the Lupus test?!

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firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/15/2008 8:25 PM (GMT -7)   
I have this co-worker who claims that her doctor keeps begging her to take the "Lupus Test".  She knows that I have Lupus and constantly talks to me about it and keeps saying, ya, I'm finally ready to take the Lupus test my doctor keeps telling me I should have taken.  But, she really has no clue.  Actually, she's a total hypochondriac.  First of all, as all of you and I know there is not a "Lupus test".  If there really was, don't you think we of all people would know this?  Everytime she talks about it, I ask questions.  I ask her what kind of test she's having taken.  Have they given it a name?  She keeps saying that "they" have really come a long way and there is 1 inevasive test to find out if you have Lupus or not?  I have to call her bluff-she's driving me crazy.  She also complains that her kidneys are bad again because she has lower back pain.  Hmmm-when I asked her if the doctors have taken any tests on her kidneys, she replys, "yes, and they're bad."  If I ask her what types of tests and results she's received, she says she can't remember.  Why would anyone want to have Lupus?  Don't they see how we can suffer? 
 
Anyways, I've shared this with a few of my co-workers because it seems that everytime they talk to her and mention an ailment that they are experiencing, she too has it, only she's got the "rare kind."  So, we came up with a new ailment.  It's called boobaloobacockus.  Pretty much we declare that we have this rare disease anytime we bump our knees on a desk or corner of something.  We always laugh because we know that if she ever finds out we have this new disorder, she'll totally have it-10 years ago. 
 
Sorry to erupt, but I just can't understand this woman, and I'm sure that there is not just 1 test out there for Lupus.  I've mentioned a few of the others signs, like the Butterfly rash, and she claims she gets this all over her body?!  (I would maybe call this hives-I don't know).  She also says that she will cure her Lupus with exercise and a positive attitude.  Now I'm laughing out loud.  I think that we all need to pat ourselves on the back, because the people I've met on here seem to have some of the most positive attitudes of anyone I've interacted with.  I just want to know who has cured themselves with their tremendous positive attitude.  I actually think she needs help-that's just me though. 
 
Thanks for listening.
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/15/2008 8:58 PM (GMT -7)   
Hmmmmmm, my doctor said that I've had boobaloobacockus for about 3 years now . . . but its a very advanced case and he only expected me to live about 3 months or so. I've been extremely positive about it and so far, I'm still alive and well!!! So, a positive attitude does cure disease!!! YEaH!!

Sorry Firebabe . . . I couldn't resist. She needs some attention, that's for sure. She just doesn't know how to accomplish that in a positive way.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 1/15/2008 9:43 PM (GMT -7)   
boobaloobacockus, isn't that the disease where when you get older you chest starts to sag down to your knees and than your knees start to swell? Rosie I'm sorry you have it so bad. My doctor said there is a new cure out there and if I start standing on my head for 20 mins 3 times a day the swelling will go down in my knees and I will add 3 inches to my chest! 
 
Firebabe, ya know it takes all kinds. Some people realy just need the attention. If she ever really got sick she would totally regret it. The really sad thing is people like us have to put up with the "but ya don't look sick" comments.
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax x3,Singular,nitro spray, aciphex, diovan. 
Only two defining forces have ever offered to die for you: 1. Jesus Christ 2. The American G. I
 
 
 


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/16/2008 6:40 AM (GMT -7)   
Thanks guys! That made me laugh so hard to read your replies. It's pretty sad that she's searching for attention so hard. The next time I get Boobaloobacockus I will stand on my head so that the swelling goes down. Oh, and I will do it with a smile:)
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 1/16/2008 7:27 AM (GMT -7)   
Those are the people who I usually get exasperated with and quit asking any questions. Instead, I smile and say sweetly, I'm sorry you're feeling bad, or I hope you feel better soon. Somehow they soon get tired of talking about that kind of stuff around me! (Obviously I don't care if I'm popular or not! :-) )

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Barbara Lee
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Date Joined Sep 2003
Total Posts : 2889
   Posted 1/16/2008 9:58 AM (GMT -7)   
Firebabe:

All I can say is "I'm sorry" that you have to deal with someone like this. You should suggest she insist her doctor do a colonoscopy on her. Tell her "it's the best and newest way to find lupus. I have a very hard time dealing with ppl like this, you've got to be commended for not loosing it on this wacko. I'd say all of the previous thoughts of dealing with her would work.

Hang in the Firebabe, the woman is cracked and your are a sweet lady. Take care and I hope thing get easier for you with her.

Take care,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/16/2008 6:53 PM (GMT -7)   
LOL LOL LOL Barbara . . . I am literally laughing out loud!!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/16/2008 9:00 PM (GMT -7)   
I have an uncle like this. He has been "terminal" for the last 30 years! He called my dad the other day and said he has a new disease where he can't tell if he's inside or outside. My dad said, "Well, get a broom if you can touch the ceiling your inside, if you can't you're outside." On his birthday a good friend of his came by and said, "I wish I had a 5 gallon bucket full of some rare disease to take him for his Birthday, he be the happiest man alive!" We laugh sometimes and cry sometimes! It's very frustrating to deal with these types, especially in the face of real illness. I worry he's the little boy who cried wolf too many times. If he ever really gets sick noone will ever believe him! I'm going to have to mention boobaloobacockus to him. He won't care if it's a girl disease, he'll be the 1 in 3 quillion males that gets it! :) Judy

hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 1/17/2008 10:23 AM (GMT -7)   
Firebabe, that really stinks that you have to deal with someone like that at work, but at least your other co-workers are on to her and you can all use humor to deal with it. For me the hardest part would be hearing her say that she will cure her lupus with her positive attitude. Wow - we've all been paying our rheumies and taking these toxic drugs for nothing, when all along all I needed was a postitive attitude :) I think I'll start being happy now and see if I get cured - I'll let you all know.

I think I have Boobaloobacockus too. I think it's my chest sagging to my knees and constantly hitting my knees that is causing the swelling in my knees. Maybe standing on my head will reverse gravity and stop the sagging :)

What would we do without a sense of humor. Everyone had me laughing out loud.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/17/2008 6:19 PM (GMT -7)   

Okay, Rosie, if you're gonna use a word like "boobalooba -watcha-ma-call-it", be prepared for some retaliation...  I had to read that word 5 times before I could actually "get it"!! LOL.  This is the lupus forum, remember!  We need simple, one syllable words that won't make us feel dyslexic, or trigger our brain fog!! LOL.  Too funny.  I love the word, but can guarantee I will never remember how to say it....

Yes, Firebabe, the world is full of these kind of people eh!!  I love Barbara's idea of a colonoscopy.  That should shut her up....She definitely sounds like a cracker who is in need of some attention.  Weird way to get it.  Keep us posted on her future antics.  This could get really funny!

Ginny

 


I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/17/2008 6:54 PM (GMT -7)   
Hi Ginny . . . it wasn't my word . . . Firebabe used it in her office. LOL . . . I like the colonoscopy too!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/17/2008 6:57 PM (GMT -7)   
Oh yeah!  A colonoscopy!  That's great.  Maybe a monthly one would change her mind about "having Lupus".  I actually had a dream that she came up to me at work and was excited because she got diagnosed.  She was smiling about it and even seemed giddy.  Ok, so that was a nightmare.  I'm not sure, but I'm guessing at her age (55) she's probably gone through menapause, and I was thinking that most of the time women were diagnosed during child bearing years.  She could get her wish and be really rare if she was diagnosed after that time period. 
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis

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