate so much better! uUUGGG!!!

I have never had a transplant. I do qualify, but unless I go back on dialysis i'm not really wanting to do it. I'm thankful it's an option though. My urine is very foamy and I go to the potty alot during the nite when I have protein. I also swell more, specifically around my ankles and eyes.

My creatinine did go up just a tad from 1.8 to 2.0! Which is still fantastic for me! My creatinine was 8.0 when I started dialysis.

They have been checking my protein when I submit a urine sample. Also, she'll do a 24 hour urine and check the protein.

Thenk you all for your care and compassion! We gotta stick together don't we? God Bless You all, Judy
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 9:13 AM (GMT -7)
There are a total of 2,734,678 posts in 301,234 threads.
View Active Threads


Who's Online
This forum has 151347 registered members. Please welcome our newest member, Marie34.
370 Guest(s), 10 Registered Member(s) are currently online.  Details
Bololidat, Chanymom, mikeb2308, astroman, Loutucky, LG13, iho, NiceCupOfTea, pmm73, joavila92


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer