Starting CellCept

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Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 1/16/2008 10:21 AM (GMT -7)   
Hi Everyone.  I'm starting CellCept today.  I had to take the bus to my Rheumy's yesterday because I get double vision and wacked out depth perception if I drive more than 10 minutes.  I got a steroid injection yesterday, so I didn't sleep well last night. Carol, we were up together, but I'm glad I wasn't barfing!  I'm exhausted so a nap is calling my name.  "Buuuuterflaaaake, it's nappy nap tiiiiime."  Later Ladies.  Love, Butterflake
 
Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: plaquenil methotrexate Imuran prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  
PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/16/2008 10:29 AM (GMT -7)   
Hey Donna:

I hope the CellCept works for you. Sorry to hear about your vision I hope that the steroid shot straightens things out for you. Wishing you the best as always.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 1/16/2008 1:38 PM (GMT -7)   
Hey Barb.  Thanks for the encouragement.  The steroids give me much needed energy and help the pain, but won't correct my vision.  I've been flaring off and on since Thanksgiving, but I'm working from home 4 days a week so that helps. I hope the CellCept helps my CNS problems such as double vision, falling, stuttering, severe brain fog, and dropping things. I hope you're feeling at least OK.  My daughter, Tory, is finishing school this week and leaves for her externship at Disney World Monday.  She will be back in May and I'm really going to miss her. I get to keep her 2 cats while she's gone so that will be fun. Boris is an orange persian with a pushed in face and he's extremely laid back. If I stepped on his tail he would turn to me and say, "Hey dude, are you gonna move anytime soon?"  scool   He's way cool. Love, Donna
Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 1/16/2008 3:04 PM (GMT -7)   
Cellcept was a miracle drug for me -- my brain was on extreme meltdown -- much worse than fog, more like a total blackout! And now I can think again!!! My brain is restored! I had lost about 15% of my function - couldn't drive, work, etc., let alone finish a coherent sentence.

Cellcept revived my brain big-time in just 2-3 months -- stayed on it about a year, then am still in midst of slowly tapering off.

I never had any big side effects -- only thing was my hair started thinning some -- but is coming back in now that my dosage is cut down from the original 3000mg/day.

I hope you have a similar experiance,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/16/2008 6:07 PM (GMT -7)   
Donna, I hope the Cellcept works for you and fixes your CNS problems. Ive heard good things about it.

I know how you must be missing your daughter, we are in the same boat. My 19 year old son left home almost 2 weeks ago to move to FL. I miss him so much! Take good care of yourself and let us know how the new med is working for you!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/16/2008 6:58 PM (GMT -7)   
Good luck with the cellcept Butterflake!!! I sure hope it helps your sight and cognitive issues!! Keep us posted, ok?

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/16/2008 8:52 PM (GMT -7)   
I know how you feel. I have battled Lupus cerebritis this whole year. Hang in there this too shall pass! You are in my thoughts and prayers. God Bless you, Judy

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 1/16/2008 10:07 PM (GMT -7)   
Hi Judy, Stacie, Rosie, and Lynnwood.  Thanks for the encouragement.  Lynnwood, when I took the bus yesterday, I was on Peachtree at the High Museum and couldn't remember which direction Piedmont Hospital was in, so I got on the bus I thought was right.  I was all the way to the Fox Theater before I realized I was on the wrong bus.  I've been going to clinics at Piedmont and Emory Crawford Long for two years.  I'm really close to blackout too.  There are days that I'll read emails for assignments and then stare at the monitor for a couple of hours unable to concentrate, so I give up and take sick leave.  I told my rheumy that I will probably apply for disability this year, but I'm not ready yet. He said, "You'll know when it's time." Oh, most days if I talk with someone more than a few minutes I start to stutter and then struggle to finish sentences.  While my rheumy was observing this regression (that word took some time!) he told me to change my neurology appointment to first available.  My neurologist is at Crawford Long and I'll get on the correct bus. Now you know why I chose the name Butterflake
Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 1/16/2008 10:15 PM (GMT -7)   
It's not like Atlanta is the easiest place to remember directions in anyway. When I first moved here I came from a flat area, so the roads didn't have hills and curve around. And who ever heard of continuing the same street and giving it 3 or 4 different names along it's length??!!

I hope the Cellcept helps your brain as much as it did mine, and SOON!

Email me if you want,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

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