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BlessedBe
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 1/11/2008 8:15 AM (GMT -7)   
On my way to the rheumatologist to get the latest results...Please wish me well!  I'm a bit anxious confused
Wife, Mother, Nurse
SLE with all the additives, sjorgens, raynauds, RA etc.
Plaquenil, Effexor, serequel for sleep.
Refusing Steroids


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/11/2008 8:48 AM (GMT -7)   
Hoping your doc gets this puzzle figured out!! Give us the details when you return Be !!! Good luck!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/11/2008 9:15 AM (GMT -7)   
I'm hoping you have a great appointment and that you get some answers. Let us know what you find out.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/11/2008 12:21 PM (GMT -7)   
Good luck and let us know how it goes. Judy

BlessedBe
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 1/11/2008 2:25 PM (GMT -7)   
Ugh.  So the latest is that I have primary Sjogrens which consists of only dry mouth, secondary Sjogrens as a result from other auto-immune disease (i.e. Lupus) presents with both dry mouth and dry eyes.  I found that interesting at least.  Anyhow, with this diagnosis I have found out why my lymph nodes are being checked so often.  Sjogrens as a primary disease has a 44% chance of causing Lymphoma. (Hodgkins generally).
 
I guess the break down is that I have Sjogrens which mimics Lupus and all the other immune diseases.  Treatment is the same as for the others, plaquenil and steroids...still refusing them nono
 
*sigh* Thanks for letting me vent
Wife, Mother, Nurse
SLE with all the additives, sjorgens, raynauds, RA etc.
Plaquenil, Effexor, serequel for sleep.
Refusing Steroids


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/11/2008 2:29 PM (GMT -7)   
((((((((((Be))))))))))

Oh Be . . . I hope that number is skewed. That sound sos high!! Would be frightening to think about. I hope your meds work well for you so you won't need the steroids. Will post if I can find any info about those odds.

Meanwhile . . . sending you a pot of hot tea sis!!

Blessings!

BlessedBe
Regular Member


Date Joined Dec 2007
Total Posts : 24
   Posted 1/11/2008 2:44 PM (GMT -7)   
This is where I've gathered a lot of info.  The site seems appropriate to me both as a consumer and a healthcare prof.  Let me know what you think.
 
Thanks for the tea!
 
 
Click on 'full text' on the right and then scroll down to 'discussion'


Wife, Mother, Nurse
SLE with all the additives, sjorgens, raynauds, RA etc.
Plaquenil, Effexor, serequel for sleep.
Refusing Steroids


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/11/2008 5:05 PM (GMT -7)   
Thanks for the link Be.

I hope this will be good info. The test suggests that lymphoma is 44x as likely in those with primary sjogrens as in general pop. You would need the incidence rate for the general population to know if this is a better scenario than the 44% that you posted above. There could be a big difference between 44% and 44x . . . . .

Example: if 1 in 1000 people gets lymphoma in the general population . . . someone with primary sjogrens could expect 44 in 1000 chance.

if 44% of sjogrens patients get lymphoma . . . that would be 44 out of 100.

See the difference??

Now . . . the big question is . . . what is the incidence of lymphoma in the general public? I'm sure it is much higher than 1/1000 . . . but I used that number to just to easily demonstrate a point.

I'll post if I do find that %.

Still . . . VERY scary . . . sorry you are dealing with this.
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