1st day at Mayo Clinic!!!!!

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Leta
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Date Joined Aug 2005
Total Posts : 590
   Posted 1/7/2008 10:11 PM (GMT -7)   
Everyone,

I hope you all are doing well. Today I had my first visit to the Mayo clinic in Scottsdale AZ. It was interesting. I met with the only integrative doctor at this location, he is originally from Rochester where he was there 20 years. He is my intake and Internal Med doc during my entire diagnostic work up and specialist visits. They took 16 tubes of blood, forgot a page and I will go back for that next week. The physical exam and history was 2 hours, very nice doctor!!!!! He knows my Hematologist too!!! I am taking a ton of records to him next week. They know I have moved to the area for the next year or so to get work ups and continue my care by their specialists for at least a year or more. The headache specialist is booked until April, but I have made it this long. Other than him, I see the other docs in the next few weeks. They spread out my appts for me as I told them too much in a week was more than I could handle. They were wonderful!!!

My PC there did state he knows the cause of part of my hip pain and it is due to being flat-footed. No other doctor has caught that before. They are probably going to check my hearing, diabetes, maybe sleep tests and things go further. To me this is worth it to find out what is going on.

I will keep you updated as I have more visits.

Leta
sle 01 w/cns/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, multiple allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D deficiency 4/07, Iron deficiency ferritin 8/07, Chronic migraines 01. Meds- baclofen 40 mg, prenatal tabs, potassium, calcitriol 50 mcg, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 400 mg, darvocet 100 mg, percocet 5mg, amitriptyline 10mg, chromagen, verapamil 40mf, Amitriptyline 10 mg. <font color=...></font> Purple Text


emmi
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Date Joined Apr 2005
Total Posts : 1529
   Posted 1/7/2008 10:50 PM (GMT -7)   
Leta,

It's great that your first visit went so well. It sounds like you are very happy with your Internal Med doctor. Be sure to let us know how things go after you meet with each specialist.

emmie
PS I am also flat footed
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditiis Raynauds, Sjogrens, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia fibromyalgia[


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 1/8/2008 12:31 AM (GMT -7)   
Hi Leta.  Having a doc who takes time to listen to your history can be hard to find.  I'm so happy you're getting the medical care you need!  Love, Butterflake

Dx: SLE diagnosed 2005, major depressive disorder, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil, methotrexate, Imuran, prednisone, prozac, celebrex, lisinopril, actos, lipitor, nexeum, seroquel, arthritis tylenol  PRN: ambien, neurontin, promethazine, xanax
supplements: multi vitamin, C, flaxseed oil, calcium/D
             Better living through chemistry :D    Donna
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/8/2008 8:07 AM (GMT -7)   
Sounds like things are moving along for you Leta! Sorry you can't see the headache doc for 4 months!! That's insane. But I guess a person can only do one thing at a time. They need another headache doctor!!

I hope they find all that is ailing you and set you up with a great treatment plan.

Looking forward to updates!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


texasrose
New Member


Date Joined Dec 2007
Total Posts : 14
   Posted 1/8/2008 6:56 PM (GMT -7)   
Keep a positive attitude and keep us posted. God Bless a good doctor they are hard to find. That's sad.

NanaBee
Veteran Member


Date Joined Jun 2005
Total Posts : 533
   Posted 1/8/2008 7:12 PM (GMT -7)   

Hi Leta,

I was excited to see you are going to the Mayo clinic in Scottsdale.  I live in Mesa.  Maybe we can get together sometime.  I would be very interested to see how things go with the Mayo clinic.  Keep us posted.  I hope things go very well for you.

 

Mary Ann yeah


 
** MCTD,Fibromyalgia,Raynaud's June 2005
**Sleep Apnea - February 2006
**Pulmonary stenosis, High blood pressure, IBS, degenerative disc disease, vertigo
**Meds:  Plaquenil, MTX, Lyrica, Folic Acid, Metoprolol, Lotrel, Vicodin
 "No matter what happens, God is in control.  He is God, I am not, what a relief!"

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