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racinrays
Regular Member


Date Joined Aug 2009
Total Posts : 36
   Posted 9/7/2009 2:57 AM (GMT -7)   
Hello everyone I am new to this site! Carried myself to the ER the other night come to find out I have a kidney infection, had this pain that when I moved I though I was gonna curl up and cry. The reason why I am posting this my friend was like wow you have a kidney infection she was like have you been tested for lupus.... I was like no but enough about that for the past month and a half, I have been extremly tired, always feeling like I am sick but they can't find nothing, muscle cramps/twitches and the most concern is the dizziness!  So the entire time I have been feeling like this when I started CIPRO for the infection kinda felt alittle better but then the dizziness came back! I do I ask them to run test on my kidneys?? I am so lost, I am always cold on top of the other symptoms that just wont go away, not sure what to think!! Please help if you think that I worried for no reason tell me I just need to know what questions I should ask what test they need to run..............

Ronee'

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 9/7/2009 5:47 AM (GMT -7)   
Hey Ronee...I have lupus and kidney problems due to lupus. I am pretty sure that Lupus Nephritis does not cause pain until End Stage Renal Failure. I am currently in class 4 and have no pain in my kidney area. Are you having any noticable blood in your urine? Is your urine frothy or foamy?Are your ankles swollen (edema) Do you get up several times during the night to use the bathroom? I knew something was wrong because my urine had turned a coke color but most of the time you do not know until you get blood work.
 
You could ask them  to run some tests. They will probably do a Urinalysis which will check for blood and protein in your urine, which is a sign of kidney damage. Also probably take a tube or 2 of blood because the kidneys remove waste materials like creatinine and urea from the blood. If the blood contains high levels of these substances, kidney function is declining. Your doctor should estimate your glomerular filtration rate based on your creatinine score.
 
I would also suggest maybe visiting the Lupus forum at Healing Well. There are a lot of veterans to lupus over there and they are very informative and understanding. about the Dizziness, I have this all the time...I think mine is a side effect of meds. Are you on any other medications? Are you having any other symptoms? Rashes? Joint pain? Photosensitivity? Fevers?
 
If you are worried about Lupus, The tests they will run are listed on the www.lupus.org. Then click over learn about lupus at the top  left and labortory tests. This website is a great website with tons of info...
 
Hope this helps a bit!

Amy

 

Systemic Lupus , lupus nephritis , and a lot of other stuff associated with Lupus!

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril,  Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 

Post Edited (aimsgirl16) : 9/7/2009 6:52:24 AM (GMT-6)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 9/7/2009 8:53 AM (GMT -7)   
Welcome Ronee to our HealingWell forums.  Its wonderful to meet you and I wish it was under different circumstances.  You will find out all the forums here are very supportive and informative.
 
Now onto your post.  First of all you should go and ask for a complete battery of tests.  Incuding kidney function.  Amy is right you should go and visit the lupus forum they are wonderful people over there.  Kidney infections can be very painful I've had so many I have lost count.  Each time you have an infection scarring will occur.
 
If you ask for a complete battery of test its should help find answers to some of your symptoms.  I get muscle cramps but its due to taking lasix then my potassium level gets low then I
have to take supplements.  I get dizzy but its the side effects to taking so many meds.  So you see your symptons can come from many different areas.  If you tell your primary he can run tests across the board to see how the results come out.
 
I wish you luck and please keep us updated
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


ErinG
New Member


Date Joined Jul 2009
Total Posts : 13
   Posted 9/14/2009 9:14 AM (GMT -7)   
Hi Ronee,
 
I have Sjogren's Syndrome and I had a lot of the symptoms you mentioned before I was diagnosed (fatigue, cold, just feeling unwell).  I had recurring UTI's and kidney infections but my old doctor never ran a blood panel or a urine culture.  I used to get leg and foot cramps every day, but they have subsided since I started on potassium supplements for low blood potassium.  My kidney disease is caused by the Sjogren's syndrome.
 
Have you had a physical recently?  I didn't know I had reduced kidney function until I had a physical last year and my (new) doctor got the results of my blood tests.  You might want to schedule an appointment and tell the doctor all your symptoms, and she/he will order tests to see what's going on.
 
I wish you luck!
29 year old female (full-time accountant/part-time student)
Dx'd 2009:  Primary Sjogren's Syndrome, distal RTA, bilateral nephrocalcinosis (calcium-oxalate), chronic interstitial nephritis, Stage 3 CKD, Raynaud's Phenomenon
Rx:  Cellcept 500mg 2x/d, Plaquenil 200mg 2x/d, Prednisone 20mg/d (tapering), Urocit-K 3mEq 3x/d, hydrochlorothiazide 12.5mg/d, potassium chloride 20mEq/d, Restasis, Numoisyn, Nystatin 
 

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