Catheter out and can't pee

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down4thecount
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 6/4/2011 8:09 AM (GMT -6)   

I had a catheter removed on 5/26 after having it in for 30 days, and now I can’t pee. Does it take a while after having a catheter for a length of time to regain the normal urge to pee?

I’m having to self catheterize right now hoping the urge will return.  I’m also on Urecholine 50mg every 6 hours.

Before the catheter and medication I had urges to go, I would go, and everything was fine (to me). But my urologist wanted to put the catheter in because I was retaining urine (at some points up to 1750cc). I understand the consequences of retaining so much urine, but I felt fine. I was able to go and had no discomfort.

Now, 30 days later, I do not get the urges. Sometimes I may get slight twinges and will attempt to go. Sometimes I can go very little, sometimes nothing happens.

HELP!!! I don’t want to have a catheter inserted again confused


down4thecount
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 7/17/2011 11:43 AM (GMT -6)   
UPDATE:
 
It has now been almost 2 months since I had the catheter removed. I have since been back to my urologist who basically threw his hands up and said "He has no clue why I do not get the urge to pee". He said he has tried everything, tested everything, and can find no reason as to why I am retaining urine and why, now, I no longer get an urge.
 
I have been researching this issue and have found that what I appear to have is an underactive bladder or neurogenic bladder. Why this started after having a foley catheter for a month, I really do not know. In my research I have found evidence that this is not uncommon and that the urge to urinate does eventually return in most cases. It just takes quite a long time. One report I read said it could  take up to 32 weeks. So, I continue to catheterize 3-4 times daily and just hope that thesse reports are correct.
 
Keeping my fingers crossed!!!
 
John

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 7/18/2011 6:54 AM (GMT -6)   
OH wow!! What interesting news. Thank you so much for sharing it with us and I am so sorry you are still having to catheterize each day. Have you thought about maybe seeing another urologist?? Someone that might not throw their hands in the air and someone that might try to help you out?
Amy
Lupus Moderater
Myfortic, Prednisone, carvedilol, Eliphos, furosemide, sodium bicarbonate, Celexa
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

down4thecount
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 7/18/2011 9:39 AM (GMT -6)   
Hi Amy,
 
This has actually been my third urologist I've been too. He now wants to send me to the Urology Dept. at the University of South Florida. But I understand that it not a matter of just calling and making an appointment. You pretty much have to be "invited" to come to them. While I wait for my possible invitation, I probaby could get a fourth opinion. shakehead I'm just very frustrated and disgusted with doctors.
 
John

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1434
   Posted 7/18/2011 10:11 AM (GMT -6)   
Oh wow. Bless your heart. i would be very disgusted with doctors by this point was well. I hope you get invited quickly and a quick appointment. please keep us posted on how you are doing and when you get invited :D!
Amy
Lupus Moderater
Myfortic, Prednisone, carvedilol, Eliphos, furosemide, sodium bicarbonate, Celexa
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

down4thecount
New Member


Date Joined Apr 2011
Total Posts : 6
   Posted 2/17/2012 9:09 AM (GMT -6)   
UPDATE:
 
Well, I have found out some very interesting information since my last update. Once my local urologist had thrown up his hands and had pretty much given up, I was sent to the University of South Florida's urology department. After a couple of tests, very really possibilities were presented that no other urologist I had been to has ever come up with.
 
I knew for years that my right kidney was no longer functioning. Whether this was a birth defect or something happened while growing up, I really don't know. But when the urologist at USF did a cystoscopy, he found that the right kidney was acting as a bladder and the urine was backing up in that kidney. So, technically instead of "peeing" outward, I was "peeing" inward. Also, in the course of the tests I had done, it was found that my prostate, while in the usual examination showed it to be normal, it was actually blocking my urethra preventing urination and having to use a catheter in order to go.
 
In the course of conversations with USF, several options were presented. It had to be a slow process as they needed to be sure everything was working properly before moving onto the next phase. The ultimate goal was to remove the non-functioning kidney, but in order to do that, they had to determine the bladder was functioning properly.
 
I had gone for a Video Urodynamic Study in September 2011 and it was found that my bladder was not functioning. Talk about depression. At that time he stated there was nothing  that could be done until the bladder was functioning.
 
Over the course of the next few months, I noticed increase bladder activity. Mostly when using a cathter, I noticed that the force of flow was much stronger as if there was pressure behind it. Also, urine was coming out from the outside of the catheter, which told me that the bladder much be contracting. When I presented this information to USF, the next stage was to perform a Green Light Laser on the prostate to open up the urethra.
 
I this procedure done two days ago. I know this may sound odd, but words cannot describe how I felt the first time I was actually able to urinate without a catheter. It has been many, many months since I was to do that. I was so ecstatic!!!
 
At this point, I currently only need to use a catheter once a day and that is only to measure the amount of residual urine; otherwise, I urinate normally.
 
I will admit that I am a bit uncomfortable from the procedure, but with the results I've had, I'll deal with it. I did have to stay overnight in the hospital, which is more a preference of the doctor and not due to the procedure.
 
There is a recoup period of about a week, which is a heck of a lot shorter than other forms of prostate surgery.
 
I am praying that the results I am having right now continue. It has been a long and frustrating road, but hopefully the ride is coming to and end.
 
Thank you for allowing me to vent and hopefully inform. I urge anyone with similar issues to not just immediately trust their  urologist. Please get a 2nd and possibily a 3rd opinion. I've had to go through 4 urologists before finding one who looked outside the box.
 
John
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