Hi from "the other boards"

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 1/10/2008 3:01 AM (GMT -7)   
Hello lovely people! I came onto this forum because I noticed there were a few posts on kidney disease and I wanted to ask a couple q's. I am a first-year medical student and have been quite unwell since I started in September - 15-20 bathroom trips/day to have diarrhea, a 25-pound weight loss, intermittent fever, hypokalemia, serious bruising, and most recently a series of urinalyses that show 3+ protein (no blood, no leukocytes) over the course of a couple of months. At one point my GI was thinking this was lupus and I think he ran a pANCA and some other antibody tests (will be getting the records soon) but now I'm lined up to see a nephrologist. Every time I try to figure it out in my textbooks, this lupus nephritis issue comes up. I have not had any other lupus-like symptoms (no joint swelling, no rashes, etc.) but I am a sickie thing and thought you might have some words of guidance for me! What's the nephrologist looking for, and how will he do it?

I appreciate your advice. This seems like a really lovely forum - keep it up!
Co-moderator - IBS Forum


IALupus
Regular Member


Date Joined May 2006
Total Posts : 78
   Posted 1/10/2008 6:24 AM (GMT -7)   
Welcome to the Lupus site.  I don't have any information for you as my kidney problems were pregnancey induced. 
I hope that you get the information you need,  I am sure someone will help you in here.  They are great.
Good luck and keep us posted!!!
 
SLE 9/99-Autoimmune Hepititis 2006- Asthma- Fibromyalgia   The list is tooo long for me to type!!  Just ask I will tell.
Methotrexate, Immuran, Singular, Protonix, Allegra-D, Combevent, Duo Neb, Lasix, Imeripex, Flexiril, Zoloft, Predisone and pain meds. There is more but not that important.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/10/2008 8:19 AM (GMT -7)   
Welcome to the forum Sarita,

If my brain worked well, I'm sure I'd be dangerous. I do remember someone posting in the last couple days and stating that their severe kidney issues were not labeled lupus until they had a kidney biopsy done. Her blood work was all negative for any of the anti-bodies that often give a clue that one has lupus.

More of us do not have kidney issues . . . but there are several very knowledgeable lupus/kidney members on this forum. I'm sure they would respond if they saw the word "kidney" in your topic. In case you don't know how to change your title, just click the pencil in the upright right side of your first post (the editing screen will show up with the title and your post and you can change it).

I'm sorry you are having so much trouble. Lupus does attack young women quite often so that is one clue. But often the biopsy is the only connection to lupus initially. Feel free to ask any questions . . . the members here are quick to help.

Sorry I couldn't be more help . . . just wanted to welcome you to the forum. Some hot tea for you sis!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 1/10/2008 9:24 AM (GMT -7)   
hello sarita,
i am one of the members with kidney nephritis, my docs were able to diagnose me very quickly because i had alot of the phsyical syptoms of lupus, plus i was spilling protein and blood in my urine, and my creatinine was extremely high. have you done a 24-hr urine or regular blood work that included a CMP? and rosie is right, the best way to detect lupus especially in the kidneys are with a biopsy because not only does it tell you if your kidneys are being attacked but also how badly they are being attacked and how much damage the lupus has done. i also have medical background and i know that some kidney issues are not always a result of lupus. so i would say do jump to conclusions but see the docs and get answers. good luck.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/10/2008 6:18 PM (GMT -7)   
Hi Sarita, I'm one of the "kidney" people too. I started spilling massive protein and blood. I was diagnosed per biopsy. I also had no "classic" lupus signs and my ana/antibodies were negative and remain negative. I did have elevated creatinine, esr, rheumatoid factor. Over the years I started having "other" organ involvements and more classic lupus signs. Have you looked at the nephrotic syndrome? Some people have idiopathic nephrotic syndrome. Has you blood pressure been elevated? Around your eyes/ankles puffy? Just throwing some ideas at you. Look up Nephrotic syndrome if you get a chance. Let us know how things turn out for you. God Bless ya, Judy

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 1/10/2008 11:21 PM (GMT -7)   
Thanks everyone for your replies! I do have these "other things" going on but I wasn't expecting the kidneys to start goin' quite yet! Every time I pee I definitely notice that I'm excreting protein (milky pee, mmm!) but haven't had any edema or related symptoms. When I first had it I thought it was stress-induced (increased norepinephrine release can cause transient proteinuria, just FYI - ah, the tidbits you learn in med school). But that's pretty unlikely after having 3+ urine on four independent dipsticks.

My BP is normally around 110/60, and I did notice it was 130/80 on a couple of occasions in the past couple of weeks. I am partially inclined to attribute that to stress as well for the moment - increased BP can result from so freakin' many issues - but I'll keep my eye on that as well. No other kidney-related symptoms; no edema, no hematuria. We'll see.

I really appreciate the experts chiming in, although I'm sorry that you've all been forced to become experts at something so dreary. I do admire your strength and perseverance.
Co-moderator - IBS Forum


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/11/2008 7:36 AM (GMT -7)   
Sarita . . . make sure to keep us posted on your progress!! I hope your kidney issue is NOT auto-immune.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 1/11/2008 9:02 AM (GMT -7)   

Hi Sarita,

I have lupus nephritis and I was diagnosed with a kidney biopsy. My blood pressure is normal and so are all my labs except for an ANA of 1280. I also have diarrhea and had lots of protein in my urine. The main difference is I had lots of swelling, but I have membranous and it is characterisitic of nephrotic syndrome. You obviously have something going on. Good luck and keep us posted on your progress!

Sandy


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, amiloride, klor-con


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/11/2008 9:24 AM (GMT -7)   
Hi Sarita and welcome to the lupus forum. I hope the nephrologist can get to the bottom of what is going on. Any problems with your kidneys can feel kind of scary. You've gotten some great feedback from other members with kidney issues. I never had anything serious, just a nine month period where I had consistently high levels of protein in my urine - anywhere from 1+ to 4+ on the dipstick and a couple of mildly elevated 24hr urine protein tests. I did see a nephrologist during that time who kept an eye on things and said that if I ever had blood in my urine or if the 24 hr protein levels got higher, he'd do a kidney biopsy. From what I learned from others here is that a kidney biopsy is one sure way to know if it's lupus nephritis. Thankfully my urine protein problems pretty much resolved after I started taking prednisone - I just get things checked about every 3 months, but I don't have to see the nephrologist anymore. Also, during that time, I had high blood pressure too which I don't usually have.

I hope things go well with the nephrologist. Keep us posted and let us know what you find out.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums


New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 2:56 AM (GMT -7)
There are a total of 2,731,994 posts in 300,980 threads.
View Active Threads


Who's Online
This forum has 151146 registered members. Please welcome our newest member, LadyCapricorn.
153 Guest(s), 2 Registered Member(s) are currently online.  Details
Gemlin, maria2016


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer