Why kidney pain after stone surgery

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Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 4/4/2010 6:51 PM (GMT -6)   
Hello, I had a 6.5 mm stone in Januarary, couldn't pass it on my after 2 weeks so I had surgery and a stent put in. (see my posts) The stone had moved and was stuck in ureter near my bladder. The stent was so painful. I had it in about a week. Why do I still have kidney pain at times. The stone is gone, I don't know how long I had it in my kidney though. I am tired of the pain. Just wondering if anyone had any answers for me.
Thanks so much, KayC
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 4/4/2010 11:03 PM (GMT -6)   

KayC,

You might want to get another ct scan to see if you  have another stone. You could have smaller stones causing the pain or another large one.

I wish you good health,

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile/many kidney surgeries 5/09 through next summer
 
There's AWAYS HOPE, there's a doctor out there that WILL help you and things WILL get better :):):):):)


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 4/5/2010 8:53 AM (GMT -6)   
KayC,  Judy might be onto something.  If you are still have kidney pain you could have another stone or one developing.  Scans don't always let them see everything.  I went through years of scans showing nothing then when I complained enough they went in and found stones that were hidden.
 
I think you should go back to the doctor.  You shouldn't have to feel this discomfort if its not a HAVE too. 
 
Laurie 
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 4/5/2010 6:59 PM (GMT -6)   
I agree with Judy & Laurie.  I'm waiting on another ultrasound right now due to the same symptoms you described -- they showed up 2 days after the stent (I hate'em too!) was removed.  The guys in Emergency ordered an ultrasound then and found a fragment that was missed during the first procedure.  Looks like I've got another round of stone removal in my future.
 
You're not alone, if that helps at all smilewinkgrin
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 53 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 4/6/2010 11:05 PM (GMT -6)   
Thanks Judy, Laurie and Chris for the replys. I am going for a follow up appt. tomorrow with my urologist. Will keep you all posted...
Kay
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 4/14/2010 6:24 PM (GMT -6)   
Hope all went well with your urologist. An update on my situation: I had my ultrasound a couple of days ago, expecting a bad report from the technician (they're not supposed to say much but I got him talking anyway ;-) After drinking gallons of water for the last few weeks, I apparently flushed out the fragment(s) without even knowing it. The techie said I had no stones or fragments of any kind!

Now, I've got one more appointment with my urologist to confirm all this but it looks like I'm in the clear.

So, there's hope Spunky, as long as you think happy thoughts -- AND drink gallons of water turn
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 60 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 4/14/2010 7:20 PM (GMT -6)   
That must have been one heck of a lot of water. Good for you. I am glad to hear everything is clear.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 4/14/2010 7:25 PM (GMT -6)   
Thanks Mom wink
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 60 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 4/15/2010 5:24 AM (GMT -6)   
Yay!!! Go Chris! Good job. I know you must be relieved :)! What great news and I hope you get the good news from the urologist as well WOOHOO!!!!!!!!!!

Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 4/17/2010 8:21 PM (GMT -6)   
Chris that is great. I am glad you flushed out the bits.
I went in to see my urologists and he took an xray right away but I never got to see him. He was running to far behind and I had to leave after an hour. I get so frustrated at Drs, my time is imoportant too. I have worked for them for 20 years but it still bothers me when they are running behind. So I never did find out what the results.
KayC
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 4/17/2010 8:23 PM (GMT -6)   
Oh and to top that off I ask for a copy of my stone anaylasis so I could modify my diet and they did not do one. I was like what????? So she said they would send it in. Do they save the stone from surgery???
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 4/17/2010 8:32 PM (GMT -6)   
Yes, they're supposed to save it but this is one of those situations where you have to be on top of things because YOU are important to YOU. Not that I'm down on doctors; they're busy and sometimes forget to be personal. I'm still not sure if I passed anything on my own and if I say anything to the urologist next week about the ultrasound technician making a diagnosis, I've been told that the techie could lose his job so it's very political.

I too am trying diet modification to avoid future recurrences. It's confusing isn't it?
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 60 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 4/22/2010 7:44 PM (GMT -6)   
Another update on me and a note to Kay:

Saw my urologist today and used some tactful replies to his questions ... to avoid getting the ultrasound technician into trouble. The urologist confirmed that I am free of stones and added ominously, "I'll see you again if it recurs." Nice. Friendly gent.

I think I dissolved the stone since I am not aware of it passing. Here's my, un-medical, theory: after comparing all the advice I could find on the net, I determined that my low-carb diet included way too many oxalate-laden foods (contributes to the formation of calcium oxalate stones, if that's the type you have ... most common). Now, depending on which website you alight on, the list of these foods changes/varies but a couple of common things emerged. My personal diet was low in calcium (calcium apparently binds with the oxalates and keeps them in the digestive tract as opposed to allowing them into the urine where they can crystallize and form stones. I had also been eating a great quantity of nuts and drinking black tea -- both high in oxalates.

Another commonality was increasing the acidity of your urine through the use of fruit juices. Some sites recommended orange juice as the best way to do this but today my urologist specifically mentioned it as something to avoid. I silently agreed with that because of my diabetes diet (orange juice is high in sugar). The next best thing seems to be lemon juice (Editor's note: one wacky YouTube video actually suggested drinking 8 to 16 oz. of straight lemon juice a day to dissolve stones. I rejected this because, although it might indeed dissolve stones, it also might dissolve stomach linings or other vital organs?)

My solution (no pun intended) was to drink a mixture of 2 to 4 oz. of lemon juice in a pitcher (2 to 3 quarts) of water per day while cutting back/out the nuts, tea, rhubarb (rhubarb??? .... I almost never ate that anyway) ... and other suspicious, high-oxalate foods just for good measure. Virtually every source of information I encountered recommended drinking 2 to 3 liters (quarts) of water per day so maybe simple water is the answer?

This is by no means scientific but it appears to have worked for me. Who knows what the future holds but I am willing to keep experimenting on me. More water can't hurt, I think.

Any new news on your situation Kay?
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 60 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 4/22/2010 9:43 PM (GMT -6)   
Chris what good info...Thank You...So should I take calcium?

The only news I have is that my kidney xray was free of stones. I never went back to see my urologist but had my primary pull up the report. Still no news on the stone analysis, still waiting...

Thanks for the updates.

I work in a clinic and the tech would have gotten fired (at my clinic) for giving you that info..That was kind of you to play it off...

Keep us posted...KayC
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


TVEditor
Regular Member


Date Joined Aug 2008
Total Posts : 481
   Posted 4/23/2010 7:08 AM (GMT -6)   
I'm not a doctor so I can't recommend what you should do.  I'm just describing what I did.  Maybe it had an effect on my situation.
 
Re: calcium ... I've read many conflicting things about what foods are good/bad.  There seemed to be a consensus that calcium tablets or supplements are not helpful and could contribute to stone growth.  Apparently, the calcium must be from a natural source (milk, cheese, etc.) before it has benefit.  My urologist talked down vitamin C in the same way -- natural source=YES, tablets=NO.  With my diabetes/low-carb diet, this becomes a challenge since I stay away from milk and juices.  Again, this is all relevant if you have or make calcium oxalate stones.
 
Yes, conflicting information.  The attending physician at my Emergency event recommended I drink plenty of liquids ... not just water but something with good electrolytes ... like black tea.  A few days later, my GP told me about his favourite web site ( http://www.webmd.com/kidney-stones/understanding-kidney-stones-prevention ) that suggests avoiding black tea.  To further fuel the fire, the Mayo Clinic site ( http://www.mayoclinic.com/health/kidney-stones/DS00282/DSECTION=alternative-medicine ) says black or green tea "could reduce the risk of kidney stones."  On that same page; entitled Alternative Medicine by the way; you will note some information about orange and lemon juice use ('juice use' :-) ).
 
Googling 'low oxalate diet' will give you many more confusions -- I even found a page that specifically supported vitamin C as the number one way to avoid stone formation.  I filed that one with the wacky YouTube lemon juice drinking guy.
 
Then there's coffee -- I've read that coffee is a culprit, that it's actually the caffeine that's bad and that it's OK to drink ???
 
I'm getting a Google headache -- is there a Migraine Forum around here?  smilewinkgrin
 
P.S.  No stones on the x-ray? ... Great news yeah
Chris - Forum Moderator, Diabetes

~ Diagnosed Type 2 in July 2008 ~ Dropped 60 or so pounds after following HealingWell advice ~
~ Diabetes under control / no meds - so far - knock on head

I used to eat 100% wrong -- now I eat 95% right


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 5/27/2010 6:03 PM (GMT -6)   
Well I finally had my GP pull up the results of my xray and it was negative for stones. Why almost 4 months after do I still have pain in that left kidney, getting very frustrated with my crohn's pain on top of that....KayC

 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 5/29/2010 11:02 AM (GMT -6)   

I have been going through the same thing for the past year. After many tests and med changes I finally came to the conclusion that my Crohn's inflammation was causing my kidney pain.  Once I got the inflammation under control the kidney pain subsided. It took a lot of steroids, but now I am only taking Imuran and Asacol.  My docs didn't give me any explanation. But you know Crohn's disease....... once you think you have it all figured out it throws you something else.

Wishing you the best

Elizabeth


Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 151
   Posted 5/29/2010 7:59 PM (GMT -6)   
Thank you Elizabeth, I am in the process of getting all my medical records sent to a new GI Dr in another town. And hopefully he will see me. Hopefully he can get me on the right meds.
Thanks so much, KayC
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 5/30/2010 3:52 PM (GMT -6)   
KasyC,
Good luck with your new GI. I hope you can get rid of your pain.
I lived with constant pain for about 4 years and then finally gave in and had a bowel resection. It didn't get rid of the Crohn's but the pain doesn't rule my life like it did before. I hate to be on meds and i only take the very minimum possible to get by. I have finally found a good balance. (knock on wood)I hate to take the imuran because of the possible side effects but at least I am off all the steroids.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.
 


Brigette_LA
New Member


Date Joined Jul 2010
Total Posts : 12
   Posted 7/9/2010 9:28 AM (GMT -6)   
Coconut water helps with kidney stones, for an all natural solution try Vita Coco.
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