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BlessedBe
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 12/31/2007 10:22 AM (GMT -7)   
I've been posting quite a bit about the discoid rash I have.  Yesterday before I went to work I had an idea.  After my 12 hours my face is so hot and flaming it's just awful.  Anyhow I thought about the lights at hospitals...they're all flourescent! I put on some 30+ sunscreen a few times throughout the day. The rash was still apparent and got a bit more defined just from working 12 hours but the burning and heat from it wasn't there!!  It worked well and plus, who couldn't use a smell of sunscreen when it's 20 and snowing in Michigan! 
 
I wanted to share a plus throughout the minuses of symptoms etc.
 
Blessings! smurf
Wife, Mother, Nurse
SLE with all the additives, sjorgens, raynauds, RA etc.
Plaquenil, Effexor, serequel for sleep.
Refusing Steroids


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 12/31/2007 11:32 AM (GMT -7)   
Great idea! I live in Michigan, too! I work in a school full of flourescent lighting and I use sunscreen, too!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 12/31/2007 1:22 PM (GMT -7)   
Woooo Hooooo!!! Lupan Power!!! Great thinking!! I have years where I have to cover EVERYTHING even in the car on a shady, rainy day!! so that makes perfect sense. I bet you'll feel better too. Hmmmmm maybe some sunglasses?? cool LOL

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


susie h
New Member


Date Joined Nov 2007
Total Posts : 14
   Posted 12/31/2007 7:47 PM (GMT -7)   

When I moved into my new house, for weeks on end, I would get flushed and hot on my face, silly me, I never thought to notice that all the bulbs in the house were energy saving flourescent bulbs...I changed them all out and things got so much better.

As for the sunscreen issue, I found some that is amazing. It is Hawaiin Tropic Ozone w/ UVA & UVB protection, ans an SPF of 70 plus. I got this before a trip to the beach this summer. I have been using it since, and have had NO rashes at all. It is the best stuff I have found.


 Diagnosed w/ SLE March 2005, Fibromyalgia 2005, RA 2005, Degenerative Cartlidge Disease 2006
Current Meds: Methylprednisolone 4mg/ Plaquenil 200mg/ Simivstatin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/31/2007 9:46 PM (GMT -7)   
Oh, fluorescent lighting is really bad for us.  It's actually something that I wish the health industry would address as a health concern.  Not only for those of us who are basically allergic to it, but for everyone.  It's poison!
 
In Canada, the government plans to phase out the old incandescent lightbulbs in a couple of years.  I'm terrified by that.  I'm stocking up on the old stuff so I never have to put that poison in my home.  I have enough trouble in Walmart or at the grocery store.  I feel physically ill if I'm under them too long.
 
That sunscreen you mentioned Susie, sounds great.  I'm a redhead to boot, so an SPF 70 is perfect for me!  I'll try to find some of that.
 
Fluorescents = skull
 
BAD, BAD things!!! nono
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 12/31/2007 9:58 PM (GMT -7)   
Susie THanks!! I have a hard time with any sunscreen I've tried. Feels like its suffocating me. EVen the stuff for faces . . . OY . . . I'll have to try the Hawain Tropic . . . thanks.

Ginny!!! OH NO! I started switching over last year!!! I can't believe it!! I'll certainly be looking into it. AKKKKK! Thanks for mentioning this. Urrrrrrrrghhhh!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 12/31/2007 10:06 PM (GMT -7)   
ROSIE!!!!!!!!!! NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!  Run away!  Run away!!!!!  Turn them off!!!!  LOL....
 
I know they're better for the environment, but I'm sorry, I'm looking out for #1 here when it comes to this!! Seriously guys, they're not good for us!  Try googling "fluorescent lights lupus", or "fluorescent lights health risks".  It's spooky.
 
Rosie????????????  Are you in the dark now? You better be!!!!!!  Or you better be on a chair changing those dang things!  Just don't fall...... OY.
 
(((hugs)))
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


kpeachy75
Regular Member


Date Joined Sep 2005
Total Posts : 250
   Posted 1/1/2008 2:33 PM (GMT -7)   
Have you ever tried the spray on kind of sunscreen? I love it! I started wearing the kids coppertone (in a turquiose bottle) last summer and I had more clients compliment my on my new perfume. Who knew that a 50 sunscreen could be so sexy?
Take care, peachy
 
Diagnosed with lupus in May 2005. Daily Medications: Prednisone, 5 mg; Imuran, 50mg 2x a day; Warfarin, 5 mg / day; Zoloft, 100 mg / day; Plaquanil, 200 mg 2x a day; Nexium, 20 mg / day; Tramadol, 50 mg 2x a day (as needed) and Tylenol. Supplements: 1500mg calcium; 2000 IU of Vitamin D; 400mg magnesium; Centrum Silver (and I am 30!)


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 1/5/2008 9:53 PM (GMT -7)   
i guess that explains why i was always not feeling well in middle and high school but felt fine at home, thanks, ladies
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/5/2008 10:00 PM (GMT -7)   
Ya!  I was the same.  Highschool was brutal. I felt like I needed sunglass or a baseball cap to wear. I didn't put two and two together with the fluorescent light stuff until a few years ago.  Crazy eh.....
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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