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Snickerdoodle
Regular Member


Date Joined Aug 2006
Total Posts : 142
   Posted 1/12/2008 12:41 AM (GMT -7)   
Hi All. I live just south of Chicago. This is my 3rd winter dealing with my UCTD. And this cold is killing me! I thought at first I was having some sort of flare, but a few days ago our temps were 60's! (so wierd)And I felt better for a day or 2. Anyhow, I spend anytime I can in a hot bath or under the heating blanket. I still am 2xs as stiff in the AM. And having more joint pain through the day than I was. Not to mention the heat is drying my eyes. I think I use eye drops 4 x a day atleast. Just wondering how you seasoned Lupies deal with the change in weather..... Any suggestions?
 
Melissa
Dx: UCTD,Raynaud's,iron deficientcy anemia,proteinuria
Rx: Multi-rec folic 500, Celebrex 200 mg, Plaquenil 400mg, Ultram PRN


Blubryprncss
New Member


Date Joined Jan 2008
Total Posts : 14
   Posted 1/12/2008 5:55 PM (GMT -7)   

Hi Snicker!

I know exactly how you feel, the cold weather does the same thing to me. There are times when I get so cold that my whole body hurts.  Here are a few things I do in order to survive.

In the morning I take a hot shower first thing or else it would take me 2 hours to get my body moving. In the winter I wear long underwear under my dress pants to work along with a long sleeve shirt and a heavy cardigan sweater or a sweater under my suit coat. This year I went out an bought a long down coat and it was the best money I have spent in years....lol. At home my house is warmer then most peoples and I still wear sweatsuits and long sleeves in the house. I know this is going to sound really strange but in the winter because I am so cold, my feet are usually like ice so now I go to bed with a hot water bottle filled with the hottest tap water for my feet (not very sexy but my husband likes the fact that I don't put my cold feet on him anymore...lol).

These are just a few things that I do in order to survive the winter. One more thing, everyday I wait with anticipation for the weatherman to say my 3 favorite words.....Hazy, Hot and Humid......lol. I hope some of this has helped.
 
Keep Warm,
Blubry
diagnosed rheumatiod arthritis, raynauds, MCTD 2002, lupus 2007
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/12/2008 10:25 PM (GMT -7)   
I mellissa, this is actually my first full winter in oklahoma. I spent over 20 years in arizona before that. So I'm kind of learning right along with you. BTW I grew up in michigan city indiana so I know the cold your referring to. I have actually slept with my feet wraped in a heating pad because the cold is so bad it hurts my toes. I have a friend that buyssupport hose and the tight long johns so they don't stick out under her work clothes. She keeps a pair of gloves in her pockets all the time.
I heard the sleeping with a heating blanket actually works better when you put it under you instead of over you. it may help with the muscle aches. Other than that it sounds like you may need to discuss with you doctor some other treatment. You shouldn't have to suffer like this all the time.
I hope you can get some releif soon.
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular,nitro spray, aciphex, diovan. 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/12/2008 10:38 PM (GMT -7)   
I'll make this really short and to the point.... I suffer and live with it.... It's all I can do!  LOL.  I know it's hard to live with the cold.  You get stiff and sore all the time.  Unfortunately, I suffer in the heat too.  So I can't win any time of year.
 
I have raynauds, so I have to make sure my hands and feet are extra protected.  Other than that, I just live with the stiffness and soreness.  I don't take much for pain at all.  A hot bath is always nice!
 
Stay warm!!!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 1/12/2008 11:40 PM (GMT -7)   
Hey, I'm in the Chicago are as well. That 60 degree stuff was nice but so, so wierd! Anyway, I think the cold here is always a damp cold. I know it makes me more stiff and achey. The humidity in the summer does the same thing.

I have a severe case of Raynauds (even had some sugery to help it). The little instant warm packs can help a lot. I even tuck them into the pockets of my jeans. It does help. With Raynauds, it's important to keep your core body warm and to wear a hat since most of our body heat escapes through our heads.

HTH

emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia

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