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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/7/2008 5:55 PM (GMT -6)   
I just wanted to say a qick hello and thank you for all your thoughts prayers and hot tea! And hippi, thank you so much for the phone chats and keeping me sane thru this. Also Pat thanks for checking into the info on a new rheumy anything will be helpful but don't over do it. You all need your rest and detress after the holidays.
My belly is all swollen like a balloon from the iv steroids. plus I got the lousey mirgrains going on. I'm really tired but I'm hungry too and don't feel like fixing anything. The home health care will be coming out 2 or 3 times a week for at least the next 3 years. Unfortunately it's not gonna be set up for about 3 more weeks. I really can't afford to have somone come out and help me right now. Well right now I'm just rambling. I tried to read some posts but I know I won't remember it so I'll wait a couple of days and make another attempt to try to catch up. There are al;ot of tyhings I really want to kick around with ya but right now it's jst to much to wrap my head around.
anyway thank you all again so very much. My thoughts are with you always
God Bless
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 1/7/2008 6:16 PM (GMT -6)   
Carol, ((((((HUGS))))),
I'm glad you're home.  Thanks for checking in with us!  2-3 times a week for 3 years?!  That's amazing.  How do you feel about that?  That's a long time.  I hope that in much less time, you can tell them you don't need that service anymore because you're well!!  We'll all be praying for that to happen.
With the IV steroids, I found that drinking more water really helped.  I know what the bloat is like too.  What dose of steroids are you on now? 
Keep well and stay positive Carol.  You're an inspiration to us.  You have tremendous patience and such a positive outlook.  Love ya sis!!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 1/7/2008 9:09 PM (GMT -6)   
So glad your home! Take good care of yourself girl! God Bless, Judy

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 1/7/2008 10:00 PM (GMT -6)   
(((( Carol ))))) glad to hear you are at home. You will be in my thoughts and prayers. Take good care of yourself! Hugs and love

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

Regular Member

Date Joined Sep 2007
Total Posts : 151
   Posted 1/7/2008 10:03 PM (GMT -6)   
Nothing like sleeping in your own bed with your favorite pillow, eh? Good to hear your back home!

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 1/7/2008 10:09 PM (GMT -6)   
((((Carol)))))) Rest well sis . . . yes, we'll catch up later. I hope you are feeling better being at home and in your own bed.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Apr 2005
Total Posts : 1529
   Posted 1/8/2008 12:58 AM (GMT -6)   
It is very good to read that you are home! You keep resting......Maybe your brother and sis-in-law could bring you some meals and help get your place in order. Or how about your church....any groups or "circles" or friends you could call on there? Don't be afraid to ask. This is a special situation so you definitely not "out of order" to ask for and get some help.

We love you and will be waiting for when YOU are ready to fill us in.

xoxoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditiis Raynauds, Sjogrens, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia fibromyalgia[

Forum Moderator

Date Joined Jun 2006
Total Posts : 1533
   Posted 1/8/2008 2:37 AM (GMT -6)   
Hi Carol.  It's gret to hear that you're back home!  I know you're feeling pretty miserable, so get some rest.  I'm sending prayers and lots of positive energy.  Love, Donna

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna

Regular Member

Date Joined Oct 2006
Total Posts : 281
   Posted 1/8/2008 6:59 AM (GMT -6)   
Carol I'm late in jumping in on this thread, but I was sorry to hear that you were in hospital. It sounds like you are having a rough go of things yet. I hope things even out for you and you get some relief shortly.
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

Veteran Member

Date Joined Jan 2007
Total Posts : 607
   Posted 1/8/2008 9:24 AM (GMT -6)   
glad to hear that you are home.  Get some rest and hope you recuperate soon.

DX SLE 1988; Pred 10mg, Cellcept 2500 mg, Verapmil 120 mg (for migraine headaches), Famotidine 20 mg BD, Volteran 150 mg (temporary), Calcium + Vitamin D 1200mg

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 1/8/2008 9:58 AM (GMT -6)   
Carol, I'm glad you made it home okay. It's really too bad that home health can't start for a few weeks, especially now when you could probably really use it since you still aren't feeling well. I agree with emmi about seeing if your brother or any church friends could maybe help out for a little bit - getting some groceries, etc.

Get lots of rest and try to take extra good care of yourself.

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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