Iam new, Ihave lupus

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louisanalupusgirl
New Member


Date Joined Jan 2008
Total Posts : 1
   Posted 1/4/2008 6:16 AM (GMT -7)   
 Hi,
 
Iwas diagnosed with lupus in july 2007. I have auto immune hepitis, fibro. SLE, RA. I take praqinal, predizone, cellcept, vit.d 50,000 units per month. and a few more. I was in 3rd semester nursing when I got really sick. My liver enzymes were 1298. I was in liver failure and was going to have to have a liver transplant if my liver enzymes didnt stabilize. they did thank God, I still have elevated liver enzymes but there slowly going down.
 
 
Right now the fibro is acting up. this is a new diagnosis. can anybody tell me what they take for meds for fibro.?

omega
Veteran Member


Date Joined Jan 2007
Total Posts : 607
   Posted 1/4/2008 7:26 AM (GMT -7)   
Welcome to the forum. I hope you find it helpful here. I am sorry for your illnesses. Here has lots of people have fibro and I believe that they can give you lots of iinfo as they come on.
DX SLE 1988; Pred 10mg, Cellcept 2500 mg, Verapmil 120 mg (for migraine headaches), Famotidine 20 mg BD, Volteran 150 mg (temporary), Calcium + Vitamin D 1200mg


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 1/4/2008 7:39 AM (GMT -7)   
Hi Louisiana.  Welcome to our forum.  I'm sorry your diagnosis placed your nursing degree on hold.  Many of us on the forum are educated women who had lots of ambition (too much?) and developed lupus during stressful times.  I also have fibro, but I know you have to be extremely careful not to use drugs metabolized in the liver.  I take arthritis tylenol, but I know you can't.  The other drug I take is neurontin aka gabapentin.  It's my favorite PRN drug for pain. I know Lyrica is FDA approved for fibro, so that may be a choice too.  I hope your liver enzymes get back to normal quickly.  You're also going through a rough time mentally because your whole life has changed!  Please feel free to vent or cry with us any time and keep us updated. Take care Sweetie.  Love, Butterflake

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/4/2008 8:06 AM (GMT -7)   
Hi Louisiana! Welcome to the forum. You'll find some very caring people here. I don't have fibro, but there is another topic just a few down from this one started by another member who has both.

I understand that if you take prednisone in highish doses that can make the fibro act up.

Sorry about your school getting cut short . . . what a bummer. I hope you can get back to it quickly.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/4/2008 8:10 AM (GMT -7)   
Hello Louisiana,
 
Welcome to the forum. I'm sorry about your diagnosis. I have lupus and fibro as well.  I take a low dose of Amitriptyline (Elavil) for my fibro.  Helps me to sleep and takes the edge off the pain. Doesn't work for everyone, but many of us take it.  Another new drug that is looking positive is Lyrica.  The gals in the Fibromyalgia forum talk about it a lot.  I'm curious myself and will be discussing it with my rheumy next week.
 
I know exactly what you're dealing with in regards to the high liver enzymes.  I had a medication allergy this past June and the rash attacked my liver.  My enzymes were over 1000 as well.  The liver is an amazing organ!  Within 2 months, the enzymes were back to normal, and actually better than before the allergy happened! Isn't that something!  So have great hope in that your liver will normalize as well.  Even with autoimmune hep, once you're getting the right treatment, your liver should respond well.  I found that drinking LOTS of water really helped in getting those numbers down.
 
How are you toleratiing your medications?  Has the plaquenil kicked in yet?  How much prednisone are you on?  We're here to support you and answer any questions you have okay.  You won't be going through this alone.  The beginning stages of your diagnosis are the hardest.  Please lean on us for any support you need okay!
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/4/2008 5:56 PM (GMT -7)   
Hi there, I also wanted to welcome you. I can't help much with the fibro. One doc thought I had it when my lupus symptoms first started, but since then several doctors have confirmed that I don't have it. There do seem to be a lot of members here who have both fibro and lupus so it seems fairly common.

As you can tell, we have a great group of people here. I'm glad you joined us :)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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