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LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/2/2009 9:03 AM (GMT -7)   
Sorry I have been gone for two weeks.  Took my wonderful vacation to florida.  I want to welcome you.  I know the forum is small but with the two of us I think we should about cover the disorders..lol
 
Plus my kidneys have not been doing well so I'm alittle slower these days. I will have pain treatments start in a few weeks so I should be back to normal in about two months.
 
I just wanted to welcome you and congragulate you on being a moderator with me.
 
Laurie


Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/2/2009 2:43 PM (GMT -7)   
thanks Laurie!!! I am pretty excited and hopefully i will do a good job!

I am glad you had a wondeful vacation but am saddend to hear your kidneys are still acting up. What exactly is the pain treatment? Will it begin working immediatly? How is the new position going? You getting used to being in charge yet?

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/3/2009 8:25 AM (GMT -7)   
I know you will do a good jobyeah
 
With all the surgeries I've had over the past 20 years has caused severe scarring and nerve damage.  They call It RSD.  So even if I have to pee it tells my brain that its painfull.  I get injections in my lower back to medicate the nerves for the urological tract. I have to have a series of three per side.  We rotate evey week back and forth for six weeks.
 
It takes at least one treatment per side before I start to feel any relief.  By the third one I'm cooking with crisco.
 
I love my new position.  I have three teenagers so being in charge is easy.smhair   I love my team I spoil them too much though with baked goods.  I also found out I don't care for the people at the top of the food chain though.  I will NEVER promote by choice these people live in a fantasy world.yeah
 
So how are you feeling?  School?
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/3/2009 9:30 AM (GMT -7)   
Holy Cow, it hurts to P all the time, I would die...especially with as much as I have to P in a day. I am glad you will start to feel some relief with in one treatment on each side, i just wish it could happen quicker for you! Jeepers, I wish I was on your team, i could really use some baked goods! Well mentally I could, physically just thinking about it just put 10 pds on me. HAHA.

I am doing ok. I had to temporaly with draw from school because my lupus is acting up and my kidneys werent doing so well. Because of the chemo I am getting, it lowered my white blood count to .8 and since it was so low of course I got the H1N1! They put me on Levaquin, Tamiflu, and Bactrim, I don't think my body had a choice on not getting better with 3 anitibitoics..lol. It took me a little longer than most people to get over it but I think I am over it, well I hope I am because tomorrow is chemo day again. BAH! But the good thing is they are going to lower the dose 200mg, which shouldnt make it as taxing on me. I think my kidneys have finally started to improve. My creatinine is getting better and function is back up to 48%, so I will take that to when I was in the 20% a few weeks ago. I also cut my hours at work to 30 hrs a week. I am still full time and get my benenfits and it gives me more time to rest and that seems to be doing the trick. Things are SLOWLY getting better! So I can't complain to much!

Funny story...I got up alittle late this morning and got dressed in the dark. I put my wig on and ran out the door. Something felt weird but I dindt worry to much about it, when I got to work I went to the bathroom and I had my wig on sideways, yup it looked hilarious. Since its a short hair wig you cant really notice unless you see the part, bangs, and back of it. haha, i bust out laughing everytime I picture it!

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/3/2009 9:36 AM (GMT -7)   
That is just so funnyyeah yeah yeah yeah
 
I had radiation treatment when I was 20 yrs old but my hair stayed in.  I would do just like what you did.  I run run all day long.
 
Hopefully you will be able to go back to school soonyeah   I'm such a parentnono   School means so much.  I remember saying awhile back that you are one of the strongest females I know.  Work, School and illness's.  Man o Man you are a trooper.
 
I know your saying shut up its not that big of a deal but it is.yeah   A healthy person would fall apart doing what you are doing right now.
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 12/4/2009 5:05 AM (GMT -7)   
Amy,
I agree with Laurie. You are super woman!!

I thought going to work with two different shoes on was funny.... the wig story had me laughiing out loud. I can tell that you have a great sense of humor.

I hope you have a good weekend and can get come rest.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 12/4/2009 3:59 PM (GMT -7)   
Thanks gals! The encouragment means a lot. Don't feel much like super woman...I guess I am still waiting to be able to fly! Then I would really feel like one.

I am planning on going back to school! I think I will wait until I am done with the chemo but deffiantly going back. Everytime I am around nurses (which is a TON) it reminds me I want to be one of them. Good news...My Kidney Function went up 3% since tuesday...its now 51 %! YAY :)!

Hope everyone has a nice weekend

Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 12/7/2009 4:48 AM (GMT -7)   
That is great news about your kidney function.

You will make a great nurse. All the best nurses are compassionate and are good listeners and you are definitely both. Just take this time to rest and restore you health and you will be back before you know it.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/7/2009 8:28 AM (GMT -7)   
Amy just always remember Always be compassionate right down to saying hello.  Nurses will always have to make up the lack of compassion of most doctors.  My mother was an RN for36 yrs before she died.  She had enough compassion for 3 dozen doctors.
 
I think you will make a wonderful nurse.  A patient makes the best care provider.  Have you ever thought of continuing school after you get your nursing degree to become PA?  I so love my PA's they are never as cold as a doctor.
 
I hope you feel well today. I remember going through treatments it SUCKS!
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........

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