achy pain......

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KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/12/2008 9:53 AM (GMT -7)   
Hi. I went back to the gym yesterday. I did some bike and eliptical, I felt fine during but after I got home later on that evening my knees and leg felt this awful achy pain. It felt like a very deep bone crushing ache. I had trouble falling asleep from it. Anybody get this feeling after excercise?

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/12/2008 6:08 PM (GMT -7)   
Ever since my lupus symptoms started, I can't push myself too hard with exercise or I feel just rotten. My body ends up hurting really bad and I feel flu-ish - like I've been run over by a truck.

Try really hard to pace yourself. I used to be a fitness fanatic before lupus and it was really hard to give that up and learn to go at a slower more steady pace. I find that if I push myself too hard I pay dearly and can't exercise again for quite a while.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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ocean1
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Date Joined Dec 2006
Total Posts : 707
   Posted 1/12/2008 7:12 PM (GMT -7)   
Start out slow and gradually build to a tolerable level.  I also have pain after working out and it's not just the general muscle pain people get if they overdo it.  It's the all over achy bone deep pain that seems to radiate all over.  My doctor has said to just try simple walking as my form of exercise as biking and running are just too hard some of us.  So, I now just walk for about 10 minutes 3-4 times a day and have found that I do not have as much pain as I used to.  It still gives me some form of exercise but not too strenuous.

Diane
________________________________________
Lupus 2008; Primary Biliary Cirrhosis 2007;IBS 2004; Chronic Hives 2002.
Medications:  Allegra, Zantac, Ultram PRN, Xanax, Darvocet, Ursodiol.


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/12/2008 7:14 PM (GMT -7)   
Hi KaAl,

So sorry you are having trouble with your workout sis.

Me too. I need to very gradually bring activity into my life after a flare. While I'm flaring, I can't even tolerate a 5 minute walk. Just 4 years ago, I was backpacking and walking 11 miles with a 35 lb. pack . . and sleeping in on the ground in a tent which I carried on my back!! ARGH!!! I miss those days!

So . . .once I'm on the mend, I start with very short walks . . . I just take the dogs and walk a short way down the street and return. For some, it may be just to the mailbox. If this goes well, I may begin doing this a couple times a day . . . then after a few days, I'll increase the distance just a bit. It took me many weeks to get up to 1/2 mile. My rheum said don't increase your activity any more than 10% in a week. . . and only if it is well tolerated. I think this activity ramps up your immune system, which then attacks your body . . . so you have to build extremely slowly. I am finding that if I divide the activity, I can get a way with more.

I hope this helps.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/12/2008 10:13 PM (GMT -7)   
Hi Kaal, boy we always seem top want to do more than we should sometimes. I'm sorry you are hurting. Sometimes a littleextra like 5 mg of predisone can help releive the pain. It's great because it's not alot and it seems to only take a couple of hours to releive the pain. Maybe you could discuss this with your doctor? It has even been suggested to me to exercie in a pool. so that the pounding isn't so bad.
I hope you can find a happy medium and don't have the suffering keeping you up at night
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular,nitro spray, aciphex, diovan. 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 1/12/2008 10:41 PM (GMT -7)   
Another yes from me!  I have to start out really slow and see how much my body can tolerate.  I can only do 10 mintues on the eliptical.  I can do an hour of pilates though!  That is a good workout and it's easy on the joints.  I just started it too.  so that is worth considering for sure.
 
Like the others said, just take your exercising really cautiously at first and do short routines a couple times a day, instead of one big one all at once. 
 
hope this helps!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


jdeet
Regular Member


Date Joined Jan 2008
Total Posts : 32
   Posted 1/13/2008 7:54 AM (GMT -7)   
ginny i see you are 33.  my brother is 28 and he is being tested for lupus.  can you tell me your symptoms when you were diagnosed. 

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/13/2008 11:00 AM (GMT -7)   
Jdeet, I responded to your question in your other thread. We'll keep this topic open for KaAl's questions.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/13/2008 11:23 AM (GMT -7)   
Thanks ginny, I think jdeet just hijacked my thread!!! LOL, just kidding.

I think I will try pilates. Sounds good. I really do NOT look forward to the gym if I end up with awful pain afterwards, that's for sure. I mean, I have a hard time getting myself to go in the first place. NO motivation. No drive. ZERO! I used to workout 5days a wk, really hard too!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/13/2008 1:39 PM (GMT -7)   
Me too!  I used to work out a lot at the gym.  I had motivation and I felt great after a workout, even with my lupus and fibro.  Now, I'm like you.  I can't tolerate exercise much at all.  I feel so crappy afterwards and who the heck wants to exercise if they feel like that after!?  Motivation is hard for me as well.  I think doing the pilates with someone helps me be accountable.  And it's only once a week.  I can do as much as I want at home on the off days.  I think, if anything, the pilates will give me some core strength and help me keep my back and other muscles strong.  Anything to help right!  I'd totally recommend the pilates.  Give it a go!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/13/2008 5:44 PM (GMT -7)   
I'll give it a shot!

KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/13/2008 5:44 PM (GMT -7)   
.............Maybe..............hehehe
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