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LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/28/2009 2:43 AM (GMT -7)   
Hey everyone gotta question for all of you.
 
My PKD has been on a rapid increase over the last couple of years.  I have been seeing a pain clinic for about 6 months now.  So far with 9 nerve blocks and pain meds its been tolerable.
 
Well the last month sleeping has been terrible....  Everytime my husband rolls over my kidneys scream at me.
 
Does anyone else with PKD feel this or could it be the nerve damage reacting with the movement?  I think this question will be at the top of my list when I go in for my refill in 3 weeks.
 
I hope everyone is having a wonderful week.  I'm off to work again  smhair
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 7/28/2009 4:37 AM (GMT -7)   
Laurie,
I am so sorry to hear you are having problems sleeping. I know it must be hard to work when you don't get enough sleep. It can make for very long days.

I don't have much pain at night unless I forget and roll over on my right side or if I have had a very active day. It is sad, but I try to stay as far away from my husband when we sleep as I can.
Hopefully someone with more experience will come along today to answer your question.
Elizabeth
Dx'd with Crohns 1984 and polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, folic acid, and Enalapril,
 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 7/28/2009 3:03 PM (GMT -7)   
Thank you for your response. Its just getting annoying having to worry about sleeping next to him...

So sad

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all

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