I have tried to stay clear of surgery now for 1 yr 2 months! I hate surgery for me its just maintance on the kidneys and pain control. Never FIXES the problem. Well here I go again but this time it isn't on the kidneys.
With having PKD and inexperienced doctors over the years just wanting to go in and poke around have caused nerve damage. The PKD is to the point of cysts breaking and tearing up the insides of my kidneys. So it leaves me with pain all the time. I feel like I am passing stones everyday all day long. The last few months have been INTENSE! Thats why I have been AWOL on the forums. They will not increase my pain meds until I make a choice on this surgery.
Spinal Cord Stimulator. (SCS) Implanting a device into my back that sends electrical shocks to the spinal cord to tell it to stop feeling pain. 50/50 chance it will work. If it works there is a chance I could be pain free. Realistic goals are to be 50% pain free.
The goals I'm hopeing for is, decrease my pain med intake by 1/4, lower my Blood Pressure to be able to decrease from 3 meds to 1 and to be able to go out with my family without feeling pain as we walk through the mall or on vacation sight seeing.
I'm always a positive person but man this BITES!
Kidney Diseases and Disorders
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........