Do you forget alot?

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 12/29/2007 12:41 PM (GMT -7)   
I called my sister last night to ask her a question. I knew I had asked her the same question before but I couldn't remember what she said. Well she gave me the answer but she was very short with me. I blew it off because I knew it wasn't like her so I assumed she was having a bad day.
Anyway she called me back about 10 min. later and apologized. She said "I know I should be more sympathetic but I know we talked about this before"
I don't want nor did I ask for her sympathy. I just can't remember things anymore. I didn't go into detail with her I just said karen I take a ton of meds my brain just doesn't work like it used to. I didn't want to go into a bunch of details because I didn't want to start crying and make her feel bad or think I was looking for sympathy again.
I really am to the point where I don't want to talk to anyone about anything. I rarely ever talk to family about being sick. That's why I come here. I don't know maybe I need a brain scan?
I have a very good friend here that told me on the 22nd that her birthday was the 23 and on the 23 I had already forgotten. Than I had a friend come over after christmas and mention the christmas present she gave me. I had forgotten she gave me one. What is wrong with me! mad
thanks for letting me rant and snivel
love
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 12/29/2007 8:02 PM (GMT -7)   
Carol,
That sounds so familiar. My daughter told me the other day that I was acting "drunk". She knew I wasn't, I was so fatigued and "loopy" that I couldn't concentrate for more than a few minutes on anything. I realized it but couldn't stop it from happening.
Hugs to you - I hope you feel better.
Sometimes it feels so good to hear that someone else understands (even though I wish you didn't have to feel this).
Take care,
Fran
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Meds: Plaquenil, Zyrtec, Prilosec, Nasacort, Prednisone, Prozac daily.
Meds: Epinephrine, Benadryl, albuterol (as needed).


AlwaysRosie
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Date Joined Jan 2005
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   Posted 12/29/2007 8:40 PM (GMT -7)   
Hey Carol . . . sorry you are having such a hard time. YES! the old noggin doesn't work right, especially when we are in a flare or recovering from one or heading into one. We call it "brain fog". We can have a fare amount of brain fog just from the chronic illness, but you are right, a pile of meds and certain meds will add to it.

We had a funny string going a couple years ago where everyone told their worst brain fog moments. OH MY GOSH!! We laughed and laughed. One of my stories (I think I had a few on that string) was about making chilli for dinner and pouring dog kibble into the pot while hubby stood there with his mouth open!!! and YES! I need to ask the same question w/i a few minutes just because I didn't absorb the answer so people think I am just "out of it". Lots of members here will sympathize with your dilemma and yes it is common with Lupus . . . but make sure you tell your rheumy each time you visit how bad it is. Some of the immuno-suppresants can actually help that if its real bad. Lynnwood takes one (took one?) the has helped her a great deal.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 12/29/2007 8:52 PM (GMT -7)   
Carol,
You are describing my barin to a "T". I also have total amnesia aabout lost of past events including some very important ones (family, awarads, graduations, places visited on vacations, etc). Mine is a result of the encephalopathy I have. I have lots of other problems due to the encephalopathy but I can't remember them right now (sorry, I couldn't resist :-)

Don't know why you have it (meds, lupus, ???), but I can soooo relate to the "i feel so d*mn stupid" to the "don't feel sorry for me" and so on. I am also to the point that I don't discuss a lot of my "stuff" with extended family because they don't "get it". forget about friends--not a whole lot left--and I also get sick of people going "Oh, don't worry, I forget things too. Why just the other day ........"

Well, I guess i got that off my chest! The bottom line is that I'm really sorry you are having this problem. Lots of hugs to you.

xoxo emmie
</FONT>

SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Hashimoto's (or Autoimmune) Enchephalopathy


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 12/30/2007 4:55 AM (GMT -7)   
Hi Fran, Rosie, and emmie, Boy you ladies really nailed it! I'm sorry you all have to live with that too.
Fran, I'm glad your daughter understands what is going on with you. but I can sure relate to not being able to stop it. It's like emmie said the I feel so d*mn stupid syndrome.
Well rosie I guess if we ever get together we go out for dinner! LOL that is about the funniest thing I ever heard. All though my SIL was making porkchops one night while I was there and she browned one side and turned them over and went to spray some of that spray oil in the skillet. She was really spraying it on there and my brother said hey hun you just sprayed furniture polish in the pork chops! sure enough lemon pledge! and she doesn't even have Lupus LOL we went out for chineese.
Emmie, I used to know what encephalopathy is but I can't remember. Now actually I'll have to look it up. I've heard of it but I'm clueless. I did want to mention something you said in the other post to me about the help I was going to get helping out with my other emotional problems and stuff. Your right. Being alone and trying to do everything myself gets very overwhelming. Just worrying about weather I got all my bills paid is hard enough. I mentioned once about getting counseling but now that they are willing to pay for transportation I am gonna try to find one that takes my champva insurance. They pay 100% of counseling up to 20 visits. Getting some of this other stuff off my back will be such a Godsend I might actually be able to talk to a counselor. Who knows if I could get passed some of the stress and depression I might be able to think a little clearer and feel more in control of my life.
anyway I know I got off topic but I just wanted you to know I was reading what you said and I appreciate it.
love ya guys
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 12/30/2007 11:41 AM (GMT -7)   
I am experiencing forgetfulness... sometimes I can't remember words.... even to talk....

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/30/2007 11:57 AM (GMT -7)   
What was the question again??????????????? confused
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 12/30/2007 12:24 PM (GMT -7)   
LOL . . . RIGHT!! Ummmmm . . . I think?????? Is this Friday?

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 12/30/2007 4:47 PM (GMT -7)   
Well, I feel your pain.....if i could remember...I spoke to my doctor in Oct. about the same issues. His reply was one that i am depussed and two that i am over worked. NO WAY NOT ME...Well, the best thing about the fog for me....I can watch re-runs and it's like seeing it the frist time.
PLAQUENIL, FLEXERIL, CELEBREX, CYMBALTA, BENICAR, ALLEGA, SINGULAIR, PROSCAR, LEVITRA, METROGEL, PORTONIX, NASACORT, AND CREAMS
Enjoy what you can today and leave the rest for another day.
 
Frank
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 12/30/2007 6:59 PM (GMT -7)   
Yes, Y e s, and Y E S !!!!!!!!!!!
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 1/1/2008 4:55 AM (GMT -7)   
Hi Carol.  My brain fog gets denser every day.  I recently went through a string of overdrawn checks again (and the resulting fees) so I finally asked my BF to manage my money. I used to manage budgets at work in the hundreds of thousands.  Obviously I don't do that job now.  And yep, not only do I love watching reruns, I learn new stuff each time I watch.  Lately I've given up trying to remember things like actors names and dog breeds (even though some are the same).  I do remember the thread Rosie refers to and some of the funniest stories are about the lupies who get lost, but the dog kibble is right up there.  Ummm textured, dry protein.
Love, Butterflake
Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/1/2008 7:14 AM (GMT -7)   

LOL thanks everyone, Ginny I'm getting to know you far to well. as son as I saw you posted I thought she's gonna say "what was the question?" lol and sure enough. Frank that would be pretty cool your kids could tell ya they bought ya a new car for christmas. and you wouldn't be able to tel if they did or not! LOL

On the serious side though, I used to get what I'd call brain fog but now I feel like I have alzheimers or somthing.

well it's the first day of 08! I hope it starts off great and continues going that way!

love carol

 


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


townsend
Regular Member


Date Joined Mar 2004
Total Posts : 97
   Posted 1/1/2008 9:12 AM (GMT -7)   
Yeah, so that story about the dog kibble really made me laugh. MMM-MMMM.

People give me that look all the time - like "what is wrong with you"? - while my brain takes a few moments to process what's been said. It can take up to 20 seconds between when someone gives me new information, and when I "get it". I know I've always been this way a little bit (My big brother calls it my "delay"), so I try not to worry too much, but I am definitely noticing that it's getting worse the more meds I take.

I'm not sure if my signature has updates itself yet - I tried to update it last week and it didn't take - anyway, I'm taking 8 meds now, and it's def. changing my ability to remember to an even greater degree........

Diagnosed with Sjogrens in 1993, Raynauds and Vasculitis in 2001, and Lupus in 2004. Current Medications: Prednisone up to 30 mg now, Plaquenil 400mg, plus now a couple of meds for high blood pressure (from the Lupus Nephritis) and one for the heartburn they give me.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/1/2008 10:16 AM (GMT -7)   
I can very much relate to so much of what everyone said.  Sometimes I can laugh at myself, but sometimes I get so frustrated and want to cry like when I put things somewhere and I can't remember where it is.  I know I end up having repeat conversations a lot with people.  I can't remember what I've said or what I've asked.  We exchanged gifts with my mom on Christmas Eve and she gave me a very nice gift certificate.  When we were cleaning up the day after Christmas, I couldn't find it anywhere and I worried that my husband had taken the card that the certificate was in and had thrown it away.  I told him that I didn't throw any cards away.  about an hour later as I was digging through the trash, I found a gift bag that had stuck the card and certificate in and promptly threw in the trash.  I was definitely eating some crow after that one.  Luckily my husband has a good sense of humor.
 
I agree with the others that the fog and the memory problems get worse during a flare and I know you've felt pretty sick lately. Do talk to your doc about this stuff though because your doc can determine if you need any tests done for CNS issues.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Bsime
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Date Joined Apr 2006
Total Posts : 1298
   Posted 1/1/2008 11:27 AM (GMT -7)   
What was the question?  Oh yeah,  forgetfulness.
 
Cognitive problems are common with lupus and can involve many aspects.  Also, some meds like prednisone can also cause problems....so take your pick.  The fatigue you feel is also probably caused by lupus and is neurological in origin. 
 
In my case, fatigue, short term memory loss, and concentration are the most apparent.  Also, I do not cope as well with certain types of stressful situations.  Often I cannot remember a word that I have used my entire life....it is as if someone has torn out pages in my mental dictionary.
 
It has gotten better as lupus and my other auto immune diseases have come under control and I have gotten physically stronger but there is no question that I am not the person I was 3 years ago in those areas.  I did have formal testing when I was in a rehab hospital so it is not my imagination and I have had discussions since with a neuro psychologist who tried to explain how all that works.
 
You are not going crazy and most of us have a problem to some degree.  Call it lupus fog whatever the origin.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 1/1/2008 2:30 PM (GMT -7)   
I have the same problem. I don't know what I'd do without my PDA -- anytime someone tells me something I write it down or I'll forget! I think it's from all the meds. For a while, I was taking Tramadol for the pain and that was making me feel more "loopie" (or "lupie?" lol). Granted, it did a better job with the pain than 1500 mg of tylenol twice a day, but at least my head is clearer.
Take care, peachy
 
Diagnosed with lupus in May 2005. Daily Medications: Prednisone, 5 mg; Imuran, 50mg 2x a day; Warfarin, 5 mg / day; Zoloft, 100 mg / day; Plaquanil, 200 mg 2x a day; Nexium, 20 mg / day; Tramadol, 50 mg 2x a day (as needed) and Tylenol. Supplements: 1500mg calcium; 2000 IU of Vitamin D; 400mg magnesium; Centrum Silver (and I am 30!)


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/3/2008 2:16 PM (GMT -7)   
Bump! Up you go for KaAl

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/3/2008 2:29 PM (GMT -7)   
Sheesh, how did I miss this one?!!! LOL. Thanks Rosie! Ok, well my brain for is a bit different. I do forget things as well but I have this awful drunk like feeling. It feels like my thought process is slow. I don't really know how to explain it other than I FEEL SLOW AND STUPID! And it's like this everyday!
This brain fog is the worst!

Thanks again Rosie

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/3/2008 4:20 PM (GMT -7)   
KaAl . . . I think I know what you mean . . . I'm never sure if it is meds??? It definitely is worse in a flare and when I don't get restorative sleep. I am WAY like that if I eat sugar (especially before bed).

Funny thing is . . . I started my first pred-pack this week and the first morning after taking the first day of it . . . I felt great when I got up. I know high does - long term pred - doesn't act that way . . .but it was nice to have a little slice of "normal". But as I tapered, I gradually lost that. sad

I hope some of the others can shed some light on the drunk feeling.

Its so nice to be able to get some help on our issues!!! I'll be looking for responses too.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 1/3/2008 4:28 PM (GMT -7)   
I want to add that sometimes "brain fog" can be a more than just "brain fog" and become quite serious. I have battled cerebritis this year and it can have life threatening complications. Someone mentioned numbness in the face. That was one of the first symptoms I started with, visual disturbances, "burst of light", speech difficulties, concentration and memory loss; this all started out mild and I had my "humorous" moments" It soon turned extremely serious. Please don't "play off" neurological symptoms of lupus is you notice a worsening. I also had debilitating headaches. You may have noticed I haven't been here alot. I'm telling you, I can't begin to describe the impact lupus cerebritis has had on my life in the last year. I strongly urge you to seek help if your symptoms worsen! Judy

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 1/3/2008 8:25 PM (GMT -7)   
OK and my name is WHAT???? Oh yeah..Back in Oct. I told my doctor about all the forgetting and the fog. Reply is that I am over worked and depession. Now, I am taken cymbalta...It has help and having the whole month off in Novermber didn't hurt. I THINK!!!

Best to all
PLAQUENIL, FLEXERIL, CELEBREX, CYMBALTA, BENICAR, ALLEGA, SINGULAIR, PROSCAR, LEVITRA, METROGEL, PORTONIX, NASACORT, AND CREAMS
Enjoy what you can today and leave the rest for another day.
 
Frank
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 1/3/2008 9:28 PM (GMT -7)   
The good news is that I can't remember how much I forget!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 1/3/2008 9:44 PM (GMT -7)   
Poor memory is just an opportunity to recreate yourself.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/3/2008 10:36 PM (GMT -7)   
Carol, am I THAT predictable, LOL!  That's hilarious.  Spooky actually. 
 
My worst times are when I'm interviewing a couple for wedding photography, and I pull a major blank on a very simple, every day word.  I can feel my face and hands going beet red.  It's so embarassing.  Most people just laugh it off and tell me they can relate!  (Yeah right, if they only REALLY knew what was causing MY brain farts).  Heehee.....
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 1/5/2008 12:28 PM (GMT -7)   
i go through the same thing, like walking into a room and completely forgetting why i went in there in the first place, my family and friends are great about it, if i forget a question i was gonna ask them or dont remember plans that we made, they just laugh it off with me and we change the subject. so now i carry around a small notebook in my purse and there are pens and pads of paper all over our house so that if i need to remember something i can just write it down, and i even have a note pad in my cell phone so that if i dont have pen or paper around i just grab my cell phone (its always close to me because when my hubby is at work i feel safer knowing that if i fall or something my phone is next to me so i can call for help). my mom also gets me a big calendar every Christmas so that i can put my doc appts and other dates i need to remember (for my hubby too, he forgets my doc appts, not that i blame him i have so many he cant keep all the docs and their specialties straight)
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain

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