Positive ANA test (1:640) but negative for all Autoimmune Diseases. Why?

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tear
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Date Joined Apr 2011
Total Posts : 7
   Posted 5/17/2011 11:30 AM (GMT -6)   
Mine is 5150, i am told that is extremly high i go to the rhemotlioghst on the 27..

pollito_775
New Member


Date Joined May 2011
Total Posts : 3
   Posted 5/17/2011 12:52 PM (GMT -6)   
thats the problem the doctor had her have the ana test because she is having pain in one of her knees without having injury and the results say positive but he says not to worry because shes ok.I think i need a second opinion.The results say .80 but not sure if its .80 titers

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/17/2011 2:45 PM (GMT -6)   
My titers is 1:360.

I'd go for a second opinion.
Joy

pollito_775
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Date Joined May 2011
Total Posts : 3
   Posted 5/17/2011 3:25 PM (GMT -6)   
Thanks alot for your help,Ill be getting a second opinion.

mandeloo
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Date Joined May 2011
Total Posts : 14
   Posted 5/17/2011 5:03 PM (GMT -6)   
I've never seen 5150 titer is that being measured in different units?

Mines 1:40 and was considered positive. It's a good thing too because then they caught high titer of anti-RNP in my blood. I would have never known.

outofmyhead
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/17/2011 1:24 PM (GMT -6)   
Hi everyone, I just received my first results and I don't know how to read it. My doctor said that I don't have lupus. The ANA Screen shows 526.7 H, ANA POS, ANA Interp Negative. My doctor told me about a woman that had a high ANA for 8 years then she got cancer and died. He said I probably have tiny cancer cells that are too small to see right now, and my body is trying to fight it causing the ANA to be high. He said to be sure to have all tests done like paps, mamograms and the colon thing.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7473
   Posted 6/17/2011 1:38 PM (GMT -6)   
Out Of My Head,

What kind of doctor told you that? Do you have any symptoms that lead to the tests being done in the first place?

Lupus and many other auto-immune diseases are diagnosed by a rheumatologist, not a GP or internist. Other doctors, such as the one that made up this cancer story, are not qualified to diagnose or treat lupus.

Because you do have some positive ANA results, I strongly suggest seeing a rheumy as soon as possible. I'd also be interested in any symptoms you might have.

In my personal opinion, the doctor you saw is a QUACK. There are only a very very small number of cases where ANA is linked to cancer, and no one should be telling you these kind of horror stories. It is much more possible that you have an auto-immune disease - and that leads back to the rheumy again.

ANA is NOT a test that says "YES" or "NO" to *anything*. It suggests something in the auto-immune area, but it can also be raised due to some medication you are taking, or some people just have low positive ANA for no known reason, etc.

Symptoms are very important - follow up and see what's happening. Keep us posted.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/17/2011 2:32 PM (GMT -6)   
He does sound like a big quack!!
Get away from him!
Joy

outofmyhead
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Date Joined Jun 2011
Total Posts : 2
   Posted 6/22/2011 1:03 PM (GMT -6)   
I was sent to him for headaches. I don't know why he had the test done. That was the first time I went to him. My family doctor looked at me crazy when I told him about the test.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7473
   Posted 6/22/2011 2:00 PM (GMT -6)   
1:320 is higher than 1:80

1:640 is higher than 1:320

when the second number is higher, it's higher
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

krispy
New Member


Date Joined Jun 2011
Total Posts : 1
   Posted 6/26/2011 6:03 AM (GMT -6)   
Hi- I'm new here. My daughter (13) has had high ANA titers for two years (>1:640, 1:320 and now lower 1:80, speckeled pattern). She complains of muscle aches, GI issues, is very sensitive to the sun, has red cheeks (but everyone says it's not mylar rash -just keratosis pilaris), is fatigued easily, has occasional mouth sores (but they don't hurt), headaches. Went to pediatric rheumatologist who ran tons of tests, all negative except ANA. She gets better and then (usually in spring) gets much worse. Went to an endocrinologist as Hashimotos thyroiditis runs in our family and she is always cold. Labs normal but was put on a low dose of synthroid - she improved a little at first, but now is having trouble again (thyroid labs stable and fine). I am convinced she has SLE, and it gets worse in the summer due to sun (though her rash looks better in the summer). Also gets worse after sinus infection or other bacterial illness. Question: How would knowing she had lupus change her life? That is, she takes ibuprofen for pain, gets rest when fatigued, wears sunscreen, eats healthy... If we had a real diagnosis would they be able to do any more for her medically (I'm kind of opposed to steroids in kids unless it's a last ditch thing). Is there a risk to having low level disease and occasional flares without a diagnosis and seeing an immunologist/rhemuatologist? I'm tired of running her to doctors (dermatologist, allergist, rheumatologist) for them to run labs and tell her she is fine when she feels lousy, especially since she doesn't complain of aches and pains all the time (it isn't psychological -she's very happy, a good student, active and involved, nice friends,...). What would you do?

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1329
   Posted 6/26/2011 10:44 AM (GMT -6)   
Having a diagnosis and treatment is very important to controlling lupus or any other AI disease.  There are many treatments other than cortocosteroids although they are often used because they are fast and effective.  A second med will usually be introduced in order to taper off steroids.   You should not ignore your daughters symptoms which seem to indicate lupus.  Lupus can progress into something much more severe if left untreated.
 
Check out the resources under Learn about Lupus at the LFAI site.
 
 
If treatment is successful your daughter might see some or all of her symptoms disappear but no one can predict that.  Not getting treatment is risking getting worse and lupus is a complicated and sometimes devastating disease.
 
Bill

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 6/26/2011 11:34 AM (GMT -6)   
I have a positive ANA but my inflamatory markers are low and my Rhuemy told me I had lupus based on that and all my symptoms.
I take planquenil and mobic for my symptoms. It really helps.
Joy

faithwalk
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Date Joined Jul 2011
Total Posts : 5
   Posted 7/23/2011 6:32 AM (GMT -6)   
I feel great, no symptoms. I went into dr. had some thinning "personal" hair. (I was told later thinning hair often happens when you get into your 40's). The dr. ran an ANA it came back 1.320, 5 weeks later I ran it again 1:160. 3 months later it is still 1.160. I waited 3 months hoping it would go down on it's own, it didn't. I am trying not to FREAK out. I've read such scary things on-line. I feel healthy. I'm afraid of going on medicine to get the numbers down when I feel so good. All meds have side affects. My natropath dr. says not to worry about it he'd just moniter the numbers and make sure they don't go up. He insists that auto immune medicine will create other health issues for me. My medical dr. is alarmed and simply said I need to go have "extensive testing" to see what is going on. The rhem I want to see can't get me in until the end of Oct.

Any thoughts....I am fighting this scared, want to cry feeling...I have always been a health conscious person.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1329
   Posted 7/23/2011 6:35 AM (GMT -6)   
Listen to your medical doctor. 
 
Bill

faithwalk
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Date Joined Jul 2011
Total Posts : 5
   Posted 7/23/2011 1:33 PM (GMT -6)   
I'm curious what is the importance of going through a battery of tests, with end result being medicine, when I am feeling so great? I truly am feeling terrific. No symptoms of anything.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/23/2011 3:13 PM (GMT -6)   
A stitch in time saves nine.

Have you ever thought it's doing hidden things to you?
Joy

faithwalk
New Member


Date Joined Jul 2011
Total Posts : 5
   Posted 7/23/2011 3:19 PM (GMT -6)   
i cannot get into rhem until end of Oct, (i did schedule an app). I really don't want to have unnecessary anxiety for the next 3 months, thanks for spiking it.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1329
   Posted 7/23/2011 3:24 PM (GMT -6)   
You do have symptoms just not clinical ones.  I had low platelets and mild anemia fo 15 years before clinical symptoms appeared.  My docs had already guessed that I had lupus and were prepared to treat me when I began to flare unlike many who take months or years to get a diagnosis and effective treatment.  It is important to get aggressive treatment early in the initial flare to successfully control your immune system.
 
 
If you are diagnosed and still asymptomatic (clinical) you can always decline treatment at that time but you would know what you have.  Although there can be dire side effects most of us experience mild ones and lupus can be a life threatening disease.  I would rather risk possible side effects than risk death from lupus.  Not all cases are that severe but many are particularly if untreated or undiagnosed for a long time.
 
Bill

faithwalk
New Member


Date Joined Jul 2011
Total Posts : 5
   Posted 7/23/2011 3:28 PM (GMT -6)   
BILL, REMEMBER I MAY NOT EVEN HAVE LUPUS! I do not have a single lupus symptom. Trying to scare people with "death" is unnecessary!

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1329
   Posted 7/23/2011 3:28 PM (GMT -6)   
If you don't want honest answers from experienced patients you shouldn't ask the question.  I run a support group and talk to patients almost daily about lupus and myositis diseases and tell it like it is in order to help them through diagnosis and treatment hell and coping with a serious of chronic disease that is treatable but not curable.
 
Bill

faithwalk
New Member


Date Joined Jul 2011
Total Posts : 5
   Posted 7/23/2011 3:38 PM (GMT -6)   
How about this response:

"I'm glad to hear you have an appointment scheduled. Don't try to stress yourself out while you wait for it. It would be good to catch things early. I'm glad you are feeling good. I hope you get good news!"

I think a little empathy mixed in would be nice. Just for future new members who post.

It's comparable to a dr who has bedside manners and one who doesn't. Just saying...

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/23/2011 7:41 PM (GMT -6)   
Sorry if we scared you, but autoimmune diseases are nothing to shrug off.
We're frighten, too.

"It's better to light one candle than to curse the dark. But sometimes the Devil keeps sitting there blowing it out."
Joy

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1470
   Posted 7/23/2011 8:17 PM (GMT -6)   
Do you know what your other blood work is? How are your blood counts, c3, c4 levels, sed rate levels? There is something that makes the doctors suspect a AI disease other than a positive ANA. You also could be someone who has a positive ANA and no other symptoms. That is sometimes seen in healthy people.

Bill is not trying to scare you but wants you to take this seriously. He has been one of our most informative/helpful members and i appreciate everything he does to help out on here. When you come to a lupus forum asking why, remember you are most likely going to hear responses based on our personal stories and what we have seen to be true. Also, try not to worry about this for the next 3 months. If you are feeling so good...and have no symptoms, why worry and cause the anxiety???
Amy
Lupus Moderater
Myfortic, Prednisone, carvedilol, Eliphos, furosemide, sodium bicarbonate, Celexa
PRN: Imitrex, hydrocodone, Ambien, Flexeril, Ultram,

If God brings you to it, he will get you through it!!

Taina
New Member


Date Joined Sep 2011
Total Posts : 5
   Posted 9/7/2011 1:07 AM (GMT -6)   
Going back a bit to the first few posts in this thread, I also had ANA of 1:640, I haven't had any symptoms (touch wood) but I do have Coealiac Disease, and my mother has Lupus, so I'm hoping that explains it...
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