I am in the same position as you and your father. Please let me know how he doing now, and if you can, his serum levels.
Apparently there exists no certain answer to your question, a very good one, since some people are already sent to dialysis at creatinine 5 or even 4, and so there isn't much of a sample to study. I have heard of Creatinine 16, all this now on the American scale. Further complicating the issue is that many people on or nearing dialysis are very old or have additional problems and diseases (comorbidity).
What they are measuring, as far as I can understand it, is a harmless substance (creatinine), the byproduct of decaying proteins (creatine). Normally this substance is filtered by the kidneys (placed where after filtering, I am not sure...). When it is not, as evidenced by high concentrations in the urine, this signifies only that the kidneys are not filtering THAT. If urine is still being produced water is being processed by the kidneys even if not filtering properly. How much creatinine in the blood is, I think, compared by formula/ratio to how much is eliminated in the urine to produce the GFR.
At the risk of repeating more of what I barely and you probably already know, I will wait to say more. MY main concern is know your father's condition here in late August, because after also refusing I have been convinced to go ahead with it (family, friends, "not so bad,", etc.), but now a having second thoughts. Tell him I am Creatinine 9, PKD, they wanted to put a catheter 4 weeks ago but I refused, opting instead for the fistula which has been in since last Friday.
I am 49, grandfather 5 times, self-employed, just cut my grass 2 weeks ago, 1 acre hand mower.
Symptoms that sent me to Dr. (for me, when I walk into a hospital it is like walking into Hell, seriously) was a ten-day headache in the back of my head and neck area, spastic-type cramps in my legs, and all kinds of problems with eating and stomach that have nothing or little to do with WHAT I eat. I have had proteinuria since my teens. One minute I feel pretty good. Maybe an hour from now, or not, I might feel like I am dying. Not like bad, like dying. Then, maybe next day, I feel pretty good again. It sucks, and dialysis is supposed to fix that imbalance. For what it's worth, I think it's a lot like the feeling of a hangover that never ends, and that you get no matter what you eat or drink. Probably due to all the junk in the blood they DO NOT measure, i.e., that doesn't show up on a CBC.
I admire your concern for your father and it is the reason I joined this board.
Post Edited (angroid) : 8/28/2014 8:09:15 AM (GMT-6)