Pregnancy and meds

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applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 1/5/2008 12:54 PM (GMT -7)   
hello everyone,
i have a question for those who have children, did anyone have kids after they were diagnosed with lupus? and if so what happened during your pregnancy and what medications were you on while you were pregnant?  i was checking all of my medications on-line and trying to figure what pregnancy category they fell into, and a lot of the medications i'm on it says that you should only be on it if needed. so that worries me alot because if i am able to get pregnant and i do end up pregnant i dont want to be taking anything that could potentially hurt the  baby, but i know that some medications i need to be on or it will be bad for me? i'm not really sure what to do, i see the endocrinologist in march to find out if its still possible for me to get pregnant, and i know that a lot of people are waiting for me and my hubby to have a baby, and we both really want a baby but as usually i am very hesitant because i dont want anything to happen to me and it would kill us both if i ended up pregnant just to lose a baby. any advise will truly be appreciated on this subject.  much love.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/5/2008 1:46 PM (GMT -7)   
Hi Suzanne,

Hey sis . . . you've been though so-o-o-o much. First of all, be very focused on whether or not you and your hubby want a baby. I know there is a feeling of pressure from family . . . but this isn't their call . . . so be very selfish about your decision in this regard.

I know how desperately I wanted children from the time I can remember (3-4 years old???) and I know I would have been crushed if I couldn't have my own . . . so I really do understand the desire for bearing a child. Mine are grown now and I have some friends who have fostered, then adopted, a couple of kids . . . . I actually feel guilty for not having done that myself. What a beautiful family. The beauty was that the kids were temporary placements and only after all was working well, they started the adoption process. So there is even a way to "test the waters". . . . nuff about that.

The first step I would take is to make an appointment with a high risk OB/GYN and go over all the knitty gritty with a real doctor. Everyone here can tell you their experience . . . but we are all so different and you having had a kidney transplant, gives an added dimension. But there are some members here who can share their experiences. Emma'smom just had a second baby and Redrose is well into her pregnancy. I had my children before I was on any meds.

((((((((Suzanne)))))))))) Hugs and hot tea for you . . . along with a sincere prayer that you and hubby will sort through this and come up with a decision that will be best for you and him.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/5/2008 5:25 PM (GMT -7)   
Sounds like very sage advice! I am single and do not have children. My sister was unable to conceive and has adopted a beautiful little boy. We often "forget" he wasn't born to us. He is amazing! Keep it in mind as an option. It's a beautiful experience. God Bless, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/5/2008 8:15 PM (GMT -7)   
Wow.  All I can say is that if you have trouble looking after your own needs some days, then you can't look after a child properly.  I know that sounds harsh.  But that's how I feel.  There are days when I even find my cat to be a handful.  I would feel irresponsible bringing a child into my life.  It's different when you've had children first, and then get the diagnosis.  But when you KNOW the issues you have and the medications you have to take to survive, and the fatigue, pain, and potential complications you might have, it's a completely different ball game.  Even if you're in a remission state, or feeling very well, all that can change in a heartbeat.
 
I'd love to have children, but I know I'll never be a mom.  Ever.  Even adoption is out for me.  Who in the world will give me a child knowing my medical history!?  Also, even though I wouldn't be pregnant and have to figure out the medication stuff and all the other crap that can happen while pregnant, I still have to be able to raise and nurture this child.  Having kids is like having 2 full time jobs.  Can you manage 2 full time jobs AND have lupus?  I sure can't. 
 
Instead, I'm the best darn aunty my little nephew will have! Please consider this very carefully.  Just looking out for you,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 1/5/2008 9:21 PM (GMT -7)   
thanks for the advise rosie, judy and ginny. i really appreciate the replies. and pregnancy and all that come with it is not something my hubby and i are taking lightly. and although everyone does want us to get pregnant rosie you are right we are being very selfish, we have told everyone that we will have kids when we are ready and we leave no room for arguements or questions. and as for adoption i am very open to that, my dad's aunt adopted her oldest son, and my parents have friends who have also adopted. but i the hubby is very hesitant about it. i think he believes that he cant love someone else's child the way he could love his own but he did say that if exhaust all possiblities of having a child naturally he will consider adoption. and i know where you are coming from ginny, it is hard to for us to take care of ourselves especially during a flare, let alone trying to take care of a child. but honestly i (and my hubby) are willing to take that added responsiblity, and god bless the friends that i have around me cuz i know that if i needed help all i would have to do is call. and i know how hard it is cuz during christmas when we were in chicago we took my nephews to the museum and its not even that they were bad or anything but all that walking, watching, and helping them was tiring, but what made it all worth every pain was to see how happy and much fun they were having. i have given this alot of thought (at least 4 yrs worth) and all i know is i want my own family complete with little babies crawling around. i just hope that it works out that way.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/5/2008 9:58 PM (GMT -7)   
Hi Suzanne,
 
I'm in tears right now because I know where you're coming from with all this.  I would love so much to have my own little family, complete with little kids.  It's something I think about a lot too.  Especially when I see my sister with her little boy (adopted!), and all my friends with their kids. I also see all the fun they have during holidays and get togethers, their vacations, etc.  I don't want to miss out on that either. I often wonder who will come to visit me and hubby when we're in the senior's home!  Maybe WE'LL be the ones who are adopted by someone else's grandkids!  I feel isolated from my friends and I can't relate to their lives now.  It's hard.  Do you find it this way too?  I'm not getting any younger either.  I'll be 34 next month, and I can already see changes in my hormones.  It's defeating to think that the possibility of being a mother has been taken away from me.  I'm very angry and sad about that fact.  Having A LOT of troubles getting past my feelings these days. 
 
I really hope it works out for you too.  I'm so glad you are taking this very seriously and weighing all the pros and cons.  You sound like you're doing all your homework and making sure the family doesn't pressure you. I'll be praying for you too.  Keep us posted on how things are progressing okay. 
 
Oh, to answer your question about the meds! Hahahaha, I guess we should address your question eh! Heehee.... I was told that staying on the prednisone was a good idea.  But I have no idea about your other meds.  I'm not on any of them.  I hope there are others who can direct you on them!
 
Blessings,
Ginny 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/5/2008 10:01 PM (GMT -7)   
I say get your disease fully under control. Take a look at my current meds list, I am pregnant and followed by 2 different OB groups and also all my meds were screened by reproductive genetics. Hope this helps. I had to get my diseases under control before I even began to consider a pregnancy.



Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

Post Edited (redrose77) : 1/6/2008 6:23:35 PM (GMT-7)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/6/2008 3:45 AM (GMT -7)   
Ginny . . . I just want to say that you made a very brave and selfless statement up there. I can think those things . . . but I wouldn't say them because I had my kids before my dx. But as for my grands?? I love them to pieces and they are absolutely delightful and loads of help . . . but the truth is, the fatigue and pain and other issues that come with this dd keep me from fully enjoying them for any more than a few hours or an overnight. Even those times are carefully selected and I am a mildly affected lupan (no organ involvement . . no big drugs). Thanks Ginny for being so honest. This is a really difficult topic.

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Post Edited (AlwaysRosie) : 1/6/2008 4:19:50 AM (GMT-7)

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