In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Hi Kacey, thank you so much for letting us know. If she has to be in long Please let us know if she is up to a phone call at the hospital. I know how lousey it can be. I just did two stence in there myself for my lungs.
Tash I'm so sorry you are having trouble. The drugs they have you on will really help with the breathing problem. It just takes a while to get them to work. The good news is that it isn't a blood clot! The bad news is that medicine will make you want to eat everything in sight. I used to have them bring me in crackers and tea at night it helped alot. Just hang in there and take it very easy. Being low on oxygen just wipes ya out. If ya need anything let Kacey know. I'm the queen of lousey lungs. We can compare notes. Try not to get to down and think of it as a time when all you have to do is push a button and somone will be there for ya. Of course the t.v. sets kind of stink!
lots of love and prayers
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
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You have a whole bunch of us praying for you. So sorry you're going through so much. We're glad to have the updates on how you're doing. I hope your rheumy gets back soon to help you.
Bless your heart! ((Hugs)) I didn't know you were going through so much sweetie. I hope your appt with the rheumy goes well on Monday and this gets taken care of properly. Please take care and keep us updated. You are in my thoughts and prayers.
Thanks everyone for your support. Our hospital system is free over here and my Rhemmy was away on holiday, because of my lupus and other medical conditions that I have developed over the years it is far to expensive to get medical insurance and no one seem keen to insure me anyway, gosh I can't be that scary can I? lol But he is going to write a letter to put in my file to make everyone aware that he is looking after me and that I need my lupus meds so there should be no problems from now on hopefully.
I saw him on Monday and things went very well I felt so relieved after seeing him my stresses eased up so much and i felt so much safer. He did mention a kidney biopsy because he said my kidneys have been so up and down lately one test they are good and the next they arent. Has anyone ever had this with kidney problems before?
I am to see him again in a week to let things settle down a bit , Im glad the building is stable and i think i would have shaken it down I am so unsteady and the moment. He needs to study my notes and decide what plan of action to take and to get my lupus under control plus controlling all of the inflammation around my heart as he said this is very dangerous. He wasnt keen on the iv steriods but did say that sometimes it is a must in theses circumstances. So this week I get more bloods done and just try and hold my own, I did try and cut down to 50mg pred but its just not a possibility at the moment as from all the stress about the hospital its made my lupus worse, even though I am quite sick at the moment im very happy that things are working out. I will keep you updated on my next appointment.
take caretash 32