forgot I would like to welcome you the HealingWell forums. This forum on Kidneys is very new but we will grow in the near future.
I can help you with this but I also want to say all of us on the forums are not doctors but we are here for advice and support. Plus most of us have medical history similar to yours.
I had my first stone when I was 18. Put me in the hospital for 10 days. It is now 21 years later and it took me 19 years to find out what was going on with my body. Regarding your statement that you feel you haven't gotten all the answers that you needed is so close to home for me. I never seem to get all the answers maybe I will never or maybe I'm just not satisfied with the ones I'm given.
First off I would ask for a 24 or 48 hour urine collection if you haven't all ready done it. Second if the stone is still there ask if you can have it hooped, surgicaly removed and have it tested for its base. Most stones are calcium based in turn they tell you to decrease your calcium intake. I did this and never helped. You stated you had sand they called it crystals with me like little shards or slivers inbeding into the walls. They collect at the point where the tube meets the kidneys. I guess doctors use different names to discribe the small particals.
I'm impressed that you made the connection with the cyst to which part of the brain controls what functions. Seems to me you have done some wonderful research. In my opinion any type of abnormality to certain parts of the brain would or could cause issues. That would be a great question for the neurologist....
If you have anymore questions or just want to hang around please do
Kidney Diseases and Disorders
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all