Welcome to New Member vdubshani!!

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AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/6/2008 3:53 AM (GMT -7)   
Vdubshani's first post was copied from another topic and I want to make sure everyone gets a chance to say ehllo!!

vdubshani said...
this thread has freaked me out...i go thru everything that has been said on a daily basis...i just thought i was getting older (28) or it could be from all the fun i had in my late teens and early twenties...ive never told anyone about the drunkeness feeling because it didnt make sense to me...how could i feel drunk with nothing in my system, not even sugar or caffeine...i was told i have lupus last year but not to worry cause a couple tests came back positive and a couple didnt...i dont even remember what he said cause i have no memory anymore...the dr said just to stay out of the sun and it wouldnt bother me...but ive noticed several similarities thru reading this site...hands, feet and nose always cold...no energy...always tired with plenty of sleep...weak arms and legs...just thought random things happening based on age and lifestyle...but this brain fog post is way to similar to dismiss...should i get a 2nd opinion or is it just something i have but not as serious as others and it wont bother me...

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 1/6/2008 7:16 AM (GMT -7)   
If Rosie wants me to 'say ehllo', that's what I'll do, even though it's hard to pronounce and I don't know what it means! :-)

Hello! Welcome to our little corner of the web....

Unless you are playing around with illegal drugs or drinking a lot of alcohol, these kinds of symptoms are NOT part of normal aging until at least 55+.

Do you have a rheumotologist? Have you mentioned all these symptoms to him/her? Are you taking any medications for lupus? If you can answer yes to these 3 questions and are not getting any treatment or symptom relief, I'd say that getting an second opinion would be a great idea.

Not all rhuemy's are knowledgeable about lupus, so if you are in the US, try www.lupus.org. Look for a chapter in your area, then check with them and see what doctors they have listed. These are the drs that *really* know something about lupus, keep up w/lupus research, and are worth seeing.

Hope you get to feeling better soon,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

Post Edited (Lynnwood) : 1/6/2008 9:25:25 AM (GMT-7)


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/6/2008 9:14 AM (GMT -7)   
LOL, Lynnwood that is funny! ehllo!

Welcome!

hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 1/6/2008 9:23 AM (GMT -7)   
Welcome Vdubshani. You have found a great group of people at this forum. I'm glad you joined us :)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 1/6/2008 3:00 PM (GMT -7)   
hi and welcome Vdubshani, lynnwood asked some really good questions why dont you tell us a little more about yourself. a lot of our symptoms are from the lupus and some are from the side effects from the meds that we take. and if you believe that your doc was not thorough enough its always good to get a second opinion. lupus is not always just diagnosed from test, i'm not sure about others on the forum but i had 6 of the 11 physical symptoms and the lupus also attacked my kidneys. please keep us updated.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


texasrose
New Member


Date Joined Dec 2007
Total Posts : 14
   Posted 1/6/2008 7:17 PM (GMT -7)   
Find another doctor!!! Even if you don't have Lupus sounds like you still need a new doctor. Welcome and keep us posted.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/6/2008 7:44 PM (GMT -7)   
Welcome!
We look forward to getting to know you better.  I'm sorry you're not feeling well and having so many issues.  Yes, more than one opinion from a doctor is a good idea.
 
Let us know how else we can help you,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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