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Red_34
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Date Joined Apr 2004
Total Posts : 23416
   Posted 11/12/2009 11:14 AM (GMT -7)   
I'm getting a bit nervous here!  So I think I need some reassurances - if there are any.  I have been having microhematuria with no sign of infection.  I am now thinking I am seeing a possibility of having protein in my urine (bubbly urine) <--this is a fairly new symptom.  I was having trouble urinating which is why I went to the urologist in the first place. 
 
But anyway, I am having a cysto on the 23rd as well as having the dye in my ureters and having my kidneys checked out.  I am going to be sedated for this - my request.  But what I am sort of afraid of how am I going to feel afterward?  The doc told me there might be some burning because since I am going to be sedated that she can use a slightly larger tube for the camera.  She also mentioned that I may see blood in my urine if she takes any biopsies.  For some reason I am more afraid of the afterwards then I am of what she finds or doesn't find!
 
So if anyone can tell me their experiences with a cysto, I would greatly appreciate it!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 11/12/2009 11:23 AM (GMT -7)   
Hi and yes I have had a cystoscopy done without being sedated, however they used numbing cream before they started, and it was horribly uncomfortable (I have IC) and afterwards I had burning to the point I had to sit down for a few minutes before I left the office.  Before going to class, I went and got some AZO, and took that and the burning finally went away.  I wish I could have been sedated!!!!!!!!! The doctor told me, I also needed to have my ureters stretched because they are narrowing? uhhh, no thanks!
 
I have heard you can have it done in the hospital, and be completely out? however mine was done at a urologist, by a male doc, and he had the sensitivity of a gnat.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 11/12/2009 11:49 AM (GMT -7)   
Ohhh thanks for the tip about AZO! I forgot all about that wonderful stuff! :) I used to rely on that when I would get frequent UTI's - it helped immensely.

Yes, I am having it done at the hospital. I really like this female urologist. She seems very compassionate and thorough. She didn't even blink an eye when I said I wanted to be completely out for this. My grandmother had bladder cancer and I seen her go thru so many Cysto's that I just did NOT want to be awake for it!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 11/12/2009 6:10 PM (GMT -7)   
Ah! Good for you! I guess ignorance is bliss because I really had no idea what I was in store for, and when they put that light up there, and I said it was uncomfortable and burning, the urologogist acted shocked shocked   I guess he has never had one? Needless to say I never went back to him but did find out what was wrong with me. Oh yes, AZO, I stay well stocked in the stuff tongue and yes it got rid of even that burning :-)
 
I wish you the best with your cysto!

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 11/14/2009 6:09 AM (GMT -7)   
Hey Red_34 good for you to stop by and visit us.  Sorry its because you have to visit the hospital.
 
Ok I have had at least 5 of these.  The first 3 were in the doctors office and it hurt.  The last two have been fully sedated in the hospital.  I choose the sedation route because they seem to find things they have to do and then I have to reschedule then go to the hospital.  Now I go under and they can do whatever they need to.
 
I had bladder spasms but I always have them when they poke around the kidneys.  And yes it will burn.  But they will give you a shot for pain right before you wake or right after.  Thats the nice things about the hospital is normal to give pain med by IV for almost all procedures.
 
Keep us updated on what they find or don't find.  Hopefully you are just eating to much protien.  I have to decrease my intake to keep it low in my urine.
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 11/14/2009 12:54 PM (GMT -7)   
Thanks Laurie :) Hmm having a pain shot sort of scares me a bit. I have had bad reactions to MANY pain medications. So depending on if they offer I am definately going to tell them what I can and can't have. The last thing I would need after coming out of sedation is be vomiting, doubled over in pain (yes ironic isn't it?) and be full of hives and welts!

How do you know if you are eating too much protein, as in how much is too much? Do you happen to have a list or a website handy that shows high protein foods?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Ludana
New Member


Date Joined Nov 2009
Total Posts : 1
   Posted 11/14/2009 2:27 PM (GMT -7)   
I was just told that I have a mass on both adrenal glands.  Wow how scary is that?  I am waiting to hear back from them re my appt with a specialist for further treatment.  I have been diagnosed for the past 3 years (from my primary care Dr.) with kidney infection, bladder infection, urinary tract infection, given anti biotics only to still have the same pain all the time.  I finally just went to the Dr that did my colonoscopy (Dr Mohan) a few mo ago as I just did not want to hear about another "kidney infection" from my primary care Dr.  Dr Mohan sent me for an MRI or scan.  Now I have the results and  will be now sent to a endrocologist (or something close to that.) I am very scared!  I hope that someone out there can offer some help or hope.   I am a widow, and also lost my Daughter a couple of years ago,and,  even though I am extremely blessed, I feel very much alone.          Ludana 

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/2/2009 8:59 AM (GMT -7)   
Red_34 When it comes to proteins I eat very little. I don't usually have to much protein spill over which I should but I am so worried about the length of time I have left in them. I do whatever possible to get more time out of them.

I think if you get a basic food chart follow the protein intake to the word and you should be fine. I would also google to see if even decreasing directed amounts would be benifital.

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 12/2/2009 9:11 AM (GMT -7)   
Well I had the cysto but because my primary said that the risk of anesthesia outweight the risk of the procedure, she declined my referral (I have a HMO). So she gave me a script of morphine instead. However, I just had the cysto done (in the urologists office) and I didn't have my kidneys checked out. My bladder looked good but I am still having microhematuria. So the urologist told me to just let her know if the blood becomes visible but to also ask my primary and see if she will refer me out to a nephrologist - I just recently found out that one of the medications that I take for my Uc can cause kidney damage (Asacol). My urologist also said that if that were the case that it may be hard to prove that it was the med that is causing the microhematuria in the first place.

So anyway, I'm back to square one :(


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 12/3/2009 4:23 AM (GMT -7)   
Sherry,
Just an FYI - I have constantly been on Asacol for the last 8 years for my Crohn's and both my GI and nephrologist never mentioned anything about kidney damage. My kidney function hasn't changed from the taking the Asacol. I have
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 12/3/2009 6:31 AM (GMT -7)   
I've done some research on Asacol and as with anything else, it doesn't always mean that kidney damage will happen but may happen. Some GI's actually send a patient out for routine (yearly) tests to be sure that nothing is happening from the effects of the medicine and some don't. Type in Asacol and kidney damage or issues in a search engine and you will be surprised on how many things show up.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 12/4/2009 4:55 AM (GMT -7)   
I am always shocked when I go to the doctor and they prescribe a med for my Crohn's and right on the warnings it will say can cause kidney damage. It is baffling to me at times. My nephrologist says I can be on steroids forever, that they won't hurt anything and my GI wants me off as soon as possible. I often wish that the two could get together and have a discussion.

Good Luck Sherry!!

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 12/4/2009 5:28 AM (GMT -7)   
Yeah, that is why a neph should stay in their field of medicine and not offer up advice on medications outside their realm of expertise! :) No..,one can NOT be on steroids forever or it can cause bone loss, bone necrosis and adrenal gland issues. But I know where you're coming from, there were so many times that I wished that my doctors would confer together instead of me being the messenger.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted Today 4:55 AM (GMT -7)   
My neph actually told me once that having Crohn's wasn't so bad.... "Because it will keep you thin and that is good for your blood pressure". I gave him a piece of my mind right there in the office. He said his mother had it and I told him that she is 85 years old and just diagnosed so he has no idea what it is really like. Some people can be such idiots.

I would switch docs but he is the best nephrologist. Just an idiot when it comes to other diseases.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted Today 5:14 AM (GMT -7)   
OMGoodness! He actually said that?? Wow........


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted Today 8:34 AM (GMT -7)   
Some doctors just don't care when they put their foot in there mouth or up their butt! Bad Doctor......

Wow something needs to be done you NEED to have the kidney looked at inside. I did and thats when they found all the damage. I always have blood in my urine. They did they cystoscopy for the bladder and found nothing. Not even the blood. But when they went to look into the kidney they found where the blood was coming from and more.

Now if they can find a safe way with the sadation. I react to vomiting also after surgery after my hysterecomy I had to stay in the hospital longer for sadation reaction. From that day forward I tell them what happened and they give me something different. I still get alittle sick I dread surgery even how minor it is if they have to use sedation.

I just keep thinking they need to see inside your kidney?!?!?!

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted Today 9:06 AM (GMT -7)   
I have an appointment with my primary next week about another issue (pulled or tore something in my left shoulder) so I am going to ask her then about getting in to see a nephrologist.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted Today 9:45 AM (GMT -7)   
Good now I feel alittle better.yeah   I just so worry about hidden medical conditions.  Keep us updated.
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


RJD
Regular Member


Date Joined Dec 2009
Total Posts : 70
   Posted 12/15/2009 3:02 PM (GMT -7)   
Ladies...You should try having a cystoscopy as a male in dr's office without ANY pain meds.. shocked Kinda brings the meaning of painful exam to a new level!!!!!!!!!! Keep in mind this was done 30 years ago before any internet. Dr told me it wasn't too bad of an exam mad I remember it as if it happened just now shocked After he pops the sucker in and I yell, that really freaken hurts, he says...Well I'm half way done you want me to stop and we can finish this at the hospital nono Now after this little joy stick is removed you got to really pee as water is pumped into your bladder...You guys ever hear the term pissing glass smhair Yes I finally almost OD'd on azo and still feared peeing for 24 hr's...NEVER AGAIN!!! nono nono nono w/o being knocked out...

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 12/15/2009 5:40 PM (GMT -7)   
Lol actually I shudder when I think of my father. He had prostrate surgery for an enlarged prostate but before that, he would have to self catheter himself just so he could urinate. I honestly don't know how guys to do it, so I guess us ladies are more lucky in that aspect!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 12/16/2009 12:25 AM (GMT -7)   
Hi Y'all-
Thought I'd stop by here as I am having the dreaded back pain again for the 3rd time since late August. I have been lucky and been out for all 5 procedures I have had so far. Couldn't imagine being awake for the 1.5 hour one I had in August. I don;t know how anyone could self catheter. I've had it done twice while awake after abdominal surgery and that was way to painful. Who ever can do that is one strong individual!
Guess I will be calling the urologist in the morning if I can make it that long. I hate going to the ER for this.

Take care,
Bill

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 12/16/2009 6:37 AM (GMT -7)   
Bill I hope it's nothing to serious but hang in there!

Laurie, can you believe that I FORGOT to ask my primary for a referral to a neph??? I went to the docs yesterday for shoulder pain (found out that it's rotator cuff syndrome) and plum forgot! I just have so much going on right now so I plead temporary dementia :) I am going to call the office up though and see if we can do it that way instead of me coming in to see her again.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Tylonel Arthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/16/2009 8:45 AM (GMT -7)   
I forget things all the timeyeah
 
Just make sure you get into a Nepher and get some of these issues addressed.
 
Try not to forget your pants when you leave the house though.smhair
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


purplekitty
New Member


Date Joined Mar 2011
Total Posts : 1
   Posted 3/11/2011 8:50 PM (GMT -7)   
I had a cystoscopy in 2006 without sedation. Some kind of numbing gel was used. It wasn't exactly painful but I have GAD(generalized anxiety disorder) and I was super anxious and stressed out during the procedure. I could feel the scope moving around inside me, even though it wasn't painful, I started to freak out. I don't know if it was the look on my face or I said aloud what I was thinking, "Dear Jesus help me", that caused the doctor to say after it was over, "Sorry it was so terrible for you". Didn't find the reason for my hematuria and said I might have a leaky blood vessel. Recently I have had pink blood on toilet tissue after urinating. Went to family doctor and she diagnosed me with a UTI and prescribed antibiotics. Same thing happened a couple of weeks later and I was diagnosed with a bladder infection, more antibiotics. My family doctor referred me to a urologist. I am afraid I will need another cystoscopy. The urological doctor (a female)who performed the first one has since retired so my family doctor is sending me to a male doctor as that is all that is available where I live. I had much stress and anxiety at the prospect of seeing this doctor. I am a survivor of childhood sexual abuse and I freak out at any male touching me in intimate areas even if he is a doctor. I just couldn't muster up the courage to go to this urologist so I cancelled my appointment. I did some hunting around and I did find a female urologist, sadly only one in my area and made an appointment. If she wants to do another cystoscopy though, I might refuse.

Vannie
Veteran Member


Date Joined Aug 2010
Total Posts : 795
   Posted 3/12/2011 7:13 PM (GMT -7)   
Hello, my name is Vanessa, and I usually hang out on the OA site. I was reading posts on this forum because my father has something going on w/his kidneys. He has protein in his urine. I think his creatin (sp?) was over 3...it used to be just a little over 2, I think. He has had high bp for a long, long time and is diabetic, but controls it with diet. He will be 84 in May. He has also had a few heart attacks. He is doing the 24 hour urine test this week and then he is to see a kidney specialist after that.

I had a cystoscopic exam last November. Ai YI YI. Those are so NOT fun. I am new to all this. Could someone please tell me what AZO is? I have had a lot of UTIs the last two years, and the last one was a "bug" that is antibiotic resistant.

Thank you,
V
Fibromyalgia, Inflammatory Arthritis, Osteoarthritis, Asthma, High BP, DDD, Bulging Discs in Cervical & Lumbar Spine, GERD, Prediabetic
Prednisone, Lexapro, Cardizem, Lisinopril, Advair, Lipitor, Vit D, Joint Supplements, Soma, Tramadol, Fish Oil Supplements
I take one day at a time, and try to save my energy for the joy in life.
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